Re: Chloryl Hydrate

[Guest guest]

It can be difficult to get a keto-friendly version of chloral hydrate

but apparently it does exist. Another option to break up something like

status is peraldahyde - stinky but often effective

Don Gallagher wrote:

> Barb wrote:

> >>>Maybe

> they can give him Ativan or Valium or Chloryl Hydrate...whatever to

> stop

> this spiral of seizures....get him stable <<<

> Is it true that Chloral Hydrate can stop a spiraling seizure cycle???

> cannot have benzodiazepenes as they throw her deep into

> status. I asked our neuro about another emergency medication

> mentioned on the list that was a non-benzo (sorry, the name escapes me

> at the moment), but he won't even go there. We have used CH with

> in pre-seizure days, but not since, for an MRI and it didn't

> cause her to seize at that point. We would sure like to have

> something as back-up if seizures got out of hand. Though she has not

> have need of them since being on the diet, it's scary not being able

> to use Diastat or Ativan. Do others use Choral Hydrate successfully

> for emergencies?

> Thanks in advance,

> Rose-Marie

>

[Guest guest]

Its a real old AED, that fell out of use when newer ones came out. It is

given rectally. Its the drug on " First Do No Harm " movie that they gave

to kid in hospital and it ate a hole through plastic container they had

it in. Very dramatic and scary. Fact is it has a very short shelf life

once opened and can't be stored in plastic but we used it for Jess for

years and I never saw it eat anything

michelle

Diller wrote:

>

> I never heard of praldahyde.

>

[Guest guest]

THEY ALSO SAY CHLORAL HYDRATE IS USED AS A SEDATIVE FOR YOUNG CHILDREN ONLY

BECAUSE IN OLDER CHILDREN, IT MAY WORK THE OPPOSITE

SANDI

[Guest guest]

I have never used it at home for emergencies...but for some reason, I

thought you " could " use it. Maybe it's considered a " hospital only "

emergency med. Not sure, but you could ask around. Sorry can't offer more

info.

Barb Swoyer

Chloryl Hydrate

Barb wrote:

>>>Maybe

they can give him Ativan or Valium or Chloryl Hydrate...whatever to stop

this spiral of seizures....get him stable <<<

Is it true that Chloral Hydrate can stop a spiraling seizure cycle???

cannot have benzodiazepenes as they throw her deep into status. I

asked our neuro about another emergency medication mentioned on the list

that was a non-benzo (sorry, the name escapes me at the moment), but he

won't even go there. We have used CH with in pre-seizure days, but

not since, for an MRI and it didn't cause her to seize at that point. We

would sure like to have something as back-up if seizures got out of hand.

Though she has not have need of them since being on the diet, it's scary not

being able to use Diastat or Ativan. Do others use Choral Hydrate

successfully for emergencies?

Thanks in advance,

Rose-Marie

[Guest guest]

I'm just remembering something I heard from several years ago.... they were

putting out some new advisory on the use of chloral hydrate for professionals

because there had been some deaths associated with it.... I don't know whether

it was due to overdosing or what. I just remember that they were saying it was

not quite as safe and benign as some were used to thinking. Katera has had it a

couple of times with no problems .... sedation for a CT scan and once for an EEG

when she was a baby. Anyway, that could be why they don't approve it for home

use by parents.

Patti

Re: Chloryl Hydrate

I have never used it at home for emergencies...but for some reason, I

thought you " could " use it. Maybe it's considered a " hospital only "

emergency med. Not sure, but you could ask around. Sorry can't offer more

info.

Barb Swoyer

[Guest guest]

Barb wrote:

>>>I have never used it at home for emergencies...but for some reason, I

thought you " could " use it. Maybe it's considered a " hospital only "

emergency med. Not sure, but you could ask around. <<<

I know that some families whose kids share the same dx as my daughter use

chloral hydrate at home for inducing sleep, so I would imagine it is available

for home use. I just hadn't heard of it in relation to seizure control. But I

do mean to ask the neuro if it might be an option for us to break up seizure

cycles, since the benzodiazepenes are out. Thanks for bringing up the

question!! I won't even jinx by saying we haven't had need of an

emergency med since she started the diet...shhhh.

Rose-Marie,

mom to (age 6)