Re: POSITIVE ATTITUDES, ANGIE

[Guest guest]

Marcia,

Don't get me wrong. Fibro has kicked my butt. I had finally gotten so I could

manage the Lupus pretty well and then I had surgery and subsequent infections;

and then the Fibro set in and it has kicked my butt. No forcing myself through

the day anymore. That's why I can't work anymore; I don't have much 'work time'

before I have to have 'rest time'. If my stupid job would just let me take

those rest periods I might still be able to function - but you know how that

goes.

So I try really hard to set goals and get things done each day - but very often

they take me ten times longer to get them done. I have learned an important

lesson on resting. Like Nike, " JUST DO IT " . When your body says rest; you have

to listen. If you don't the Fibro will take you out for a week.

While Lupus seems to make me good and sick frequently enough - its the Fibro

that's got a hold on me and it won't let go. My doctor said I've got

Fibromyoitis - which is chronic Fibro. Fun stuff! NOT.

So my advice to you is to listen to your body and get frequent rest periods

throughout your day.

Angie Harley Mama Double-D

Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

http://360.yahoo.com/lovinglifeinnv

http://www.myspace.com/amkg

http://doripost.agrato.info/

http://www.xanga.com/PurplePassionate

http://www.facebook.com/profile.php?id=592316375

http://health.groups.yahoo.com/group/LupusSurvivorsU/

POSITIVE ATTITUDES, ANGIE

I just don't know how you do all that you do. I was just reading

about your past couple of weeks and I'm exhausted. Oh Honey, wish I could

borrow some of your energy. I try so hard, it just does not work for me. I

want to have a life so bad, but my body is not cooperating. I forced it for a

long time and now, I just so not have it in me any longer. I am begging for

help. Any kind of help to put me on a better road than I am on.

I am scheduled to see a psychiatrist, but the first appointment is in

February. I can hold out, but I am already in so must distress. The past

months have been awful and the next doesn't look any better from where I am

standing.

There are some things in my life I am grateful for, but lately I just cannot

stay focused on them. Fact is, I can't stay focused on anything but this Fibro

that is kicking my butt.

I am so happy some of you seem to be actually functioning in your lives. I

just wish I could do the same. I keep hoping I'll get past this somehow and

find me a life that counts for something.

------------ --------- --------- ---

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[Guest guest]

I read your post and I was wondering what is the difference between

fibromyalgia and fibromyoitis

I don't know the difference but if the myoitis is worse, then Please

don't let me find out first hand!!!

nancy

-- In Fibromyalgia_Support_Group , Angie

wrote:

>

> Marcia,

> Don't get me wrong. Fibro has kicked my butt. I had finally

gotten so I could manage the Lupus pretty well and then I had surgery

and subsequent infections; and then the Fibro set in and it has

kicked my butt. No forcing myself through the day anymore. That's

why I can't work anymore; I don't have much 'work time' before I have

to have 'rest time'. If my stupid job would just let me take those

rest periods I might still be able to function - but you know how

that goes.

>

> So I try really hard to set goals and get things done each day -

but very often they take me ten times longer to get them done. I

have learned an important lesson on resting. Like Nike, " JUST DO

IT " . When your body says rest; you have to listen. If you don't the

Fibro will take you out for a week.

>

> While Lupus seems to make me good and sick frequently enough - its

the Fibro that's got a hold on me and it won't let go. My doctor

said I've got Fibromyoitis - which is chronic Fibro. Fun stuff!

NOT.

>

> So my advice to you is to listen to your body and get frequent rest

periods throughout your day.

> Angie Harley Mama Double-D

> Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats,

snow skiing, camping, Harley Rider, Lone Wolf, Blue Thong

Society/High Sierra Thong Snappers member, LFA Advocate, independent,

opinionated, outspoken, and open minded.

>

> " It's always something. " ~~~Gilda Radner

>

> http://360.yahoo.com/lovinglifeinnv

> http://www.myspace.com/amkg

> http://doripost.agrato.info/

> http://www.xanga.com/PurplePassionate

> http://www.facebook.com/profile.php?id=592316375

> http://health.groups.yahoo.com/group/LupusSurvivorsU/

>

>

>

> ----- Original Message ----

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[Guest guest]

To the group,

Anyone in the group that is not on or is not happy with the supplements

they take I just really need to pass this on. I have had fibro. for more than

10 years with the severe pain all over on a daily continuous basis and I am on

Oxycontin 60 mg twice a day and Ibuprofen 800 mg 3x/day not counting any of my

other regular meds. Anyway back to the supplements please check out

www.melaleuca.com, it is a wellness company and they have a patent on their

supplements called fructose compounding. It makes the supplements completely

dissolve in the body with very minimal excreted, Most vitamins;supplements do

not do this and you only get a partial amt, I am a home care nurse and used to

be so exhausted from the fibro. that walking 10 ft was a major effort. These

supplements have saved my life as far as energy. I take the Daily for life pack

which has multiple suppplements in a package for am and another one for pm. The

only other thing I take that is not in Daily for life

pack is the Replenex. You can order these online as a non member or join as a

member for a discount on your products. I cannot reinterate that these have

saved my life as far as energy and the Replenex does help some with the pain,it

is I believe glucosamine with Bromelain and green tea and maybe some other

stuff(donthave it in front of me). I am sure some of you may have even heard of

this company or are already using the products.Please let me know if any of you

are taking these supplements at all and if they help you, I am curious. I hope

you all have a pain free or less painful day.

Jodi

MARCIA ECKERT wrote:

I just don't know how you do all that you do. I was just reading about

your past couple of weeks and I'm exhausted. Oh Honey, wish I could borrow some

of your energy. I try so hard, it just does not work for me. I want to have a

life so bad, but my body is not cooperating. I forced it for a long time and

now, I just so not have it in me any longer. I am begging for help. Any kind of

help to put me on a better road than I am on.

I am scheduled to see a psychiatrist, but the first appointment is in February.

I can hold out, but I am already in so must distress. The past months have been

awful and the next doesn't look any better from where I am standing.

There are some things in my life I am grateful for, but lately I just cannot

stay focused on them. Fact is, I can't stay focused on anything but this Fibro

that is kicking my butt.

I am so happy some of you seem to be actually functioning in your lives. I just

wish I could do the same. I keep hoping I'll get past this somehow and find me a

life that counts for something.

---------------------------------

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