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Re: Relationships with Fibro

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let me tell it is not easy

Relationships with Fibro

Hi,

I have been divorced for 8 years. I am getting ready to graduate as

of 12/08. I am a single mom. I have accomplished a lot in my life,

but this diease is kicking my butt. How do you tell someone you are

very sick?

I try not to mention my illness because I have seen them run away or

course they were not worth to fuss. My family stays out of my life.

They know I am sick, but they do not understand. How do you guys deal

with that? Plus, I was very active before I was diagnosed with Fibro,

IC, and IBS. My son is 8 years old and he is in sports. I feel like

a failure because I can not keep up. How do you deal with this?

Lussia

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Hi Lussia and gongrats on your upcoming graduation. I can't imagine going to

school in my current condition except Sunday school and I haven't been able to

do that in a couple of months now.

I mentioned to several members of my Church that I had FM and never got much of

a response and no one ever ask me how it was doing so I stoped mentionibg it and

found a new Church where members thought enough of me to ask how I was doing.

It's hard to figure out wether to mention it or not to mention it.

I've had 2 hip replacements,cardiomyopathy and now FM which was DXed about 10

mos. ago. I've yet to find a decent Dr. that is knowledgable about this

MONSTEROUS DISease oh and type 3 IBS as there are more than one type.

I wish YOU the best! ! !

GOD Bless YOU ! ! ! . . .

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To: Fibromyalgia_Support_Group@...: lussialussia@...:

Thu, 3 Jan 2008 02:23:23 +0000Subject: Relationships with Fibro

Hi,I have been divorced for 8 years. I am getting ready to graduate as of 12/08.

I am a single mom. I have accomplished a lot in my life, but this diease is

kicking my butt. How do you tell someone you are very sick? I try not to mention

my illness because I have seen them run away or course they were not worth to

fuss. My family stays out of my life. They know I am sick, but they do not

understand. How do you guys deal with that? Plus, I was very active before I was

diagnosed with Fibro, IC, and IBS. My son is 8 years old and he is in sports. I

feel like a failure because I can not keep up. How do you deal with this?Lussia

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Hi Lussia,

You have come a long way. It's great that you have kept up going to school

while being a single mother. That is really hard. You must be looking forward

to a big celebration, well a little one at least, when you graduate in 12/08.

I don't really know how to tell someone you're sick. It hasn't worked wonders

for me. I've been divorced since 1996 and have had friends and family just kind

of drift away since my dx in 1991, When I had to leave the working life I lost

a lot of contact with the world around me an so became more isolated. I live

alone and have a few friends left who can put up with the cancelled plans, which

seems to be the most annoying factor to my other friends and family. It's hard

when you can't plan ahead because you don't know what might happen and

disappoint someone and then again it's almost impossible to do things on the

spur of the moment.

I think the only thing to do is be honest. Maybe start small and explain that

you may not be able to do everything you plan to do. If you can get them to

understand that limitation, so they know it's not your being evasive, standing

them up, or consciously ruining their plans, then maybe you could explain a

little more about the illness. I found when I just jumped in with all the facts

I scared people off. I know that if someone can't handle that I have an illness

then I don't need them in my life, but I think I could have eased them into it a

little slower.

You don't know what is in store for you down the road. Maybe you won't have a

debilitating case of fibro. Many people don't. I would just keep going and

doing what you are doing, because you surely are doing something right.

Take care of yourself,

Marti

lussialussia wrote:

Hi,

I have been divorced for 8 years. I am getting ready to graduate as

of 12/08. I am a single mom. I have accomplished a lot in my life,

but this diease is kicking my butt. How do you tell someone you are

very sick?

I try not to mention my illness because I have seen them run away or

course they were not worth to fuss. My family stays out of my life.

They know I am sick, but they do not understand. How do you guys deal

with that? Plus, I was very active before I was diagnosed with Fibro,

IC, and IBS. My son is 8 years old and he is in sports. I feel like

a failure because I can not keep up. How do you deal with this?

Lussia

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