Re: want to reintroduce myself

[Guest guest]

Hi . I just joined two days ago and I understand the shoulder pain. My

doc told me to do stretching excersise's and to use a pilate's band for some

resistance. I just got shots of cortizone in my shoulders and will start the

stretching in a couple days to allow the med to work before I use my shoulders

like that. I am hoping that this will help with some of my stiffness/pain in my

upper body. Good luck. Question: when you have done therapy before have they

given you papers showing you how to do excersises at home on your own? The last

therapy I went to gave me some and that is what I will use to get started again.

Christi Randall

www.singingwomenoftexas.com

want to reintroduce myself

Hi to everyone.

MY name is I joined in the beginning of Dec. but my fibro has

been so bad I have not been able to answer. Thank you to those of you

who so nicley welcomed me. And to ansewer the question about my

shoulder. Yes it is from the fibro and loss of movement we all have.

The pain was so severe in my shoulder I just could not raise my arm on

a regular basis as I should have. Now my right one is trying to do the

same thing. Therapy is essental for all of us to maintain our range of

motion but how many can go on a on-going basis? It is too expensive. So

I am trying to make efforts to move them more but it is soooo hard!! I

share with all of you the pain and loss of parts of our lives like

work, and play. Sometimes I find it so unbeliveable how fast everything

has changed.

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

>Hi ,

I just joined the group this week and love it, everyone is so nice

and caring. Your right it does get expensive and the insurance only

pays for so many visits half the time. What I found to work (and I do

this with my husaband and myself) is we have a work out time, What I

mean is I asked the OT, PT, and ST what we could do at home and they

all gave me sheet of papers that had easy to do work outs on them so

we try and do a few each day. Speech is for my husband but ot and pt

works for both of us, lol. I have pain in my shoulder and the one

thing the ot had me doing is (sound strange) walk my fingers up the

wall and back down I guess it streches the rotorcuff to help with

range of motion. Hope this helps alittle.

(((HUGS)))

Tina

> Hi to everyone.

> MY name is I joined in the beginning of Dec. but my fibro has

> been so bad I have not been able to answer. Thank you to those of

you

> who so nicley welcomed me. And to ansewer the question about my

> shoulder. Yes it is from the fibro and loss of movement we all

have.

> The pain was so severe in my shoulder I just could not raise my arm

on

> a regular basis as I should have. Now my right one is trying to do

the

> same thing. Therapy is essental for all of us to maintain our range

of

> motion but how many can go on a on-going basis? It is too

expensive. So

> I am trying to make efforts to move them more but it is soooo

hard!! I

> share with all of you the pain and loss of parts of our lives like

> work, and play. Sometimes I find it so unbeliveable how fast

everything

> has changed.

>

[Guest guest]

> And to ansewer the question about my

> shoulder. Yes it is from the fibro and loss of movement we all have.

> The pain was so severe in my shoulder I just could not raise my arm on

> a regular basis as I should have. Now my right one is trying to do the

> same thing. Therapy is essental for all of us to maintain our range of

> motion but how many can go on a on-going basis? It is too

> expensive. So

> I am trying to make efforts to move them more but it is soooo hard!!

I read this, and Debra V's response. I have the same kind of

problem. I had physical therapy for it back in 1999, I think. A

couple of months ago I dug out my old exercise sheets from that go-

around and very gently started up the same physical therapy exercises

that I got back then, and have been adding a few. I also started

playing my cello again. The first few times I played it, my shoulder

would seize up and flare and I couldn't hold my right arm up. I

slacked off during the holidays, and things started hurting again,

but I'm back at it. As long as I do the exercises, it seems to

help,and while the pain isn't *gone*, it's better, I have more range

of motion, and seem to be building some strength. Plus I can play my

cello longer.

Have you talked to your doc? It could be that with a few physical

therapy sessions, they can help you develop a plan for ongoing

exercises to help build strength and keep it from getting worse.

I always say that people like me don't exercise, we do physical

therapy. ;D

Z

[Guest guest]

Well, hello again, . Sorry to hear about your awful shoulder pain. I

hope that belonging to this group is helpful to you. At least you know you

are not alone and that at least WE care.

Jeanne in WI

> Hi to everyone.

> MY name is I joined in the beginning of Dec. but my fibro has been

> so bad I have not been able to answer. Thank you to those of you who so

> nicley welcomed me. And to ansewer the question about my shoulder. Yes it

> is from the fibro and loss of movement we all have. The pain was so severe

> in my shoulder I just could not raise my arm on a regular basis as I

> should have. Now my right one is trying to do the same thing. Therapy is

> essental for all of us to maintain our range of motion but how many can go

> on a on-going basis? It is too expensive. So I am trying to make efforts

> to move them more but it is soooo hard!! I share with all of you the pain

> and loss of parts of our lives like work, and play. Sometimes I find it so

> unbeliveable how fast everything

has changed.