Fibromyalia syndrome vs myofascial pain syndrome // Bonnie..had to print this!!

[Guest guest]

This is a great post,so good I had to print it as I am compiling information to

go by when I INTERVIEW my next potential PCP.

I have come to the conclusion that I will need to interview Drs. to get an idea

as to wether they will be able to meet my

TRUE needs. There's one Dr.t hat my antisocial nature would love to punch in the

face. Now I know that's not good but I have in the past felt like giving a

couple of Drs. a piece of my mind. Quality of life,YES quality of life should

come first yet I haven't

had but one Dr. that actualy considered my life and how WELL I was. I attempted

suicide about 7 mos. ago because I was so miserable I coundn't stand to go on. I

posted this ( I should be dead by tommorow) and a few members went back and read

all my past post to figure out where I lived an ultimately some one found my

moms phone # and called her to find out wether I actually attempted it. Well I

was unsucessful thank THE LORD ! ! ! Today I greater quality of life yet I do

continue to suffer on a daily basis. I've been awake since 1:30 AM but soon I'll

take a p[ower nap and get some rest. Drs. don't realize how much We

need rest. Ok I'm done now.

GOD Bless US All ! ! ! . . .

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To: fibromyalgia_support_group@...: FibroLady@...:

Mon, 31 Dec 2007 14:06:31 -0800Subject: Fibromyalia syndrome vs myofascial

pain syndrome // Bonnie

Suicide is the leading cause of death among patients with FM and other chronic

pain disorders. I can find the links later for those that want them. I'm flaring

today and haven't the energy to search through my 300 plus bookmarks!! I kinda

have them sorted into folders, but brain fog makes me forget which folder I

might have put certain links into, this can happen the next day, and the links

to this topic I found months ago.I do so agree with you about doctors

misdiagnosing our symptoms. I have finally learned to advocate for myself, but

it only happened after many years of what I might call near-abuse by a few

so-called specialists. It is also easier to research things on our own now that

we have the internet. I began my 'journey' back in 1972, and it was very hard to

research thouroughly, even using the library. One had to have at least an idea

of where to begin, now we can simply type in a word or two in a search engine

and come up with enough info to keep us busy for years. Of course, we do have to

learn which is good info, and which is untrustworthy, but now we have easy

access to such places as the Mayo Clinic or the NHO, which we didn't not that

long ago.Luckily for me, my doctor never just jumps to a conclusion about any

new symptom I present with. He sends me for tests or to a specialist, and he

doesn't mind if I have already done research on it. That is rare, as I have

noticed many doctors who just get totally irate if a patient tries to tell them

something. They want us to worship them as all-knowing gods, and we aren't fit

to speak in their presence!! If a patient disagrees with them, they will often

tell them to find another doctor, as he/she doesn't want to treat them any

longer. My old doctor didn't exactly do that, he simply closed his ears and mind

to whatever I said, then " kept on keeping on " with what HE felt was correct. He

made me feel like a nonentity. Of course, I didn't do everything he told me to

do either, or I would have been living on a diet of antibiotics!! I obviously

didn't join a health club either, and work out for an hour a day on the

treadmill and stair climber. Or join the aerobics classes at the Y. All things

which he swore would 'cure' me.My prayer, as always, is that everyone here can

find a doctor like mine. I had a couple of really great ones in Washington as

well, so I KNOW they're out there. It took a lot of work to find mine, but it

was the best thing I ever did. I'm also blessed with an incredible mental health

organisation. They are all always there for me.Peace and LoveCaroline> I think

the cure is FEEDBACK to every Dr that got it wrong, They need a> letter saying

that their failure to do a complete history has led to the> delay of me

receiving the " correct' diagnosis and treatment. Without> feedback a Dr cannot

change the way they do their evaluations. I have> been having drop attacks for

over a year I did surgery for " seizures " and> my onc just happened to mention

that Neurally mediated hypotension is the> real cause of the " drop attacks " I

have had my head cut open AND lost a> lot of memories from the side effects for

absolutely NO reason. This year> I am doing conservative management only and the

Quacks can go to hell. I> need to develope a life that includes this train wreck

of a body but isnt> run by it. No Dr is gonna give me a magic pill that will

take all this> away, so I ve just gotta get a tougher skin and deal with it,

even if I> hate every minute of it. No job, no school, no social life, in too

much> pain to do much, I need to> totally redefine what a normal day looks

like.> > What's the suicide rate for fibro patients, from the sound of this

list,> I reckon it has to be high, just based on the level of utter distress

and> the knowledge that you will never get any better.> >

Bonnie__________________________________________________________ONE-CLICK

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