Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Thanks so much for understanding. I've been having a real rough time lately. At least today I have a little more energy, but lots of pain. I didn't get much snow here because I'm close to the coast. We got lots of rain and ice with some snow. In some ways I wish I would get diagnosis of Lupus because maybe some other medicine will help me. I'm so sorry you have pneumonia. What is sarcoidosis? What a great son in law to make you homemade chicken soup. That's great. It's great that you have people that check on you. I call my brother and I try to tell him how I'm doing. I just talked to him and he said that I sounded better. I think I'm doing a little better. got a bit more energy. That sucks that the toilet broke. I can imagine that it is very difficult going up and down the stairs. I can imagine how energy consuming it must be to have to do the stairs. It I was me, I'd end up making a mess. When I have to go, I have to go NOW! I hope you fee better too. I feel like I've gone backwards, but I know it's just a blip in the road. I'm going to get sick every now and then and I have to get used to it. I have to go up and down the basement steps in order to do laundry. Because I have a sneaky diarrhea problem, I never would make it upstairs. I hope you start feeling better well too. We'll make sure to keep going in. We have to. I've felt lately that I was going backwards, but in reality I really do have been going forward. The ladies at the knitting club said I could go and crochet because I really don't like knitting all that much. It's too slow and I really can do crochet. Even the ladies that do the quilting meeting said it was ok to do my crochet. That's good because I'm doing something I like and I'm out of the house and with people. Thanks. I really hope things start getting better. You have no idea how much I appreciate your good thoughts. Make sure you take care of yourself too. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of Marti Boguski Sent: Monday, January 14, 2008 9:42 AM To: Fibromyalgia_Support_Group Subject: Re: Hi Tigger, I was off for a while too because I've been sick. I've missed you. I'm sorry that you have been having such a tough time. Does the upped thyroid med help you have more energy? When my thyroid was changed I had more energy and lost a lot of weight - that was years ago. I've been tested for Lupus many times over the years. I always seem to have all the symptoms, but it ends up being ruled out. I hop you don't have Lupus. And I hope you feel better soon. What a storm we had. I don't know how much snow you got in RI, but in CT we have so far had 15 inches and yes the wind is blowing. I'm gonna be inside for a while and I'm cold now. I have pneumonia complicated by my sarcoidosis and I'm trying to stay out of the hospital. I'm is an on going battle with my doctor over it. I have people who look in on me and call me. My son in law made me some homemade chicken soup yesterday and it's great - good medicine too. I'm trying to be as careful as I can be - would love to trade in the stairs though. My toilet broke downstairs and now I have to go upstairs just to go. Really energy consuming. Please feel better. You're going forward and it will get better. Take care of yourself, Marti Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com> @gmail.com> wrote: Hi, I just wanted everyone to know that I've been offline lately because I haven't been feeling well. My doctor upped my thyroid medication and in February I see a new rheumatologist because they think I have Lupus. Hey, it's always something. In the meantime I'm spending a lot less time on the computer because. well, because I don't have the energy. I hope to start feeling better again soon. Right now I feel like I've gone backwards in my life. I feel as bad as I did early last summer. Oh, and it doesn't help that we are expecting a N'or Easter tomorrow which means lots of snow and lots of wind. Just wanted to let you all know I'm still alive. Tigger (Ruth) in Rhode Island Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Tigger, that diarrhea problem hit me while we were in the midwest during the holidays. I have attributed it to the fact that I had started on the 2 a day Chantix pills for smoking cessation the night before --- spent the entire day in bed --- that was Christmas eve and since we were in a rural area, there was no place to go on Christmas day, so we had take out from Red Lobster on Christmas eve that dh got. I haven't started back on the Chantix, partly because I can't find the box, but after talking to two people at Pfzier, I am going to try again --- would really like to stop this habit. Hope you and Marti get to feeling better! We are getting snow here in Pittsburgh --- we keep getting some periodically but it never seems to stay long, thank goodness! Tigger, I am glad the ladies will let you join them and that you can crochet --- I guess when we move, I might find something like that --- I can do only basic stitches in either knitting and crochet -- and my one sister says I " knit backwards " --- if she would pay attention when I tie my shoes, she would realize I do most things of that nature backwards. But talking about knitting and crocheting reminds me that I have a scarf I have been working on for 2 years for nephew. > > Thanks so much for understanding. I've been having a real rough time lately. > At least today I have a little more energy, but lots of pain. > > > I have to go up and down the basement steps in order > to do laundry. Because I have a sneaky diarrhea problem, I never would make > it upstairs. > > > > > The ladies at the knitting club said I could go and crochet because I really > don't like knitting all that much. It's too slow and I really can do > crochet. Even the ladies that do the quilting meeting said it was ok to do > my crochet. That's good because I'm doing something I like and I'm out of > the house and with people. > And, Marti, I hope you get over that pneumonia soon, I can relate to how painful that can be, even though I have not had it in a number of years. Hope you both feel better soon --- and also that the snow stops falling in New England, although from what I have seen on the news, it doesn't look so promising. > > > Thanks. I really hope things start getting better. You have no idea how > much I appreciate your good thoughts. > > > > Make sure you take care of yourself too. > > > > Tigger (Ruth) in Rhode Island > > > > > > _____ > > > What a storm we had. I don't know how much snow you got in RI, but in CT we > have so far had 15 inches and yes the wind is blowing. I'm gonna be inside > for a while and I'm cold now. > I have pneumonia complicated by my sarcoidosis and I'm trying to stay out of > the hospital Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Hi Tigger, I so sorry your having such a rough time. I think its good though that you are getting out to do your crocheting with the two groups of women. Contact with real people, as opposed to the internet which is also good, is so good for us. I know I always feel better when I've spent time with someone and laughed and talked. Getting a hug is always nice too. I tend to withdraw and isolate myself even more than I already am when I'm not doing well. Since I've had pneumonia I had even stopped posting to the group and lost touch with everyone and realized how that made me feel worse. So even though it takes a lot of energy to sit at the desk I'm getting back into corresponding. Reaching out is good; I just have a hard time doing it. I live alone and my kids and friends are more attentive when I'm " actually sick " as opposed to just having fibro. That they just don't get. That is when my friends don't come by or make plans with me because they don't understand and when my daughter asks me to baby sit for her 3 kids. Joe, my son in law, is married to my daughter Andi 34 and they have 3 boys Jack 6, Brady 3, and Aidan 9 mons. I was surprised that Joe took the time to get all the ingredients ready to make me the soup, but was really happy.Joe is a great cook. They are so busy with the kids, and they both work, with Joe working on Saturdays. Andi brought Brady and drove the 40 min up here to bring me the soup. She did a few things for me, including fixing the toilet. YAY! She is a lot like I was at her age; could do anything. She also took a tall shelf from the garage and put it downstairs next to my laundry room and put the things on it I wanted. I have to go downstairs to do laundry too so it mostly piles up, along with everything else. I have explosive IBS also so I know what you mean about being far from a toilet. I have to give thought to how my stomach is doing before I to down there or I might not make it. Sarcoidosis is an autoimmune disease (another invisible illness). It causes inflammation in various organs in the body and it usually starts in the lungs. The inflammation is caused by problem cells called granulomas that destroy the good cells. In the lungs it can lead to pulmonary fibrosis. I also have it in my eyes where it has caused a lot of problems and in my bone marrow and some other places. I know how a slump and lots of pain can make you feel like you are going backyards, but I think it's the flare up and depression and frustration that makes us feel that way. It seems like it ought to get better instead of either continuing to be bad or getting worse. I hope you are feeling better really soon. I know what a downer it can be. I'll keep you in my prayers. Be sure and let me know about the Lupus. Take care of yourself, Marti Tigger wrote: Thanks so much for understanding. I've been having a real rough time lately. At least today I have a little more energy, but lots of pain. I didn't get much snow here because I'm close to the coast. We got lots of rain and ice with some snow. In some ways I wish I would get diagnosis of Lupus because maybe some other medicine will help me. I'm so sorry you have pneumonia. What is sarcoidosis? What a great son in law to make you homemade chicken soup. That's great. It's great that you have people that check on you. I call my brother and I try to tell him how I'm doing. I just talked to him and he said that I sounded better. I think I'm doing a little better. got a bit more energy. That sucks that the toilet broke. I can imagine that it is very difficult going up and down the stairs. I can imagine how energy consuming it must be to have to do the stairs. It I was me, I'd end up making a mess. When I have to go, I have to go NOW! I hope you fee better too. I feel like I've gone backwards, but I know it's just a blip in the road. I'm going to get sick every now and then and I have to get used to it. I have to go up and down the basement steps in order to do laundry. Because I have a sneaky diarrhea problem, I never would make it upstairs. I hope you start feeling better well too. We'll make sure to keep going in. We have to. I've felt lately that I was going backwards, but in reality I really do have been going forward. The ladies at the knitting club said I could go and crochet because I really don't like knitting all that much. It's too slow and I really can do crochet. Even the ladies that do the quilting meeting said it was ok to do my crochet. That's good because I'm doing something I like and I'm out of the house and with people. Thanks. I really hope things start getting better. You have no idea how much I appreciate your good thoughts. Make sure you take care of yourself too. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of Marti Boguski Sent: Monday, January 14, 2008 9:42 AM To: Fibromyalgia_Support_Group Subject: Re: Hi Tigger, I was off for a while too because I've been sick. I've missed you. I'm sorry that you have been having such a tough time. Does the upped thyroid med help you have more energy? When my thyroid was changed I had more energy and lost a lot of weight - that was years ago. I've been tested for Lupus many times over the years. I always seem to have all the symptoms, but it ends up being ruled out. I hop you don't have Lupus. And I hope you feel better soon. What a storm we had. I don't know how much snow you got in RI, but in CT we have so far had 15 inches and yes the wind is blowing. I'm gonna be inside for a while and I'm cold now. I have pneumonia complicated by my sarcoidosis and I'm trying to stay out of the hospital. I'm is an on going battle with my doctor over it. I have people who look in on me and call me. My son in law made me some homemade chicken soup yesterday and it's great - good medicine too. I'm trying to be as careful as I can be - would love to trade in the stairs though. My toilet broke downstairs and now I have to go upstairs just to go. Really energy consuming. Please feel better. You're going forward and it will get better. Take care of yourself, Marti Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com> @gmail.com> wrote: Hi, I just wanted everyone to know that I've been offline lately because I haven't been feeling well. My doctor upped my thyroid medication and in February I see a new rheumatologist because they think I have Lupus. Hey, it's always something. In the meantime I'm spending a lot less time on the computer because. well, because I don't have the energy. I hope to start feeling better again soon. Right now I feel like I've gone backwards in my life. I feel as bad as I did early last summer. Oh, and it doesn't help that we are expecting a N'or Easter tomorrow which means lots of snow and lots of wind. Just wanted to let you all know I'm still alive. Tigger (Ruth) in Rhode Island Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Thank you. I'm glad you explained what the sarcoidosis is. That sounds awful. I just took a nice hot bath to try and calm things down. I'm hurting in so many places I never hurt before. For a " syndrome " that is not suppose to progress than I sure would like to know why it does. You definitely hit on something with me. I feeling that over time we should be getting better, so when you start to feel worse it just makes me angry and depressed. But isn't that what we are always told. give it time, and it will be better. I'm a fighter, and no matter how much I fight this it fights back harder. I'll keep you posted. Where's Judy? Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of Marti Boguski Sent: Monday, January 14, 2008 2:07 PM To: Fibromyalgia_Support_Group Subject: RE: Marti Hi Tigger, I so sorry your having such a rough time. I think its good though that you are getting out to do your crocheting with the two groups of women. Contact with real people, as opposed to the internet which is also good, is so good for us. I know I always feel better when I've spent time with someone and laughed and talked. Getting a hug is always nice too. I tend to withdraw and isolate myself even more than I already am when I'm not doing well. Since I've had pneumonia I had even stopped posting to the group and lost touch with everyone and realized how that made me feel worse. So even though it takes a lot of energy to sit at the desk I'm getting back into corresponding. Reaching out is good; I just have a hard time doing it. I live alone and my kids and friends are more attentive when I'm " actually sick " as opposed to just having fibro. That they just don't get. That is when my friends don't come by or make plans with me because they don't understand and when my daughter asks me to baby sit for her 3 kids. Joe, my son in law, is married to my daughter Andi 34 and they have 3 boys Jack 6, Brady 3, and Aidan 9 mons. I was surprised that Joe took the time to get all the ingredients ready to make me the soup, but was really happy.Joe is a great cook. They are so busy with the kids, and they both work, with Joe working on Saturdays. Andi brought Brady and drove the 40 min up here to bring me the soup. She did a few things for me, including fixing the toilet. YAY! She is a lot like I was at her age; could do anything. She also took a tall shelf from the garage and put it downstairs next to my laundry room and put the things on it I wanted. I have to go downstairs to do laundry too so it mostly piles up, along with everything else. I have explosive IBS also so I know what you mean about being far from a toilet. I have to give thought to how my stomach is doing before I to down there or I might not make it. Sarcoidosis is an autoimmune disease (another invisible illness). It causes inflammation in various organs in the body and it usually starts in the lungs. The inflammation is caused by problem cells called granulomas that destroy the good cells. In the lungs it can lead to pulmonary fibrosis. I also have it in my eyes where it has caused a lot of problems and in my bone marrow and some other places. I know how a slump and lots of pain can make you feel like you are going backyards, but I think it's the flare up and depression and frustration that makes us feel that way. It seems like it ought to get better instead of either continuing to be bad or getting worse. I hope you are feeling better really soon. I know what a downer it can be. I'll keep you in my prayers. Be sure and let me know about the Lupus. Take care of yourself, Marti Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com> @gmail.com> wrote: Thanks so much for understanding. I've been having a real rough time lately. At least today I have a little more energy, but lots of pain. I didn't get much snow here because I'm close to the coast. We got lots of rain and ice with some snow. In some ways I wish I would get diagnosis of Lupus because maybe some other medicine will help me. I'm so sorry you have pneumonia. What is sarcoidosis? What a great son in law to make you homemade chicken soup. That's great. It's great that you have people that check on you. I call my brother and I try to tell him how I'm doing. I just talked to him and he said that I sounded better. I think I'm doing a little better. got a bit more energy. That sucks that the toilet broke. I can imagine that it is very difficult going up and down the stairs. I can imagine how energy consuming it must be to have to do the stairs. It I was me, I'd end up making a mess. When I have to go, I have to go NOW! I hope you fee better too. I feel like I've gone backwards, but I know it's just a blip in the road. I'm going to get sick every now and then and I have to get used to it. I have to go up and down the basement steps in order to do laundry. Because I have a sneaky diarrhea problem, I never would make it upstairs. I hope you start feeling better well too. We'll make sure to keep going in. We have to. I've felt lately that I was going backwards, but in reality I really do have been going forward. The ladies at the knitting club said I could go and crochet because I really don't like knitting all that much. It's too slow and I really can do crochet. Even the ladies that do the quilting meeting said it was ok to do my crochet. That's good because I'm doing something I like and I'm out of the house and with people. Thanks. I really hope things start getting better. You have no idea how much I appreciate your good thoughts. Make sure you take care of yourself too. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com> Support_Group [mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com> Support_Group ] On Behalf Of Marti Boguski Sent: Monday, January 14, 2008 9:42 AM To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com> Support_Group Subject: Re: Hi Tigger, I was off for a while too because I've been sick. I've missed you. I'm sorry that you have been having such a tough time. Does the upped thyroid med help you have more energy? When my thyroid was changed I had more energy and lost a lot of weight - that was years ago. I've been tested for Lupus many times over the years. I always seem to have all the symptoms, but it ends up being ruled out. I hop you don't have Lupus. And I hope you feel better soon. What a storm we had. I don't know how much snow you got in RI, but in CT we have so far had 15 inches and yes the wind is blowing. I'm gonna be inside for a while and I'm cold now. I have pneumonia complicated by my sarcoidosis and I'm trying to stay out of the hospital. I'm is an on going battle with my doctor over it. I have people who look in on me and call me. My son in law made me some homemade chicken soup yesterday and it's great - good medicine too. I'm trying to be as careful as I can be - would love to trade in the stairs though. My toilet broke downstairs and now I have to go upstairs just to go. Really energy consuming. Please feel better. You're going forward and it will get better. Take care of yourself, Marti Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com> @gmail.com> wrote: Hi, I just wanted everyone to know that I've been offline lately because I haven't been feeling well. My doctor upped my thyroid medication and in February I see a new rheumatologist because they think I have Lupus. Hey, it's always something. In the meantime I'm spending a lot less time on the computer because. well, because I don't have the energy. I hope to start feeling better again soon. Right now I feel like I've gone backwards in my life. I feel as bad as I did early last summer. Oh, and it doesn't help that we are expecting a N'or Easter tomorrow which means lots of snow and lots of wind. Just wanted to let you all know I'm still alive. Tigger (Ruth) in Rhode Island Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hi Tigger, My fibro has definitely progressed over the years. It's taken away things in my life one by one, not all at once. I'm a fighter too. But this damn disease wins a lot of the time. I get to where I just can't stand the pain any longer. And with all the talk about getting taxes done, I feel stupid. I look at what needs to be done and it's seems like it should be so easy. I keep pretty good records. But with the brain fog, I look at the pile of stuff and just want to cry because I can't figure out what to do with it all. I have a business that I run from home which has become very small now, but getting those expenses together seems monumental. I use to have a deduction for a home office, but now I don't use the space just for that because I've had to cut back so much. I'm rambling. I have a hard time being gracious when someone says things like " you must be better, you sound so much better today " over the phone, when I'm just trying not to sound so pathetic. Or " you are looking so much better, you must be over your little cold by now " or something to that effect. It chaps my butt, but I try to be nice, unless it's my family who should know better and then I'm not so nice. I've had this since 1989 and they ought to be used to it by now. I've given them all the articles and things over the years and tried to explain it to them but they just don't get it. The Spoon Story that I told someone about is a good one to help explain what is going on with us and I haven't tried that yet, but did print it to read with them. Can't just send it to them or give it to them, I'm sure it wouldn't have any effect at all. Rambling again. I don't know where Judy is. I hope she's back soon and not unhappy about the religion thing. I miss her too. Your take care, Marti Tigger wrote: Thank you. I'm glad you explained what the sarcoidosis is. That sounds awful. I just took a nice hot bath to try and calm things down. I'm hurting in so many places I never hurt before. For a " syndrome " that is not suppose to progress than I sure would like to know why it does. You definitely hit on something with me. I feeling that over time we should be getting better, so when you start to feel worse it just makes me angry and depressed. But isn't that what we are always told. give it time, and it will be better. I'm a fighter, and no matter how much I fight this it fights back harder. I'll keep you posted. Where's Judy? Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of Marti Boguski Sent: Monday, January 14, 2008 2:07 PM To: Fibromyalgia_Support_Group Subject: RE: Marti Hi Tigger, I so sorry your having such a rough time. I think its good though that you are getting out to do your crocheting with the two groups of women. Contact with real people, as opposed to the internet which is also good, is so good for us. I know I always feel better when I've spent time with someone and laughed and talked. Getting a hug is always nice too. I tend to withdraw and isolate myself even more than I already am when I'm not doing well. Since I've had pneumonia I had even stopped posting to the group and lost touch with everyone and realized how that made me feel worse. So even though it takes a lot of energy to sit at the desk I'm getting back into corresponding. Reaching out is good; I just have a hard time doing it. I live alone and my kids and friends are more attentive when I'm " actually sick " as opposed to just having fibro. That they just don't get. That is when my friends don't come by or make plans with me because they don't understand and when my daughter asks me to baby sit for her 3 kids. Joe, my son in law, is married to my daughter Andi 34 and they have 3 boys Jack 6, Brady 3, and Aidan 9 mons. I was surprised that Joe took the time to get all the ingredients ready to make me the soup, but was really happy.Joe is a great cook. They are so busy with the kids, and they both work, with Joe working on Saturdays. Andi brought Brady and drove the 40 min up here to bring me the soup. She did a few things for me, including fixing the toilet. YAY! She is a lot like I was at her age; could do anything. She also took a tall shelf from the garage and put it downstairs next to my laundry room and put the things on it I wanted. I have to go downstairs to do laundry too so it mostly piles up, along with everything else. I have explosive IBS also so I know what you mean about being far from a toilet. I have to give thought to how my stomach is doing before I to down there or I might not make it. Sarcoidosis is an autoimmune disease (another invisible illness). It causes inflammation in various organs in the body and it usually starts in the lungs. The inflammation is caused by problem cells called granulomas that destroy the good cells. In the lungs it can lead to pulmonary fibrosis. I also have it in my eyes where it has caused a lot of problems and in my bone marrow and some other places. I know how a slump and lots of pain can make you feel like you are going backyards, but I think it's the flare up and depression and frustration that makes us feel that way. It seems like it ought to get better instead of either continuing to be bad or getting worse. I hope you are feeling better really soon. I know what a downer it can be. I'll keep you in my prayers. Be sure and let me know about the Lupus. Take care of yourself, Marti Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com> @gmail.com> wrote: Thanks so much for understanding. I've been having a real rough time lately. At least today I have a little more energy, but lots of pain. I didn't get much snow here because I'm close to the coast. We got lots of rain and ice with some snow. In some ways I wish I would get diagnosis of Lupus because maybe some other medicine will help me. I'm so sorry you have pneumonia. What is sarcoidosis? What a great son in law to make you homemade chicken soup. That's great. It's great that you have people that check on you. I call my brother and I try to tell him how I'm doing. I just talked to him and he said that I sounded better. I think I'm doing a little better. got a bit more energy. That sucks that the toilet broke. I can imagine that it is very difficult going up and down the stairs. I can imagine how energy consuming it must be to have to do the stairs. It I was me, I'd end up making a mess. When I have to go, I have to go NOW! I hope you fee better too. I feel like I've gone backwards, but I know it's just a blip in the road. I'm going to get sick every now and then and I have to get used to it. I have to go up and down the basement steps in order to do laundry. Because I have a sneaky diarrhea problem, I never would make it upstairs. I hope you start feeling better well too. We'll make sure to keep going in. We have to. I've felt lately that I was going backwards, but in reality I really do have been going forward. The ladies at the knitting club said I could go and crochet because I really don't like knitting all that much. It's too slow and I really can do crochet. Even the ladies that do the quilting meeting said it was ok to do my crochet. That's good because I'm doing something I like and I'm out of the house and with people. Thanks. I really hope things start getting better. You have no idea how much I appreciate your good thoughts. Make sure you take care of yourself too. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com> Support_Group [mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com> Support_Group ] On Behalf Of Marti Boguski Sent: Monday, January 14, 2008 9:42 AM To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com> Support_Group Subject: Re: Hi Tigger, I was off for a while too because I've been sick. I've missed you. I'm sorry that you have been having such a tough time. Does the upped thyroid med help you have more energy? When my thyroid was changed I had more energy and lost a lot of weight - that was years ago. I've been tested for Lupus many times over the years. I always seem to have all the symptoms, but it ends up being ruled out. I hop you don't have Lupus. And I hope you feel better soon. What a storm we had. I don't know how much snow you got in RI, but in CT we have so far had 15 inches and yes the wind is blowing. I'm gonna be inside for a while and I'm cold now. I have pneumonia complicated by my sarcoidosis and I'm trying to stay out of the hospital. I'm is an on going battle with my doctor over it. I have people who look in on me and call me. My son in law made me some homemade chicken soup yesterday and it's great - good medicine too. I'm trying to be as careful as I can be - would love to trade in the stairs though. My toilet broke downstairs and now I have to go upstairs just to go. Really energy consuming. Please feel better. You're going forward and it will get better. Take care of yourself, Marti Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com> @gmail.com> wrote: Hi, I just wanted everyone to know that I've been offline lately because I haven't been feeling well. My doctor upped my thyroid medication and in February I see a new rheumatologist because they think I have Lupus. Hey, it's always something. In the meantime I'm spending a lot less time on the computer because. well, because I don't have the energy. I hope to start feeling better again soon. Right now I feel like I've gone backwards in my life. I feel as bad as I did early last summer. Oh, and it doesn't help that we are expecting a N'or Easter tomorrow which means lots of snow and lots of wind. Just wanted to let you all know I'm still alive. Tigger (Ruth) in Rhode Island Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hey Tigger, Here I am! Last night I wrote Mermie a LONGGGGGG email telling her what's been going on. I'm waiting for my black cloud of doom to blow away. It seems that anything and everything has been happening has not been good. Between the death of my brother in law to the and life threatening illness of my 2 uncles to another with alschimers. Now my niece has pnuemonia and is in critical condition on a resparator and dyalisis and in a medically induced coma. They believe she will make it but with lupus it is going to be a long road. Financially we are struggling and I'm going to call and see if I can get any assistaance. Oh and my daughter brought home the bug her friends had. So far I had it for more than a week. I missed that beautiful weather lastweek. I also have had a few more dx and rx to my lists. The dr called after my bloodwork and apoligised about putting me on more meds. I still don't have my court date but I will call the lawyer tomarrow(I hope) and see if he knows. I have been having problems getting cold and unable to warm up for hours. The holidays were exhausting but at least I was able to see most of my grandchildren and niecesand nephews and some of my great neices and great nephews. How did you do with the storm? It wasn't too bad here. I hope the storm on Friday is rain. I've been needing my vicodin with the pain. I'm still dreaming of my pool,hot tub and walk in bathtub. I know I have a theme...hot water. Speaking of hot water I can't wait to go on another cruise to the warm carribian. It will be our belated honeymoon after my husband retires later this year or next year. I hope I have my ssdi by then. My computer was off for a few weeks and then I had to get it runing after the internet was put back on. I'll talk to you again later. JudyMer > I'll keep you posted. Where's Judy? > > > > Tigger (Ruth) in Rhode Island Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 I also have had a few more dx and rx to my lists. The dr called after my bloodwork and apoligised about putting me on more meds.....I have been having problems getting cold and unable to warm up for hours. JudyMer JudyMer: I am very curious about the new dx, since I am having similar problems. w/hot & cold issues. They drew blood at my last dr. appt, but no word yet. Thank you, Cheryl M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 > > Hey Tigger, > Here I am! > Last night I wrote Mermie a LONGGGGGG email telling her what's been going on. I'm waiting for my black cloud of doom to blow \later. > JudyMer > Judy, I hope that cloud goes away soon! That is a lot to have going on! I thought I was struggling with the lost of my aunt, the anger at her husband and then the call yesterday from my life long friend that she is at end stage cancer. I will say that was the saddest call I think I have ever had -- but wish I had it on tape, but I am also grateful that she called me herself so that if or when her husband should send an email (she had given him lists of email contacts and also those she wrote to so that he would let everyone know), his message won't be such a shock! I hope that you get your SSDI soon! I get so embarrassed that mine was awarded the first time out, especially when I read how long other people have fought for it! Makes me made, so many of us have worked long and hard and even gone to work when we had more pain that most of our co-workers but when it comes time to get the SSDI, we have to fight tooth and nail! Glad you have an attorney, from what I have heard, they seem to help --- and to anyone else who might read this, remember that Allsup usually has an ad at the bottom of this site -- they are the group I used from the start. Quote Link to comment Share on other sites More sharing options...
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