To RAB.... re: quality of life

[Guest guest]

In a message dated 1/5/2008 11:21:14 A.M. Eastern Standard Time,

ladybug75901@... writes:

The way I feel in the mornings would never wear off to any degree without

hydrocodone. It does not get me high, it brings me to a level of functioning

that takes the pain way down and allows me also to have some energy for a

while. It seems to help alot with the fatigue also.

Hi Debra:

The only thing that seems to help me also is the hydrocodone (Percocet)...Do

you find it difficult to get your doctor to prescribe it? I am using what I

had when I had shingles last year, and I am thinking that the doctor won't

give it to me, cos they always act like you are a drug addict or

something....I have tried all the other meds they asked me to try for fibro

(elavil, etc.)

and nothing worked and had alot of side effects which I will not take them

for that reason....

Thanks

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[Guest guest]

I suppose if I gave quality of life a number on a 1-10 scale.... it must be

about a 5 now. If I would consider pre FM about 5 years ago to have been a 10.

I am still able to work....(not really able but still can push myself to go). I

can get up in the morning though it is a task and most times I cannot bend my

body and have to literally roll out of bed. I can still do a few things for my

kids, but not like I think I should. I do hurt everyday of my life to some

extent. The fog is getting worse sometimes too and I cannot concentrate well.

Ok, meds? If not for my meds, I would not be able to function. This is the

honest truth. Hydrocodone has been a miracle for me in that it allows me to

feel almost normal most days for a few hours. Some would think it would hinder

my ability to work... much the opposite. The way I feel in the mornings would

never wear off to any degree without hydrocodone. It does not get me high, it

brings me to a level of functioning that takes the pain way down and allows me

also to have some energy for a while. It seems to help alot with the fatigue

also.

I do agree that sometimes quality of life is all in how you look at it. It is

just hard for some people to look at it as anything positive while they hurt all

the time and have to lay in bed almost all the time. (that is not me yet....

but I fear I will progress to that point someday)...

5 years ago, I could wake up every morning with some degree of feeling rested,

had no pain in the morning and no stiffness. Now, it is a daily thing and I can

just expect it.

IF THIS DISEASE DOUBLES in the next 5 years also,,,,, the quality of life will

be entirely poor.

hugs,

Debra V.

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