Re: A question re: treatment

[Guest guest]

Sue:

I agree, it's typically included under Rheumatology, but we have none

locally, so my primary treats me and I ocassionally go to Seattle to

see the Rheumy. If anyone is close enough to Portland, OR, you should

try the OHSU Hosp up on the hill. There is a chronic pain clinic that

I think may be related to OHSU. I was told about it by my FNP at the

homeless clinic here who wanted to treat me with methadone in 2005 and

had one of their FM questionnaires. I think I saw on the internet that

there is also a place in Chicago that " specializes " in FM -- or it

could have been someplace else east of the Mississippi!

You also mentioned how much of your pain is in your hands and feet.

That is also psoriatic arthritis' favorite attack sites as well.

When I started looking for support groups online a short while back, I

signed up for both this one and p/pa -- members of this FM list might

be interested to know that there are quite a number of folks on the

p/pa list who (like myself), have psoraisis/psoriatic arthritis, along

with FM & IBS.

Cheryl M.

> Sue, I don't think there is an easy answer to this unfortunately.

Most people here see rheumatologits. Some of these docs help them

alot, some don't. I think it depends on the doctor. My family practice

doctor takes care of my fibro. Of course he is one of the few that

understand fibro and believe in prescribing pain meds for it. I am

just totally blessed to have found him.

> If I were you I would call doctor offices and ask them about

fibromyalgia and do they treat it. I would also try to find out HOW

they treat it. Some of the doctors are really fruitcakes with their

methods. Alot of them don't realize that this kind of pain " really is

that bad " and it is " real " and that alot of us need narcotic pain meds.

> Good luck sweetie,

> Debra V.

>

> bajabird5@... wrote:

> Hi all,

> I joined this group some time ago but just recently decided that I

really

> need to figure out what is going on with me. I've had pain everyday

for the past

> 2+ years. It came on about the same time as my RLS/PLMD came on. I

thought the

> pain was because of the RLS, but my neuro says that it is not. I've

been on

> Tramadol during the day, which worked up until 3 months ago. Since

then I just

> cannot get much relief. To me it feels like a bone pain...mostly in

my feet,

> ankles, legs, hips and hands.

>

> My question: What kind of a doctor specializes in Fibro? Who should

I see for

> a diagnosis? Can anyone recommend a doctor in the Phoenix area?

>

> Thanks!

>

> Sue

>