Re: hi! my name is cynthia

[Guest guest]

i feel for you cj, just stand firm. my Rheumy did a

physical exam and did some pressure point testing and

I tested an 11 out of 18. in one exam she told me you

have fibro.

Diane

--- cj wrote:

> afternoon everyone!

>

> my name is cynthia. i am almost 43 y/o, live in

> western ny, have 6

> children, am almost divorces and live in pain

> everyday of my life. i

> have been like this for what seems like an eternity.

> i have been

> diagnosised with rhymatoid arthiritis and now osteo

> as well. i have

> type 2 diabetes and fall in the criteria and then

> some for fibro. it

> runs in my family, about 5 of my cousins of various

> levels of being

> related have been diagnosised. i see a

> rhymotologist and his n.p. is

> my primary when i go there. i am on methotrexate 8

> pills a week, as

> well as many many many other meds for the pain and

> diabetes...i know

> what i have. i know that for some reason the n.p

> doesn;t want to

> diagnosis me with the fibro. i don;t know why. i

> can;t work

> anymore, as i can;t stand, for long periods, or sit

> or even lay

> down. i don;t sleep well, i have a hard time

> thinking, i hurt, am

> stiffer then a body that has been dead for 100 years

> and it takes

> forever to get the siffness out. i swell, my hands

> and my feet

> alwasy seem to feel like they are balloons. my jaw

> hurts, feels

> tight or like i am grinding my teeth, i get

> headaches...i feel like i

> have the flu all the time. i ache, i hurt, i am

> tired, so bad that

> getting up to take a shower is an effort. i am

> depressed as i can not

> do the things i used to enjoy...crocheting,

> crafting, embroidery,

> swimming ( although floating feels SO good )hiking,

> walking, riding

> my bike, the last time i went dancing i made it to

> the floor did one

> turn around and had to sit down, we wound up going

> home early due to

> the pain, even shopping or lunch with my friends is

> too much strain

> for me anymore.... chasing my kids around,

> whatever...i feel like i

> am a 300 y/o woman trapped in a young woman's body.

> i don't

> understand why i cna't get diagnosised and get

> started on the path of

> healing or even just releiving the pain. i know,

> you probably have

> all gone thru this...so tell me, how do you get a

> doctor to listen

> and acknowledge these symptoms? how do you get

> someone to help you?

> how do you feel just a little bit human? how do you

> manage to explain

> to people you aren't lazy or trying to get out of

> stuff, that you are

> sick...in pain....that you feel like your muscles

> are being pulled

> into 18 different directions and the fire shots of

> pain you feel

> aren't all in your head? am i crazy? have i lost

> my mind? did i

> die and this is a form of hell for whatever

> transgression i may have

> made? sigh...anyways, i hope to find friendship

> here and be able to

> be honest and open with others in the same boat as

> me...so until

> then, i hope you are all able to enjoy the evening

> and that your

> weekend is full of love and ease of pain....

>

> cynthia

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

Welcome . So glad you found us. Your story sounds very familiar. The

constant pain, the stiffness.... (a big one for me)... feeling like you are 100

years old. I know what you mean even though I dont have the rheumatoid

arthritis to go with the fibro. That must be a double whammy. OUCH.

Oh, and the " I think I must be crazy " .... I use to think that too. At first I

really thought I must be imagining the pain and everything because I could not

make sense of it. I am VERY LUCKY... I have a wonderful doctor who researches

fibromyalgia and believes me. He does not hesitate to write my pain med

prescription. I take Hydrocodone. It has helped me tremendously.

And the thing about others thinking we are " lazy " .... the disbelief..... Oh

how we can relate to this. So many of us face this everyday. It is so

emotionally painful to be dealing with a real physical illness that others

cannot see and don't want to believe. I think that is where this group comes to

my rescue. They all understand.

Welcome again,

hugs,

Debra V.

East Tx.

cj wrote:

afternoon everyone!

my name is cynthia. i am almost 43 y/o, live in western ny, have 6

children, am almost divorces and live in pain everyday of my life. i

have been like this for what seems like an eternity. i have been

diagnosised with rhymatoid arthiritis and now osteo as well. i have

type 2 diabetes and fall in the criteria and then some for fibro. it

runs in my family, about 5 of my cousins of various levels of being

related have been diagnosised. i see a rhymotologist and his n.p. is

my primary when i go there. i am on methotrexate 8 pills a week, as

well as many many many other meds for the pain and diabetes...i know

what i have. i know that for some reason the n.p doesn;t want to

diagnosis me with the fibro. i don;t know why. i can;t work

anymore, as i can;t stand, for long periods, or sit or even lay

down. i don;t sleep well, i have a hard time thinking, i hurt, am

stiffer then a body that has been dead for 100 years and it takes

forever to get the siffness out. i swell, my hands and my feet

alwasy seem to feel like they are balloons. my jaw hurts, feels

tight or like i am grinding my teeth, i get headaches...i feel like i

have the flu all the time. i ache, i hurt, i am tired, so bad that

getting up to take a shower is an effort. i am depressed as i can not

do the things i used to enjoy...crocheting, crafting, embroidery,

swimming ( although floating feels SO good )hiking, walking, riding

my bike, the last time i went dancing i made it to the floor did one

turn around and had to sit down, we wound up going home early due to

the pain, even shopping or lunch with my friends is too much strain

for me anymore.... chasing my kids around, whatever...i feel like i

am a 300 y/o woman trapped in a young woman's body. i don't

understand why i cna't get diagnosised and get started on the path of

healing or even just releiving the pain. i know, you probably have

all gone thru this...so tell me, how do you get a doctor to listen

and acknowledge these symptoms? how do you get someone to help you?

how do you feel just a little bit human? how do you manage to explain

to people you aren't lazy or trying to get out of stuff, that you are

sick...in pain....that you feel like your muscles are being pulled

into 18 different directions and the fire shots of pain you feel

aren't all in your head? am i crazy? have i lost my mind? did i

die and this is a form of hell for whatever transgression i may have

made? sigh...anyways, i hope to find friendship here and be able to

be honest and open with others in the same boat as me...so until

then, i hope you are all able to enjoy the evening and that your

weekend is full of love and ease of pain....

cynthia

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

see, that is what i have had done MORE then once and i have the swelling, and

the PAIN and the places i have it in are VDERY strong for it, she eveen told

methat, but in the same breath told me she didn't want to give me that

diagnosis...WHY NOT??? if i have it and my insurance will cover the meds ONLY

with the dx, then WHY NOT???? i have to see her on the 8th of feb...talked to

her yesterday...and all she did was up the methotrexate, the hydrocordisone, my

flexeril, and 2 others....also SAW my primary yesterday, who told me it was up

to the rhumitologist to call it in order for my insurance to cover any new meds

to treat the pain ( ie: lyrica - have been on nuerotin but am HIGHLY allergic to

it - basically the same meds only one won't make you feel like you're having a

heart attack ) so until then, i guess i'll wait and see. you know the worst

part is, i have been telling her for the past 4 years.....FOUR FLIPPEN

YEARS.....sigh....and they say women doctors are more apt

to listen to their famale patients....thanks for listening and have a great

day!

cynthia

Nd wrote:

i feel for you cj, just stand firm. my Rheumy did a

physical exam and did some pressure point testing and

I tested an 11 out of 18. in one exam she told me you

have fibro.

Diane

--- cj wrote:

> afternoon everyone!

>

> my name is cynthia. i am almost 43 y/o, live in

> western ny, have 6

> children, am almost divorces and live in pain

> everyday of my life. i

> have been like this for what seems like an eternity.

> i have been

> diagnosised with rhymatoid arthiritis and now osteo

> as well. i have

> type 2 diabetes and fall in the criteria and then

> some for fibro. it

> runs in my family, about 5 of my cousins of various

> levels of being

> related have been diagnosised. i see a

> rhymotologist and his n.p. is

> my primary when i go there. i am on methotrexate 8

> pills a week, as

> well as many many many other meds for the pain and

> diabetes...i know

> what i have. i know that for some reason the n.p

> doesn;t want to

> diagnosis me with the fibro. i don;t know why. i

> can;t work

> anymore, as i can;t stand, for long periods, or sit

> or even lay

> down. i don;t sleep well, i have a hard time

> thinking, i hurt, am

> stiffer then a body that has been dead for 100 years

> and it takes

> forever to get the siffness out. i swell, my hands

> and my feet

> alwasy seem to feel like they are balloons. my jaw

> hurts, feels

> tight or like i am grinding my teeth, i get

> headaches...i feel like i

> have the flu all the time. i ache, i hurt, i am

> tired, so bad that

> getting up to take a shower is an effort. i am

> depressed as i can not

> do the things i used to enjoy...crocheting,

> crafting, embroidery,

> swimming ( although floating feels SO good )hiking,

> walking, riding

> my bike, the last time i went dancing i made it to

> the floor did one

> turn around and had to sit down, we wound up going

> home early due to

> the pain, even shopping or lunch with my friends is

> too much strain

> for me anymore.... chasing my kids around,

> whatever...i feel like i

> am a 300 y/o woman trapped in a young woman's body.

> i don't

> understand why i cna't get diagnosised and get

> started on the path of

> healing or even just releiving the pain. i know,

> you probably have

> all gone thru this...so tell me, how do you get a

> doctor to listen

> and acknowledge these symptoms? how do you get

> someone to help you?

> how do you feel just a little bit human? how do you

> manage to explain

> to people you aren't lazy or trying to get out of

> stuff, that you are

> sick...in pain....that you feel like your muscles

> are being pulled

> into 18 different directions and the fire shots of

> pain you feel

> aren't all in your head? am i crazy? have i lost

> my mind? did i

> die and this is a form of hell for whatever

> transgression i may have

> made? sigh...anyways, i hope to find friendship

> here and be able to

> be honest and open with others in the same boat as

> me...so until

> then, i hope you are all able to enjoy the evening

> and that your

> weekend is full of love and ease of pain....

>

> cynthia

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

Welcome . So nice to have you with us. It seems to me you have

plenty to cause you pain even without the official FM diagnosis. If your RH

won't diagnose you, have you tried your PCP? Are you getting help for your

depression? You said you are on many pain meds, so there might not be

anything else they can give you for that. The two newest drugs for help

with FM are the anti-depressant, Cymbalta, and the new drug, Lyrica, which

you've probably seen commercials for. Lyrica might conflict with something

you're already taking. So it's important that you have a team of doctors

who will work together to treat you as whole person with all your

difficulties. If a doctor won't work with you, then you need to fire them

and find one that will. Again, welcome, I hope you find the support and

caring that you need here. It's a great group.

Jeanne in WI

> afternoon everyone!

>

> my name is cynthia. i am almost 43 y/o, live in western ny, have 6

> children, am almost divorces and live in pain everyday of my life. i have

> been like this for what seems like an eternity. i have been diagnosised

> with rhymatoid arthiritis and now osteo as well. i have type 2 diabetes

> and fall in the criteria and then some for fibro. it runs in my family,

> about 5 of my cousins of various levels of being related have been

> diagnosised. i see a rhymotologist and his n.p. is my primary when i go

> there. i am on methotrexate 8 pills a week, as well as many many many

> other meds for the pain and diabetes...i know what i have. i know that

> for some reason the n.p doesn;t want to diagnosis me with the fibro. i

> don;t know why. i can;t work anymore, as i can;t stand, for long periods,

> or sit or even lay down. i don;t sleep well, i have a hard time thinking,

> i hurt, am stiffer then a body that has been dead for 100 years and it

> takes forever to get the siffness out. i swell, my hands and my feet

alwasy seem to feel like they are balloons. my jaw hurts, feels tight or

like i am grinding my teeth, i get headaches...i feel like i have the flu

all the time. i ache, i hurt, i am tired, so bad that getting up to take a

shower is an effort. i am depressed as i can not do the things i used to

enjoy...crocheting, crafting, embroidery, swimming ( although floating feels

SO good )hiking, walking, riding

> my bike, the last time i went dancing i made it to the floor did one turn

> around and had to sit down, we wound up going home early due to the pain,

> even shopping or lunch with my friends is too much strain for me

> anymore.... chasing my kids around, whatever...i feel like i am a 300 y/o

> woman trapped in a young woman's body. i don't understand why i cna't get

> diagnosised and get started on the path of healing or even just releiving

> the pain. i know, you probably have all gone thru this...so tell me, how

> do you get a doctor to listen and acknowledge these symptoms? how do you

> get someone to help you? how do you feel just a little bit human? how do

> you manage to explain to people you aren't lazy or trying to get out of

> stuff, that you are

sick...in pain....that you feel like your muscles are being pulled into 18

different directions and the fire shots of pain you feel aren't all in your

head? am i crazy? have i lost my mind? did i die and this is a form of

hell for whatever transgression i may have made? sigh...anyways, i hope to

find friendship here and be able to be honest and open with others in the

same boat as me...so until then, i hope you are all able to enjoy the

evening and that your weekend is full of love and ease of pain....

>

> cynthia

[Guest guest]

Welcome ! I just joined myself not too long ago. I have

started posting and sharing and have been met by supportive and

encouraging messages.

Carmen

> afternoon everyone!

>

> my name is cynthia. i am almost 43 y/o, live in western ny, have 6

> children, am almost divorces and live in pain everyday of my life.

i

> have been like this for what seems like an eternity. i have been

> diagnosised with rhymatoid arthiritis and now osteo as well. i have

> type 2 diabetes and fall in the criteria and then some for fibro.

it

> runs in my family, about 5 of my cousins of various levels of being

> related have been diagnosised. i see a rhymotologist and his n.p.

is

> my primary when i go there. i am on methotrexate 8 pills a week, as

> well as many many many other meds for the pain and diabetes...i

know

> what i have. i know that for some reason the n.p doesn;t want to

> diagnosis me with the fibro. i don;t know why. i can;t work

> anymore, as i can;t stand, for long periods, or sit or even lay

> down. i don;t sleep well, i have a hard time thinking, i hurt, am

> stiffer then a body that has been dead for 100 years and it takes

> forever to get the siffness out. i swell, my hands and my feet

> alwasy seem to feel like they are balloons. my jaw hurts, feels

> tight or like i am grinding my teeth, i get headaches...i feel like

i

> have the flu all the time. i ache, i hurt, i am tired, so bad that

> getting up to take a shower is an effort. i am depressed as i can

not

> do the things i used to enjoy...crocheting, crafting, embroidery,

> swimming ( although floating feels SO good )hiking, walking, riding

> my bike, the last time i went dancing i made it to the floor did

one

> turn around and had to sit down, we wound up going home early due

to

> the pain, even shopping or lunch with my friends is too much strain

> for me anymore.... chasing my kids around, whatever...i feel like i

> am a 300 y/o woman trapped in a young woman's body. i don't

> understand why i cna't get diagnosised and get started on the path

of

> healing or even just releiving the pain. i know, you probably have

> all gone thru this...so tell me, how do you get a doctor to listen

> and acknowledge these symptoms? how do you get someone to help you?

> how do you feel just a little bit human? how do you manage to

explain

> to people you aren't lazy or trying to get out of stuff, that you

are

> sick...in pain....that you feel like your muscles are being pulled

> into 18 different directions and the fire shots of pain you feel

> aren't all in your head? am i crazy? have i lost my mind? did i

> die and this is a form of hell for whatever transgression i may

have

> made? sigh...anyways, i hope to find friendship here and be able to

> be honest and open with others in the same boat as me...so until

> then, i hope you are all able to enjoy the evening and that your

> weekend is full of love and ease of pain....

>

> cynthia

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>