Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Rex, I have worn contacts for years. I started using them over 20 years ago probably. The fibro has not affected that except I tend to get dry eyes at times. I use a good solution to soak and clean in and also I just get the accuvue Oaysis lenses that help to stay moisturized. It also just takes time to get comfortable with putting them in. I think it took me a while when I first got them to put them in. It is second nature now. But, I don't know about the sarcoidosis problem. I don't have that and it could present a different problem. Debra V. Rex Burton wrote: Greetings to all, Does anyone have info on how eyes may be related to Fibro or even sarcoidosis? I ask because I am looking at getting contacts. The last time I tried to get them I could not get the contacts in my eyes at all. Does anyone have any ideas on getting the contacts into my eyes(yes I know I must do it) without a great deal of hassle? Also does the above FMS or Sarcoidosis decrease the chances of having contacts? Any thoughts on this issue? Thank you, RAB __________________________________________________________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hi RAB, I was just starting to take a break, but then I opened your e-mail and had to write you back. I don't have an answer about your contacts because I can't wear them. So just thought I'd give you my 2 cents on your eyes. I have Sarcoidosis in my eyes. It has caused me all manner of problems, from cataracts to glaucoma to uveitis and iritis, etc. I have had 4 cortisone shots in my eyes - fun stuff let me tell you. I take Prednisone, also fun because it blows you up like a blow fish and makes you want to eat the kitchen sink, to reduce the inflammation more.(that's what the shots were for too.) And will probably start taking Methotrexate soon. My eyes are red and watery and also sometimes have dry eye. I asked about being watery and dry and my eye specialist said the fluid comes from different places. Mainly the sharp pain is from the sarcoid and the aching pain is from dry eye, so at least I can do something about that. But I will never be able to wear contacts. To bring it back a little to what you asked. Had to just go off on sarcoid in the eyes. Isn't it fun having both Fibro and Sarcoid? Take Care, Marti Rex Burton wrote: Greetings to all, Does anyone have info on how eyes may be related to Fibro or even sarcoidosis? I ask because I am looking at getting contacts. The last time I tried to get them I could not get the contacts in my eyes at all. Does anyone have any ideas on getting the contacts into my eyes(yes I know I must do it) without a great deal of hassle? Also does the above FMS or Sarcoidosis decrease the chances of having contacts? Any thoughts on this issue? Thank you, RAB __________________________________________________________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 I am already at the predisone level myself, however because I had already known of the side effects of this med I told the pulmonary doc I did not want to take it, mainly due to the weight gain involved. I still do not want to take it, however I am also feeling the effects of Sarcoidosis mainly the lungs and the ongoing green stuff I keep coughing up every single day. My pain is increased in the joints and as I said in a previous posting I stated that I just found out that I lost an inch in my height. I do not know if it is related to sarc though, but something is wrong when a doctors office tells me I am at 72 " now rather than the previous 73 " I have been so used to the past twenty or so years. Another thing about Sarc is it makes you heal slower than normal. I know what it feels like to drown, but I never imagined it would be from my own fluids. If I am going to die from the SARC I prefer for my death to be a quick one and not have to suffer as all of us are now. Maybe it could also be the meds for pain I am taking. I do not know at this point and my VA docs are not the best at what they do or try to do. Oh well, I'll be waiting to see what happens. You take care of yourself ya hear? RAB --- Marti Boguski wrote: > Hi RAB, > I was just starting to take a break, but then I > opened your e-mail and had to write you back. > I don't have an answer about your contacts because > I can't wear them. So just thought I'd give you my > 2 cents on your eyes. > I have Sarcoidosis in my eyes. It has caused me > all manner of problems, from cataracts to glaucoma > to uveitis and iritis, etc. I have had 4 cortisone > shots in my eyes - fun stuff let me tell you. I > take Prednisone, also fun because it blows you up > like a blow fish and makes you want to eat the > kitchen sink, to reduce the inflammation > more.(that's what the shots were for too.) And will > probably start taking Methotrexate soon. My eyes > are red and watery and also sometimes have dry eye. > I asked about being watery and dry and my eye > specialist said the fluid comes from different > places. Mainly the sharp pain is from the sarcoid > and the aching pain is from dry eye, so at least I > can do something about that. > But I will never be able to wear contacts. To > bring it back a little to what you asked. Had to > just go off on sarcoid in the eyes. Isn't it fun > having both Fibro and Sarcoid? > Take Care, > Marti > > Rex Burton wrote: > Greetings to all, > > Does anyone have info on how eyes may be related to > Fibro or even sarcoidosis? I ask because I am > looking > at getting contacts. The last time I tried to get > them I could not get the contacts in my eyes at all. > > Does anyone have any ideas on getting the contacts > into my eyes(yes I know I must do it) without a > great > deal of hassle? Also does the above FMS or > Sarcoidosis decrease the chances of having contacts? > > Any thoughts on this issue? > > Thank you, > > RAB > > __________________________________________________________ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with > Yahoo! Mobile. Try it now. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I have been wearing contacts since I was 15 (Im 40 now) without a problem. --- Rex Burton wrote: > Greetings to all, > > Does anyone have info on how eyes may be related to > Fibro or even sarcoidosis? I ask because I am > looking > at getting contacts. The last time I tried to get > them I could not get the contacts in my eyes at all. > > Does anyone have any ideas on getting the contacts > into my eyes(yes I know I must do it) without a > great > deal of hassle? Also does the above FMS or > Sarcoidosis decrease the chances of having contacts? > > Any thoughts on this issue? > > Thank you, > > RAB > > > > ________________________________________________________________________________\ ____ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Even with plugs in my tear ducts, my eyes are still too dry wear them. I was devastated because I really wanted to wear them. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of gina roemish Sent: Monday, January 14, 2008 8:41 AM To: Fibromyalgia_Support_Group Subject: Re: FMS and Eyes I have been wearing contacts since I was 15 (Im 40 now) without a problem. --- Rex Burton <raburtongdyr@ <mailto:raburtongdyr%40yahoo.com> yahoo.com> wrote: > Greetings to all, > > Does anyone have info on how eyes may be related to > Fibro or even sarcoidosis? I ask because I am > looking > at getting contacts. The last time I tried to get > them I could not get the contacts in my eyes at all. > > Does anyone have any ideas on getting the contacts > into my eyes(yes I know I must do it) without a > great > deal of hassle? Also does the above FMS or > Sarcoidosis decrease the chances of having contacts? > > Any thoughts on this issue? > > Thank you, > > RAB > > > > __________________________________________________________ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 i was also diagnosed with sjogren's, it is an autoimmune disease, in the same family as rheumatoid arthritis,etc, and the hallmark of sjogren's is dry eyes and dry mouth, which dr.teitelbaum mentions in his book are also common symptoms in fibro, but he does not explain how fibro acutally causes the dryness, but yet info on sjogrens does explain specifically how sjogrens causes dry eyes and dry mouth. i am believing that many, many people with fibro also have sjogrens disease but they have not had the diagnostic bloodwork to get the sjogrens diagnosis, along with fibro. take care, marg > > > Greetings to all, > > > > Does anyone have info on how eyes may be related to > > Fibro or even sarcoidosis? I ask because I am > > looking > > at getting contacts. The last time I tried to get > > them I could not get the contacts in my eyes at all. > > > > Does anyone have any ideas on getting the contacts > > into my eyes(yes I know I must do it) without a > > great > > deal of hassle? Also does the above FMS or > > Sarcoidosis decrease the chances of having contacts? > > > > Any thoughts on this issue? > > > > Thank you, > > > > RAB > > > > > > > > > __________________________________________________________ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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