Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 In a message dated 10/12/2001 9:12:43 AM Central Daylight Time, reidsy@... writes: << I dread the first time taking her out to the mall and all the strange looks and questions about the band but like all you experienced moms I'm sure I will adapt. Any advice or tips on what to say. >> , At first I was very self-conscious about taking out in public with the helmet. I made sure it was always decorated and that seemed to help quite a bit. I was fortunate not to run into even one openly rude person. If people were rude behind my back I was never aware of it. When people asked about it I used it as an opportunity to educate people about plagio. When people stared I would say (if appropriate), " she's cute isn't she " . This usually opened the door to talk about " it " . Kids always had the best questions and I usually compared the helmet to braces if they were a little older and kept it even simpler if they were younger. Going out gets easier too. Just hold your head high and remember that you are doing what is right for your baby! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 , I just love Marci's response of "she's cute, isn't she?"- wish I had used that one! I really didn't get too many rude people either, just stares and questions. Usually children would come up to us and ask why he wears a helmet, and I would say its to help his head round out, and that he's not hurting or in pain. I think a lot of people, especially children, (and adults too I guess), thought he was in pain, or had something wrong with his brain, so I would brush it off and make it seem like no big deal and that calmed the stares a bit- I mean, if mom can have a smile on her face, it must not be too bad, right? At first the stares kinda got to me, but after awhile, I saw results and thought, I don't really care what people think, and how sad that we do stare at people that are "different". That's why I didn't let it get to me too much, I cut people a little slack because it is human nature to focus on someone that is "different". We look at the little old lady with blue hair, we look at the man with a glass eye, we look at the kid in the wheelchair, or the amputee, its just something that happens, right or wrong. Maybe this will teach us as parents and family members going through this, to have more empathy for others. Just my mindless thoughts running away from me.... ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 -----Original Message----- From: Reid-Sissins, [sMTP:reidsy@...] Sent: Friday, October 12, 2001 10:09 AM 'Plagiocephaly ' Subject: RE: Re: I'm doing the HAPPY DANCE--- I dread the first time taking her out to the mall and all the strange looks and questions about the band but like all you experienced moms I'm sure I will adapt. Any advice or tips on what to say. , I only remember one really rude person while my son wore his helmet. Most people responded positively. We had the helmet decorated and it had his name on it which seemed to encourage people talk to him and smile at him. He loved the attention. Little kids were the most forthcoming with questions and we answered as simply as possible. Some people on this board had little handouts describing plagiocephaly that they could give to adults who were curious. I think that is a great idea because sometimes you just don't have the time (or are just not in the mood) to answer another question. I agree with Debbie. My son was so put out when he found out it actually hurts to bang your head. He would get all offended. He flipped out of his chair at daycare yesterday too - must have been the day for it. Good luck with your insurance battle. The rest will be over before you know it. Amy mom to Elijah helmet grad 9/11/01 MA > -----Original Message----- > From: Reid-Sissins, [sMTP:reidsy@...] > Sent: Friday, October 12, 2001 10:09 AM > 'Plagiocephaly ' > Subject: RE: Re: I'm doing the HAPPY DANCE--- > > I dread the first time taking her out to the mall and all the strange > looks and questions about the band but like all you experienced moms I'm > sure I will adapt. Any advice or tips on what to say. > > > > > > > > > > > > > < > <http://rd./M=168643.1620686.3205344.1261774/D=egroupweb/S=17> > > 051261 > > > 71:HM/A=816903/R=2/* <http://www.overstock.com/cgi-bin/d2.cgi?> > > cid=12973> > > > > > > < <http://us.adserver./l?> > > M=168643.1620686.3205344.1261774/D=egroupmai > > > l/S=1705126171:HM/A=816903/rand=320717272> > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 Thanks for all you empathy & support. -----Original Message-----From: Leblanc, Amy [mailto:aleblanc@...]Sent: Friday, October 12, 2001 10:35 AM'Plagiocephaly 'Subject: RE: -----Original Message----- From: Reid-Sissins, [sMTP:reidsy@...] Sent: Friday, October 12, 2001 10:09 AM 'Plagiocephaly ' Subject: RE: Re: I'm doing the HAPPY DANCE--- I dread the first time taking her out to the mall and all thestrange looks and questions about the band but like all you experienced momsI'm sure I will adapt. Any advice or tips on what to say. ,I only remember one really rude person while my son wore his helmet. Mostpeople responded positively. We had the helmet decorated and it had hisname on it which seemed to encourage people talk to him and smile at him.He loved the attention. Little kids were the most forthcoming with questionsand we answered as simply as possible. Some people on this board had littlehandouts describing plagiocephaly that they could give to adults who werecurious. I think that is a great idea because sometimes you just don't havethe time (or are just not in the mood) to answer another question.I agree with Debbie. My son was so put out when he found out it actuallyhurts to bang your head. He would get all offended. He flipped out of hischair at daycare yesterday too - must have been the day for it.Good luck with your insurance battle. The rest will be over before you knowit.Amy mom to Elijah helmet grad 9/11/01MA> -----Original Message-----> From: Reid-Sissins, [sMTP:reidsy@...]> Sent: Friday, October 12, 2001 10:09 AM> 'Plagiocephaly '> Subject: RE: Re: I'm doing the HAPPY DANCE---> > I dread the first time taking her out to the mall and all the strange> looks and questions about the band but like all you experienced moms I'm> sure I will adapt. Any advice or tips on what to say. > > > > > > > > > > > > > <> <http://rd./M=168643.1620686.3205344.1261774/D=egroupweb/S=17>> > 051261> > > 71:HM/A=816903/R=2/* <http://www.overstock.com/cgi-bin/d2.cgi?>> > cid=12973> > > > > > > < <http://us.adserver./l?>> > M=168643.1620686.3205344.1261774/D=egroupmai> > > l/S=1705126171:HM/A=816903/rand=320717272> > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 I have to admit I did not know here, as well as most here. did and we discussed it for awhile last night. T's mother died of the same thing when she was 49, when T was in her 20's. As I sat way into the morning sending Love into the entire matter, filling and surrounding 's essence, her family, and her friends, I kept seeing, feeling her little girl...the connection is strong with those two. Her mother is all around her, and it seems that the little one has the connection to see and speak to her, but may find it difficult at this time due to all of the surrounding loving beings trying to fill every space and time in comforting her. That little girl understands more than all the surrounding grown-ups combined... And it is in her own grief that comes to hold her and talk. It would not surprise me to find out later that has came to her several times during this. Watch for any who might, in loving ways, seek that she " move on " , and let it go. This would not be wise. This little girl will also increase in the power to heal and bring joy to many...and will be there in every step with her. For 's soul agreed to this long ago, out of the greatest Love that can be imagined...and she did it to empower that little one...and ALL of you. My tears are not for , although some came...my tears are for the little one...and I am unable ..............................................to continue this now. Quote Link to comment Share on other sites More sharing options...
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