Re: Think it is possible??? (very long)

January 12, 2008

I just have to say this, even though, I am sure it might cause an uproar

amongst some in the group. I have never been convinced that certain life events,

except maybe physical trauma caused by injury or illness, could contribute to

this disease. Many people think back and try to link their symptoms to bad

life experiences. What about the people, who had everything as children, their

parents stayed married and are still married, maybe even still alive, went

to good schools, married, never divorced, etc, etc... What do those people

blame for causing their fibro? I have had negative experiences with doctors

accepting this disease as a " real " illness. The first and only rheumatologist

that I saw, told me that sexually abused people have fibro, and if you were

sexually abused, you will be diagnosed with fibro more than if you did not

experience sexual abuse. I told him that I thought that was a crock of Sh*t! I

think anyone can get this, children, adults, men, women, all races...my 78

year old adoptive father was diagnosed a couple of months ago, his doctor did

lab work to confirm it, I was diagnosed in July, w/o lab tests??? I am 41 and

female. I have been diagnosed with different problems in the last 4 years,

but it seemed like the doctors that I saw were afraid to make fibro as their

diagnosis, almost like they were " too good " to say that I could have this. This

disease is a joke to them. Why is there a different criteria for diagnosing

different people? I think the nonsense surrounding this condition, is the

problem with getting the proper diagnosis and the proper treatment.

Kris

**************Start the year off right. Easy ways to stay in shape.

January 12, 2008

HI

I have to agree with allot you said.

My Dr admits that not enough is known about our disease, but he does try and

help. There is no way of diagnosing it except eliminating other diseases with

some of the same symptoms. I do know that Ra and Lupus goes along with it most

of the time.

I also know by personal experience stress and over activity makes it worse as

does change in temperatures.

I know we all have different pain tolerance levels, but I think some are

making more problems for themselves by taking narcotics for the pain, Dr's are

too fast with the pen and paper trying to pacify the pt because they have no

ideal how to correctly treat us.

I also know that it is inherited, though not diagnosed, my momma has it and

has since I was a child, I remember the severe leg and toe cramps she had when I

was a young child. I have had them on and off and have been severe the last 10

years. My niece and her daughter have also been diagnosed. I think my daughter

has it also.

I don't know what triggers it, could be stress. I just pray for a cure in my

lifetime. bless all of you

KMRC6666@... wrote:

I just have to say this, even though, I am sure it might cause an

uproar