Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Since I got diagnosed I have spent a lot of time " feeling " my pain and just getting a handle on good days v bad days, what helps, what doesn't and this is what I have learnt. 1. Negative people need to take their opinion out of my house, a bad day can double if I'm surrounded by a whinger, you can tell a whinger because they usually start off asking you how you are then before you have answered they have launched into " well if you think thats bad MY...............................................insert monologue on sore toe nail here. 2. A bad day does not mean a DEAD day it means I have 2 out 10 energy and I need to structure my day accordingly. 3. If you burn a good day by catching up, make sure you REALLY catch up because you WILL over do it and the next 2 days at least need to be allocated for bounce back. 4. Same applies with exercise the adrenaline is great for the 30 minutes you do it but the bit back is a bi*ch. 5. Meds are fine but if its the only thing in your " emotional tool box " you are doing something wrong. 6. Side effects are real - Don't exclude meds as a possible case of symptoms, once I reduced one of my meds my brain fog cleared extensively, no one mentioned to me that the treatment might be worse than the cure. 7. Its not my job to convince the world of my disease they either get it or they don't, if they don't MOVE on. You can waste hours of your life making yourself miserible trying to " convert " someone. 8. Even if you can't leave the house talk to someone everyday. 9. On days where you are think your gonna loose it, physically grit your teeth and bear it, yes it is there, yes it exists and yes, it sucks so chomp on down and bear it. 10. As long as I am a alive, there is hope that tomorrow might be a better day. Today I adopted a little girl so I'm too busy to be in pain (hmmmmm distraction really doesn't cut it). Re: PTSD... maybe I DO have it and being strong You know, I can be placed in this category easy. I can soo relate. I could write a book about what I've been thru. No, no flashbacks but soo many of the others things. Maybe I should write some of them out for you........ I do believe that this has had a HUGE impact on my/our bodies and Fibro in particular. I also have to agree 100% that we are truly S T R O N G people!!!!!!! The strongest I've ever met. Myself included. And, don't let anyone tell you different!!!!!!! We are some of the strongest out there!!!!!! You better believe it!!!! ~Jennie **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Oh and last but not least EVERYTHING I OWN CAN FIT DOWN THE TOILET - GOTTA LOVE KIDS. Re: PTSD... maybe I DO have it and being strong You know, I can be placed in this category easy. I can soo relate. I could write a book about what I've been thru. No, no flashbacks but soo many of the others things. Maybe I should write some of them out for you........ I do believe that this has had a HUGE impact on my/our bodies and Fibro in particular. I also have to agree 100% that we are truly S T R O N G people!!!!!!! The strongest I've ever met. Myself included. And, don't let anyone tell you different!!!!!!! We are some of the strongest out there!!!!!! You better believe it!!!! ~Jennie **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
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