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In a message dated 10/21/2004 12:45:46 PM Eastern Standard Time,

starz@... writes:

> In the meantime,

> she's had a very unsightly place on her calf of her left leg that I've

> tried to get her to go to the dr about for years now when it first

> came up

i don't doubt this was from a skin disorder from hypo. That was one of my

worst problems. Hypo can cause all sorts of skin eruptions, boils, cysts, etc.

cindi

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First, thanks for the welcome!!

Okay, how do people self treat if Armour is an RX drug? Sorry I seem

so dumb..I had NO idea this drug was out there till I just read

Shomans Thyroid Diet book.

Thanks for the info re: the endo..I won't waste my time then. I see

a nurse practioner and she is really good and she does listen most

of the time BUT she is leaving the practice at the end of month :(

noelle

>

> Hi Noelle and welcome to the group. You will find we have many

> friendly and helpful folks here.

>

> Noelle, what you are experiencing is common for folks on T4-only

> meds. What you are getting is only a storage hormone. T4 is meant

to

> convert to the active T3--T3 gives you great energy, good health,

> hair that stays in, corrects that depression, raises the

metabolism,

> etc. But being only on T4 means you are not getting enough of a

> conversion of T3, and thus the problems.

>

> On Armour, you will get the entire gamut--T4, DIRECT T3, T2, T1

and

> calicitonin. It's a FAR superior treatment.

>

> Most docs are entirely ignorant about Armour. They haven't been

> trained about it. So you may have to insist in trying it, or find

> another doc who prescribes it. Many folks here even self-treat--

they

> couldn't find a doc who knew enough. Or, when they did find an

> Armour doc, the doc was too lab-reliant, and refused to give them

> ENOUGH to rid them of symptoms.

>

> FORGET an ENDO!! They are lousy. They are lab-obsessed and only

> prescribe T4 meds.

>

> Go into our FILES and read, read. Also check out the LINKS.

>

> Janie

>

> > Hi everyone! I was so glad to have found this group. I have been

> > hypo since I was 16. Usually I am fine but the past 2 years or

so I

> > have noticed I'm becoming more depressed, weight gain (and no

> matter

> > how much I exercise or diet no loss!), dry skin, fatigue (some

> > mornings I can barely move). I'm currently on 150mcg of Levoxyl.

I

> > was upped from 125mcg 3 mos ago. But I just don't feel " right " .

I'm

> > always " blurry " in my thoughts and I HATE feeling so tired. I am

> > wondering if you guys have any suggestions. I'm going to see my

GP

> > next week. I wanted to ask her about Armour instead of just

upping

> > my Levoxyl again. Also, do you guys think I should ask for a

> > referral to an endo instead of just seeing my GP? I just feel

like

> > she's going to poo-poo what I say (because I found it on the

> > internet or a book) and not take me seriously. But I know my body

> > and how I feel and I don't feel right.

> >

> > Thanks for the help in advance!!

> > noelle

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fortunately for the people who need armour but don't have doctors

who'll give it to them, it is available for not much money from

offshore online pharmacies. mainly in the uk and mexico.

baron

>

>

> First, thanks for the welcome!!

>

> Okay, how do people self treat if Armour is an RX drug? Sorry I seem

> so dumb..I had NO idea this drug was out there till I just read

> Shomans Thyroid Diet book.

>

> Thanks for the info re: the endo..I won't waste my time then. I see

> a nurse practioner and she is really good and she does listen most

> of the time BUT she is leaving the practice at the end of month :(

>

> noelle

>

>

>

>

>

>>

>> Hi Noelle and welcome to the group. You will find we have many

>> friendly and helpful folks here.

>>

>> Noelle, what you are experiencing is common for folks on T4-only

>> meds. What you are getting is only a storage hormone. T4 is meant

> to

>> convert to the active T3--T3 gives you great energy, good health,

>> hair that stays in, corrects that depression, raises the

> metabolism,

>> etc. But being only on T4 means you are not getting enough of a

>> conversion of T3, and thus the problems.

>>

>> On Armour, you will get the entire gamut--T4, DIRECT T3, T2, T1

> and

>> calicitonin. It's a FAR superior treatment.

>>

>> Most docs are entirely ignorant about Armour. They haven't been

>> trained about it. So you may have to insist in trying it, or find

>> another doc who prescribes it. Many folks here even self-treat--

> they

>> couldn't find a doc who knew enough. Or, when they did find an

>> Armour doc, the doc was too lab-reliant, and refused to give them

>> ENOUGH to rid them of symptoms.

>>

>> FORGET an ENDO!! They are lousy. They are lab-obsessed and only

>> prescribe T4 meds.

>>

>> Go into our FILES and read, read. Also check out the LINKS.

>>

>> Janie

>>

>>> Hi everyone! I was so glad to have found this group. I have been

>>> hypo since I was 16. Usually I am fine but the past 2 years or

> so I

>>> have noticed I'm becoming more depressed, weight gain (and no

>> matter

>>> how much I exercise or diet no loss!), dry skin, fatigue (some

>>> mornings I can barely move). I'm currently on 150mcg of Levoxyl.

> I

>>> was upped from 125mcg 3 mos ago. But I just don't feel " right " .

> I'm

>>> always " blurry " in my thoughts and I HATE feeling so tired. I am

>>> wondering if you guys have any suggestions. I'm going to see my

> GP

>>> next week. I wanted to ask her about Armour instead of just

> upping

>>> my Levoxyl again. Also, do you guys think I should ask for a

>>> referral to an endo instead of just seeing my GP? I just feel

> like

>>> she's going to poo-poo what I say (because I found it on the

>>> internet or a book) and not take me seriously. But I know my body

>>> and how I feel and I don't feel right.

>>>

>>> Thanks for the help in advance!!

>>> noelle

>

>

>

>

>

>

>

>

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  • 3 years later...

My name is annetta.I havea two children, both boys.My youngest son has

spastic diplegic CP and last week my oldest aged 10 was diagnosed with

fibromyalgia and chronic asthma.He also had blood work done to check

for Arthritis but we havent recieved the results yet.

All of this has me very afraid because he is so young.He says he hurts

several times a day, usually with shooting pains down the claf muscles

or chest pain or finger and wrist pain.He has pain in all areas at

certain times but the ones listed are the most common.but he says it is

tollerable.Anyway the doctor told me to limit his activites and change

his diet.What I odnt understand is can someone this young with it grow

up and have a normal life? Does it get worse over time? Can it be

disabling?And what do I need to do for him?Any help would be

appreciated.

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Welcome to the group. You will find alot of information and support here.

I am so sorry that a child that young has been diagnosed with this. Please

keep in mind it does not shorten our lives. It can limit us. All of us are

different in the progression and severity of the illness. He has a mother who

cares, a doctor who believes fibromyalgia exists.... that is a plus. Just

assure him you are there for him. I am sure the doctor will do everything he

can for this child to make his life as normal as possible. He may not get much

worse than he is now.....ever.....or for years. And bear in mind that research

is coming a long way.

I had symptoms in my 20's and it did not get bad until I was about 40. I am

43 now. I did not even know I was ill back in my 20's. The symptoms were very

mild at the time.

I know that just your understanding and love will make all the difference too.

Please keep us updated on the Arthritis thing.

Ask all the questions you want here. Write anytime. It is a large group but

a very compassionate one.

Debra v.

annetta wrote:

My name is annetta.I havea two children, both boys.My youngest son has

spastic diplegic CP and last week my oldest aged 10 was diagnosed with

fibromyalgia and chronic asthma.He also had blood work done to check

for Arthritis but we havent recieved the results yet.

All of this has me very afraid because he is so young.He says he hurts

several times a day, usually with shooting pains down the claf muscles

or chest pain or finger and wrist pain.He has pain in all areas at

certain times but the ones listed are the most common.but he says it is

tollerable.Anyway the doctor told me to limit his activites and change

his diet.What I odnt understand is can someone this young with it grow

up and have a normal life? Does it get worse over time? Can it be

disabling?And what do I need to do for him?Any help would be

appreciated.

---------------------------------

Never miss a thing. Make Yahoo your homepage.

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Annetta, I'm so sorry about your children. I have two myself, not as

young though, mine are teens. My oldest also has fibro. He is 17 and

has had symptoms since he was 12. I can say Nic live a pretty " normal "

teen life. He doesn't have any of the extra medical condition that

sometimes others with fibro have, well except for asthma and only

mild. We are sure blessed there. Nic is very outgoing in activities

at his school and even among " normal " kids is considered active. Nic

was told that staying active is best for him and so far he's doing

fine. (Why did the doctor tell you to limit his activities? Other

than contact sports Nic's doctor thinks the excise is good for him.

Nic is suppose to watch himself so he doesn't " overdo " but other than

that no limit.) Nic is growing up fine and has a bright future. I

think they are doing wonderful work on this illness as well. The

future is looking better for those young ones with this and I believe

they will find a better treatment if not a cure before long. Stay

strong for your kids!

Tammi

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Welcome Sherry. This is a great group for support and understanding. We do

know how you're feeling.

Jeanne in WI

> Hello all, I am new to all of this and just thought I would say hello to

> the group. I have been " diagnosed " with Fribro for about10 years now but

> had it for many years more. At this time I am dealing with one of the

> worst flare ups I have had in my life. I am trying to deal but it is nice

> to know there are others out that that KNOW what I am talking about etc

> when I say I just hurt..... Thank you for being there!

>

> Sherry

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Welcome Sherry. You found the right place. NO one understands fibro like we

do.

hugs,

Debra V.

Sherry Baker wrote:

Hello all, I am new to all of this and just thought I would say hello

to the group. I have been " diagnosed " with Fribro for about10 years now but had

it for many years more. At this time I am dealing with one of the worst flare

ups I have had in my life. I am trying to deal but it is nice to know there are

others out that that KNOW what I am talking about etc when I say I just

hurt..... Thank you for being there!

Sherry

---------------------------------

Never miss a thing. Make Yahoo your homepage.

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Thank you, My Fiance tries, but until you have it you dont and cant really

understand what is going on with me. I so very much appreciate the welcomes!

---------------------------------

Never miss a thing. Make Yahoo your homepage.

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I'm sorry to be so far behind, am on no mail temporarily. The

statistics for children with FM are that 90% of boys dx'd with it

will 'outgrow' it by puberty or soon after. Girls have it worse,

there is a 50-50 chance or more that they will NOT outgrow it at any

time. It is NOT an 'equal opportunity' condition.

Peace and Love

Caroline

> My name is annetta.I havea two children, both boys.My youngest son

has

> spastic diplegic CP and last week my oldest aged 10 was diagnosed

with

> fibromyalgia and chronic asthma.He also had blood work done to

check

> for Arthritis but we havent recieved the results yet.

> All of this has me very afraid because he is so young.He says he

hurts

> several times a day, usually with shooting pains down the claf

muscles

> or chest pain or finger and wrist pain.He has pain in all areas at

> certain times but the ones listed are the most common.but he says

it is

> tollerable.Anyway the doctor told me to limit his activites and

change

> his diet.What I odnt understand is can someone this young with it

grow

> up and have a normal life? Does it get worse over time? Can it be

> disabling?And what do I need to do for him?Any help would be

> appreciated.

>

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