Oh the theories of this disease..... what confusion

[Guest guest]

I have a doctor here in east Tx who is a great doctor. He believes me and the

rest of his fibro patients. I just don't know what to believe about the cause

of this stuff. He believes around here it is something with the water.....

something about heavy metal toxins, food allergies, hormones and chemical

imbalances. I have also read much about it being considered a central nervous

system disease. I have also read in the past about it being autoimmune. I have

heard of the theory of too much substance P in the spinal fluid that makes us

have our " pain volume " turned up. I have read about PTSD and the possible

links. Also the Serotonin and other neurotransmitters that are believed to be a

root cause.

How horribly confusing. I will be glad if they once and for all prove what

the face of this demon really is. Just too tired to care somedays. I will just

take my pain pills and move on I guess.

Maybe it has many different causes? What causes it in one of us may not be

the cause in someone else.

love and hugs,

Debra V.

---------------------------------

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[Guest guest]

I'm reading that book by Dr. Wallace that Angie recommended. He writes

about the Autonomic Nervous System, which if I understood correctly is a

subset of the CNS. The actual physiology and stuff kind of was over my

head, but he refers often to the ANS being the root cause of FM. And in

case someone needs the title of the book, is is " Fibromyalgia- An Essential

Guide for Patients and Their Families. " It was written in 2003, so already

a bit out of date, but still some helpful info. I haven't finished the book

yet. I also bought Fibromyalgia for Dummies to read after I finish with Dr.

Wallace's book.

Jeanne in WI

>I kind of agree with you and your docs Ruthie. I truly believe it is the

>central nervous system

> because just about every symptom of this can be traced to the affects of

> a whacked out nervous system. Now, it is possible though that their is

> some kind of toxin messing with the CNS. Or a chemical imbalance, or

> deficiency. etc.

> But I really think that is the newest and best theory of this damn thing.

> Thanks so much for being here for me. I don't know what I would do

> without all my cyber friends at this site.

> love ya for real,

> Debra V.

[Guest guest]

auto immune.

Re: Oh the theories of this disease..... what confusion

Your rheumy says Fibro is not neurological? (not that I know anything) So what

does he say it is then? I am thinking that nobody really knows anything! GRRR!

Ruthie

[Guest guest]

Auto-Immune eh? Yep, Heard that one too.

Ruthie NJ

[Guest guest]

> >

> > I'm reading that book by Dr. Wallace that Angie recommended. He

> writes

> > about the Autonomic Nervous System, which if I understood correctly

> is a

> > subset of the CNS. The actual physiology and stuff kind of was

> over my

> > head, but he refers often to the ANS being the root cause of FM.

> And in

> > case someone needs the title of the book, is is " Fibromyalgia- An

> Essential

> > Guide for Patients and Their Families. " It was written in 2003, so

> already

> > a bit out of date, but still some helpful info. I haven't finished

> the book

> > yet. I also bought Fibromyalgia for Dummies to read after I finish

> with Dr.

> > Wallace's book.

> > Jeanne in WI

> >

> >

> > >I kind of agree with you and your docs Ruthie. I truly believe it

> is the

> > >central nervous system

> > > because just about every symptom of this can be traced to the

> affects of

> > > a whacked out nervous system. Now, it is possible though that

> their is

> > > some kind of toxin messing with the CNS. Or a chemical

> imbalance, or

> > > deficiency. etc.

> > > But I really think that is the newest and best theory of this

> damn thing.

> > > Thanks so much for being here for me. I don't know what I would

> do

> > > without all my cyber friends at this site.

> > > love ya for real,

> > > Debra V.

> >

>My Orthopedic Dr. says that they are leanking fibro with d.d.d and

bulging disc, he read a study that 99.9% of people with fibro have

problems with their spine! my sister has fibro ,also has the ddd my

mother had fibro also had ddd, and now myself, so what is up with

that?!?!?!? Leanne

[Guest guest]

Meds do play a role in the brain fog, but I know there are fibromites who

aren't taking any meds and still get the fog. I've tried several drugs where

I couldn't stand the added brain fog, so had to discard them and try

something else. It's such a pain!

Jeanne in WI

>I strongly beleive a lot of this brain fog is meds affecting out bodies how

>many of us are on meds where confusion/ brain fog is part of the side

>effect list.

>