Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Okay, after much research this weekend, I have decided I am going to do this protocol. I exchanged an email with Stan and he recommended a good DAN dr to help me as apposed to our family dr who I could probably get to help me. Now, where to find one. I have been to 2 in my state, Michigan, they are a no. So someone lead me. Money is a problem, if it is too much my husband is not going to be on board, although we had planned on seeing dr goldberg, which would have cost a pretty penny! dr goldbergs diet is what made me really hesitate. I may have posted this in another post, forgive me if I did. is 13 and the youngest of 7. He has a sister who has type 1 diabetes and one who has premature ovarian failure. Most of us have huge allergies and migraines. was never vaccinated. He was born normal, although he was my only child with colic, I now know that is from yeast. I knew he was different but it was nothing you could put your finger on. Oh, he was born into a home that had mold. We are in a very good environment now though. At age 3 he had his first grand mal and had 3 more. They stopped until age 5. Ever since then, he has back slidden. He lost his ability to talk, draw, play, sing, etc... He never got potty trained. We have to feed him and he eats anything we give him, a small blessing. Once in awhile he will grab something off the counter and eat it, we try not to let that happen. I really don't thi9nk the seizures have affected his brain, there is some who say it does and some who say it doesn't. I have seen too much from over the years to believe that he is gone. He usually sits on the couch doing nothing. Sometimes he walks and walks. I can engage him easily. He makes really good eye contact and will smile. He has never been a head banger and is really sweet. Lately, since starting the iodide, he is putting together train tracks and doing tray puzzles. We see pieces of him like this and then he slips back. We took him to many neuros for the seizures and at one point they had him on 3 different scripts, 17 pills a day and still the eeg showed a seizure every minute with 17-24 grand mals a day. They tried 19 different drugs on him. We tried the keto diet, nothing helped. We were still clueless about nutrition and scared too. None of these neuros ever said he had autism, even though I kept saying he was the youngest of 7 and I knew what I was talking about when I said he was different. Typical. They also found a very small arachnoid cyst on his brain that the surgeons insisted could not be causing the seizures. We took him to cleveland clinic for another opinion and they agreed. Then we started with the holistic drs and here we are, 8 years later. There isn't much we haven't tried besides this and hbot. We have a frequency generator even, also know as a rife machine. The problem has been the seizures. This child is so allergic to everything, that you can't even give him anything as far as supplements. He hasn't even done a parasite cleanse, not a full one anyways. You start and then a couple days later the seizures start. I have boxes and bins of supplements. Early on, I discovered that allergies could mimic autism so I ran him to our dr who tested him. I didn't think he could have autism because he was not vaccinated. I figured all of my kids were sick because of the mold. So tested allergic to almost everything. No surprise there, I know many of these kids are like that. Soon I discovered that when he ate a food he was allergic to, he had a seizure. One nice DAN taught me how to muscle test and that has helped alot, for all of us. When eats the wrong food he has a grand mal, luckily they are a few seconds only. He bounces back pretty quickly too. Allergies change almost daily. We have been doing gaps/bed for over a year, this is just a stricter version of scd, which I also did. I recently have stopped giving him milk, even though it was not pasturized. I do make goat milk kefir for him every day and feed him some of these grains too. They have huge amounts of beneficial bacteria in them. I was doing the coconut kefir for him but if you didn't ferment it just right it would test no and cause seizures. So I am ready. Stan said maybe viral since regressed. I really feel with the small gains we have been seeing that this is going to be the year for and I so desperately want him healthy. So, anyhow, a DAN dr? Thank you to anyone who read this! jo Quote Link to comment Share on other sites More sharing options...
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