Re: NO ENERGY... This takes the cake... or candy?

[Guest guest]

Hi Debra V,

Today I am totally drained from lack of sleep last night so can

understand how you feel. My husband probably thinks I am lazy since I

don't do much housework. Hope you feel better soon to go back to your

job. Do need to find one, also but too lazy to do that.

love and hugs,

Debbie J

-- In Fibromyalgia_Support_Group , debra van ness

wrote:

>

> I was laying on the couch last night on my second off day from

work. Feeling like I was totally drained. I had a bad taste in my

mouth and wanted a piece of candy from a dish that was not more than

4 feet away. I had to contemplate the energy it would take to get up

and get it. I decided it was not worth it. No wonder people label

us as lazy. But it isn't lazy, it is fibromyalgia. It is pretty sad

when you have to weigh the energy vs. benefits of getting up for

something that simple.

> It just seems at times it is worse than others. You all know

what I mean. I feel a " little " better today but not alot. I have to

go to work soon. I honestly don't know how I am still able to get up

and go......out of pure necessity I guess.

>

> But what about the day that comes that I can't get up and go to

work???? no matter how necessary it is? I fear that day.

>

> Oh and I might add that yesterday when my 5 year old sat on my

lap, it just about killed me with pain. What the hell?

>

> I hate this crap.........grrrrrrrrrrrrrrrrrrrrrrrrrrrrr

>

> love and hugs,

> Debra V.

>

>

> ---------------------------------

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>

>

[Guest guest]

In a message dated 1/7/2008 10:04:34 A.M. Pacific Standard Time,

ladybug75901@... writes:

Oh and I might add that yesterday when my 5 year old sat on my lap, it just

about killed me with pain. What the hell?

and I can handle the baby...we still call him the baby, even though

he is now 17 months old...sitting on our laps, but when the older kids sit on

our laps, we feel trapped and can't stand it. gets it worse than I

do and because I don't want the kids to feel like we don't love them as much

as we do the baby, I will tough it out.

I hate this disease and how it robs us of being able to be " normal " parents

to our children. toughs out a lot, too, in order to be a good mom to

her kids, but they don't know that she is sick like I am. But then mine has

become much more noticeable than hers and the kids unfortunately, worry

about me. I don't know how to ease their minds. Anyone have any ideas?

Love and gentle hugs,

Debi/So. Cal.-54

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