Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 Eileen: You are most certainly welcome! We are glad you found our group & look forward to answering the zillion questions you'll probably be having over the next few mos Sounds like Adam was a real trooper with the casting, you're lucky! Debbie Abby's mom DOCgrad MI > Hi > > I just wanted to give special thanks to the emails I received as a > new member. Thanks to & ,Marci & thanks for the > advice on possibly having to take sometime to work up to the 23 hours > if necessary. I will let you know when he is in the helmet how > everything is going. To Debbie & Abby it must be a starband after > reading what you wrote in the email. He was casted by a orthotist. > When he was casted he didn't make a peep until they were taking it > off then he started to cry. Once again thanks to all I really am > happy I found all of you and as soon as I figure out the email > situation I will be all set. > > Eileen & Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 Eileen, Adam didn't even cry until the very end, what a trooper!! Good luck when he starts wearing it and keep everyone posted with his progress! I'm sure it will be harder on you than it is on Adam- believe it or not! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Dear I can understand how you are feeling as the same kind of thing happened to my sister in law. The GPs checked over in hospital and all seemed fine. At this stage no-one thought anything was wrong. It was hard to tell as was always asleep. Two weeks later she visited the Clinic sister who was worried about the epicanthal folds, the shape of his ears, the width between his eyes, the flattened nasal bridge and the Asian slope of his eyes. The following week she took to the GP and he said he just has small eyes. But gave them a referral to see a Paediatrician anyway. We live in Central West NSW in a town called Parkes and do not have a Paediatrician here so had to wait a couple of weeks before one came to town. He took photos of and did measurements as well as blood tests (which included chromosome studies) and said he would have a discussion with his colleagues and wait for the blood results to come back and he would let them know in about a week or two. The Paediatrician phoned and told them has a condition known as BPES. He said he knew nothing about it but for them to look on the internet to see what they could find out. He told them they could ring him anytime with any questions. I don't know what the point would have been as he said he knew nothing about it. He gave them a referral then to see an opthalmic specialist, Dr Tang, from Sydney. Rob from this group gave me the names of two people who he and his son have dealt with in Sydney. My sister in law asked the Paediatrician for a referral to Dr as he has experience with BPES but she was told he has closed his books on new referrals and is winding down getting ready for retirement. Anyway this specialist, Dr Tang, is coming to Orange (100kms East from us) on Thursday especially to see . The Paediatrician is also going to sit in on the consult as he wants to know more himself. So at the moment we know nothing except is 8 weeks old and he has BPES. I'll be sure to keep you informed. Kind regards Kristie Search - Looking for more? Try the new Search Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 > > >The Paediatrician phoned and told them has a condition known as BPES. He said he knew nothing about it but for them to look on the internet to see what they could find out. He told them they could ring him anytime with any questions. I don't know what the point would have been as he said he knew nothing about it. He gave them a referral then to see an opthalmic specialist, Dr Tang, from Sydney. > > Perhaps the paed meant that he could help with some of the obscure medical terminology (like what's an entropion) or broader issues (like longer-term scar behaviour and post-operative care, etc)? Even though they're not fully au fait with all the ophthalmic particulars in depth, they should be up on most of the terminology and stuff in general. >Rob from this group gave me the names of two people who he and his son have dealt with in Sydney. My sister in law asked the Paediatrician for a referral to Dr as he has experience with BPES but she was told he has closed his books on new referrals and is winding down getting ready for retirement. > > D'oh and dang! I've just adopted myself in the last few years, after my long-time ophthalmic man (Dr ) retired a few years ago. Now I'll have to find another one. Maybe I'll find one that's not too old next time... Did your sister-in-law have any luck getting on to Brett O'Donell? One other avenue she could try is to ask for a recommendation (i.e. who would he be passing his BPES patients to when he retires)? But also see how Tang turns out - he might be pretty good, I haven't heard of him. >Anyway this specialist, Dr Tang, is coming to Orange (100kms East from us) on Thursday especially to see . The Paediatrician is also going to sit in on the consult as he wants to know more himself. > Sounds like they (the docs) are making a genuine effort to be helpful, which is nice to see. Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2008 Report Share Posted June 22, 2008 Hey all you beautiful people. Great news. I did get hired at a computer monitor repair shop in Grove City called Decision One. I had to take a substantial pay cut to do it but there are advantages to taking this job. I'll know a whole lot more about monitors and I'm sure it will lead to something else. Perhaps I'll be back at OSU before long doing systems work again. That's my goal. Thanks again everyone for all the energy you sent. Reiki Dave reikidaveohio@... 614 361-4653. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.