Re: ~~~Update~~~ with a follow up question thrown in

[Guest guest]

I know it's so hard to live without RX meds if you've been on them

for ages, especially with the pain. I personally haven't been " truly

diagnosed " so I am doing all my pain management OTC, which isn't

easy, because I can't use the same pain medication three times a day,

it stops working after twice, so I alternate every six hours or so.

Last night was so bad I had to use one I almost never use because it

knocks me out. It's called Genasec, and ONE PILL can knock me out.

The bane of being tiny, let me tell you.

I have a question for everyone. I know that size can cause as many

difficulties as it solves. I am, and pretty much have always been

little. When I say little, I mean, 100 lbs. 5'1 " tall, still called

little girl, little. I also have nearly no meat on my bones, in fact,

have lost quite a bit of that over the past several years. Is this a

consequence of the beast we live with and its many cousins?

I suffer allergies, which can cause asthmatic conditions as a result.

I am not on asthma or other medications because I have also had

problems just affording medical care. I haven't had insurance in

years, because we're just too tight budget wise to manage affording

it. Free clinics only go so far, and won't do as much as they did in

the old days. Doctors don't barter, they want money. If they lived

like I do, they'd wonder how I ever manage to find a pair of matching

socks every day for anyone in the household, clothes that fit any one

of my four prairie weeds for legs children, they grow so fast. You

can't get disability without doctors and you can't get to a doctor

without insurance or actual cash. I'd love to find a tree that grows

money, it would sure help those of us sitting between rocks and hard

places.

PS , I am very glad that your new cat is helping even in its

small way. Having my dogs does the same for me. If I wasn't allergic

to cats I'd probably have as many cats as I do dogs. We take care of

a stray cat outside, because I can't have her inside. She adopted us

because her family abandoned her. Just having the dogs here helps so

much, they are so calming for me. I have a Pomeranian and a

Pomeranian mix.

>

>

> Hi Friends ! ! ! Just wana let you know though I've had some bad

days there have parts of the days that have been meaningful to me.

Three days working around the house results in two days spent in bed

on a heating pad w/blue ice. I've accomplished several things. I've

refused to just do nothing as that would be to simply giving in.

>

> New Kitty cat has been a blessing, she greets me 1st thing in the

morning waiting for her 1st can of food so to her I'm #1. The comfort

she has to offer has been great. Her name is Snoopy as she is getting

into evrything around the house but that's is ok.

>

> Learning to live w/out RX pain meds has been difficult but I AM

managing fairly well. I decided not to allow the pain stop me. I pace

myself in evry task I take on as not to end up in to much agony.

>

> Soon I will start reading every post and replieng to the ones I

feel like I have something to contribute to.

> But for the past week or so I have just been skimming over most.

>

> GOD Bless You

All ! ! ! . . . ................................................ .

. . Gentle Hugs,

> _________________________________________________________________

> Put your friends on the big screen with Windows Vista® + Windows

Live™.

> http://www.microsoft.com/windows/shop/specialoffers.mspx?

ocid=TXT_TAGLM_CPC_MediaCtr_bigscreen_012008

>

>

[Guest guest]

, I don't know if your size it attributed to FM. I will say that I know I

have unfortunately gained weight since my diagnosis. Now it could be though

that you just don't eat much because you are in so much pain most of the time

and don't have meds that might benefit you better.

I can really understand what you are saying about money. The world revolves

around money. I don't have insurance and neither do my little kids. I manage

to go to the doctor once a month but it costs me. I am lucky I can even afford

it. I can't imagine what you go through. I hate it for you.

I am in the crunch of the middle class. I can't afford insurance, but don't

qualify for any kind of assistance.

It is so sad that we live in a country with all this wealth around us and some

can't even afford to see a doctor and get medication.

love ya,

Debra V.

wrote:

I know it's so hard to live without RX meds if you've been on them

for ages, especially with the pain. I personally haven't been " truly

diagnosed " so I am doing all my pain management OTC, which isn't

easy, because I can't use the same pain medication three times a day,

it stops working after twice, so I alternate every six hours or so.

Last night was so bad I had to use one I almost never use because it

knocks me out. It's called Genasec, and ONE PILL can knock me out.

The bane of being tiny, let me tell you.

I have a question for everyone. I know that size can cause as many

difficulties as it solves. I am, and pretty much have always been

little. When I say little, I mean, 100 lbs. 5'1 " tall, still called

little girl, little. I also have nearly no meat on my bones, in fact,

have lost quite a bit of that over the past several years. Is this a

consequence of the beast we live with and its many cousins?

I suffer allergies, which can cause asthmatic conditions as a result.

I am not on asthma or other medications because I have also had

problems just affording medical care. I haven't had insurance in

years, because we're just too tight budget wise to manage affording

it. Free clinics only go so far, and won't do as much as they did in

the old days. Doctors don't barter, they want money. If they lived

like I do, they'd wonder how I ever manage to find a pair of matching

socks every day for anyone in the household, clothes that fit any one

of my four prairie weeds for legs children, they grow so fast. You

can't get disability without doctors and you can't get to a doctor

without insurance or actual cash. I'd love to find a tree that grows

money, it would sure help those of us sitting between rocks and hard

places.

PS , I am very glad that your new cat is helping even in its

small way. Having my dogs does the same for me. If I wasn't allergic

to cats I'd probably have as many cats as I do dogs. We take care of

a stray cat outside, because I can't have her inside. She adopted us

because her family abandoned her. Just having the dogs here helps so

much, they are so calming for me. I have a Pomeranian and a

Pomeranian mix.

>

>

> Hi Friends ! ! ! Just wana let you know though I've had some bad

days there have parts of the days that have been meaningful to me.

Three days working around the house results in two days spent in bed

on a heating pad w/blue ice. I've accomplished several things. I've

refused to just do nothing as that would be to simply giving in.

>

> New Kitty cat has been a blessing, she greets me 1st thing in the

morning waiting for her 1st can of food so to her I'm #1. The comfort

she has to offer has been great. Her name is Snoopy as she is getting

into evrything around the house but that's is ok.

>

> Learning to live w/out RX pain meds has been difficult but I AM

managing fairly well. I decided not to allow the pain stop me. I pace

myself in evry task I take on as not to end up in to much agony.

>

> Soon I will start reading every post and replieng to the ones I

feel like I have something to contribute to.

> But for the past week or so I have just been skimming over most.

>

> GOD Bless You

All ! ! ! . . . ................................................ .

.. . Gentle Hugs,

> __________________________________________________________

> Put your friends on the big screen with Windows Vista® + Windows

Live™.

> http://www.microsoft.com/windows/shop/specialoffers.mspx?

ocid=TXT_TAGLM_CPC_MediaCtr_bigscreen_012008

>

>

[Guest guest]

I'm tiny too, 5'5 " and approx 110. Not sure what size has to do with it.

In other groups I was in, the members said the fibro beast caused them

to gain weight. It is the complete opposite with me. When it seems to

aggravate the ibs enough, I don't eat enough calories. But then again

I've always been little.

My sister isn't underweight but not over weight either, she has fibro

too so we can't say it causes us to be thin. Mine is mostly genetics.

I get it from my Daddy.

That and the ibs keeps me from pigging out. It lessens the attacks if I

graze and eat smaller meals through out the day. It's also easier on

the acid reflux.

wrote:

> I know it's so hard to live without RX meds if you've been on them

> for ages, especially with the pain. I personally haven't been " truly

> diagnosed " so I am doing all my pain management OTC, which isn't

> easy, because I can't use the same pain medication three times a day,

> it stops working after twice, so I alternate every six hours or so.

> Last night was so bad I had to use one I almost never use because it

> knocks me out. It's called Genasec, and ONE PILL can knock me out.

> The bane of being tiny, let me tell you.

>

> I have a question for everyone. I know that size can cause as many

> difficulties as it solves. I am, and pretty much have always been

> little. When I say little, I mean, 100 lbs. 5'1 " tall, still called

> little girl, little. I also have nearly no meat on my bones, in fact,

> have lost quite a bit of that over the past several years. Is this a

> consequence of the beast we live with and its many cousins?

>

> I suffer allergies, which can cause asthmatic conditions as a result.

> I am not on asthma or other medications because I have also had

> problems just affording medical care. I haven't had insurance in

> years, because we're just too tight budget wise to manage affording

> it. Free clinics only go so far, and won't do as much as they did in

> the old days. Doctors don't barter, they want money. If they lived

> like I do, they'd wonder how I ever manage to find a pair of matching

> socks every day for anyone in the household, clothes that fit any one

> of my four prairie weeds for legs children, they grow so fast. You

> can't get disability without doctors and you can't get to a doctor

> without insurance or actual cash. I'd love to find a tree that grows

> money, it would sure help those of us sitting between rocks and hard

> places.

>

>

>

> PS , I am very glad that your new cat is helping even in its

> small way. Having my dogs does the same for me. If I wasn't allergic

> to cats I'd probably have as many cats as I do dogs. We take care of

> a stray cat outside, because I can't have her inside. She adopted us

> because her family abandoned her. Just having the dogs here helps so

> much, they are so calming for me. I have a Pomeranian and a

> Pomeranian mix.

>

>

>

>> Hi Friends ! ! ! Just wana let you know though I've had some bad

>>

> days there have parts of the days that have been meaningful to me.

> Three days working around the house results in two days spent in bed

> on a heating pad w/blue ice. I've accomplished several things. I've

> refused to just do nothing as that would be to simply giving in.

>

>>

>> New Kitty cat has been a blessing, she greets me 1st thing in the

>>

> morning waiting for her 1st can of food so to her I'm #1. The comfort

> she has to offer has been great. Her name is Snoopy as she is getting

> into evrything around the house but that's is ok.

>

>>

>> Learning to live w/out RX pain meds has been difficult but I AM

>>

> managing fairly well. I decided not to allow the pain stop me. I pace

> myself in evry task I take on as not to end up in to much agony.

>

>>

>> Soon I will start reading every post and replieng to the ones I

>>

> feel like I have something to contribute to.

>

>> But for the past week or so I have just been skimming over most.

>>

>> GOD Bless You

>>

> All ! ! ! . . . ................................................ .

> . . Gentle Hugs,

>

>> _________________________________________________________________

>> Put your friends on the big screen with Windows Vista® + Windows

>>

> Live^.

>

>> http://www.microsoft.com/windows/shop/specialoffers.mspx?

>>

> ocid=TXT_TAGLM_CPC_MediaCtr_bigscreen_012008

>

>>

[Guest guest]

I don't consider myself to be " tiny " like you, but I just have no appetite

anymore. I am also

the opposite. It is just hard to eat....I just have to force myself.

I am about 5'8 " & 125...but I have been losing weight....so I could be less

now...who know.

I am going to start to do some strength training again...I just have no energy

for that after

working & all. I work for myself though which is a plus, but it's still hard.

> >

> >> Hi Friends ! ! ! Just wana let you know though I've had some bad

> >>

> > days there have parts of the days that have been meaningful to me.

> > Three days working around the house results in two days spent in bed

> > on a heating pad w/blue ice. I've accomplished several things. I've

> > refused to just do nothing as that would be to simply giving in.

> >

> >>

> >> New Kitty cat has been a blessing, she greets me 1st thing in the

> >>

> > morning waiting for her 1st can of food so to her I'm #1. The comfort

> > she has to offer has been great. Her name is Snoopy as she is getting

> > into evrything around the house but that's is ok.

> >

> >>

> >> Learning to live w/out RX pain meds has been difficult but I AM

> >>

> > managing fairly well. I decided not to allow the pain stop me. I pace

> > myself in evry task I take on as not to end up in to much agony.

> >

> >>

> >> Soon I will start reading every post and replieng to the ones I

> >>

> > feel like I have something to contribute to.

> >

> >> But for the past week or so I have just been skimming over most.

> >>

> >> GOD Bless You

> >>

> > All ! ! ! . . . ................................................ .

> > . . Gentle Hugs,

> >

> >> _________________________________________________________________

> >> Put your friends on the big screen with Windows Vista® + Windows

> >>

> > Live^.

> >

> >> http://www.microsoft.com/windows/shop/specialoffers.mspx?

> >>

> > ocid=TXT_TAGLM_CPC_MediaCtr_bigscreen_012008

> >

> >>

[Guest guest]

I was always a pencil, but the year my fibro symptoms began, my weight

plummeted. I didn't know what ibs was, yet I was having these attacks

and didn't know why. I couldn't eat and my weight went down to 95. Of

course everyone was all 'she needs to eat a sandwich' or 'she must be

anorexic.' That just made my depression plummet to an all time low. I

hated the ridicule, criticism, insults, being accused of anorexia, you

name it. I saw doctors and doctors and doctors, told them I hurt all

over, had headaches, stomach problems, and just couldn't eat. They said

it was all in my head or stress.

Anyhow jumping ahead a decade, I'm at a healthy weight but it is a daily

struggle sometimes. I don't have a normal appetite like the rest of the

world, and being thin in the world today is VERY abnormal. So I've

always felt like such a misfit and never really fit in.

It's nice to know I'm not alone. Some days I do feel completely alone.

People still do that 'GOSH she's SO SKINNY!' with a sneer. Some days

it's no big deal, I'm 36 and been dealing with these comments for more

than 20 year now, so I'm way used to it. But other days I want to say

" then let's trade, you take my fibro ibs body and let me have your 'I

can eat anything anytime' body, I'd gladly trade!!! "

Amy Brand wrote:

> I don't consider myself to be " tiny " like you, but I just have no appetite

anymore. I am also

> the opposite. It is just hard to eat....I just have to force myself.

>

> I am about 5'8 " & 125...but I have been losing weight....so I could be less

now...who know.

> I am going to start to do some strength training again...I just have no energy

for that after

> working & all. I work for myself though which is a plus, but it's still hard.

>

>

[Guest guest]

Yeh...me being thin with my IBS & hardly any appetite is better than the

laxative diet so

many people do. I always got ridiculed for being thin. I was always active

& thin &

always worked hard to maintain it...except now I don't have to work as hard. I

do want to

strength train so I can get some of my muscle mass back. I used to be very

muscular...I

was in the Navy & also did martial arts. I want that body back!

> > I don't consider myself to be " tiny " like you, but I just have no appetite

anymore. I am

also

> > the opposite. It is just hard to eat....I just have to force myself.

> >

> > I am about 5'8 " & 125...but I have been losing weight....so I could be less

now...who

know.

> > I am going to start to do some strength training again...I just have no

energy for that

after

> > working & all. I work for myself though which is a plus, but it's still

hard.

> >

> >

>

>

>

[Guest guest]

Oh my gosh....I am so sorry to hear that. I had no idea about that. It is

horrible how the

system works, and I don't see it changing either which sucks.

> >

> >

> > Hi Friends ! ! ! Just wana let you know though I've had some bad

> days there have parts of the days that have been meaningful to me.

> Three days working around the house results in two days spent in bed

> on a heating pad w/blue ice. I've accomplished several things. I've

> refused to just do nothing as that would be to simply giving in.

> >

> > New Kitty cat has been a blessing, she greets me 1st thing in the

> morning waiting for her 1st can of food so to her I'm #1. The comfort

> she has to offer has been great. Her name is Snoopy as she is getting

> into evrything around the house but that's is ok.

> >

> > Learning to live w/out RX pain meds has been difficult but I AM

> managing fairly well. I decided not to allow the pain stop me. I pace

> myself in evry task I take on as not to end up in to much agony.

> >

> > Soon I will start reading every post and replieng to the ones I

> feel like I have something to contribute to.

> > But for the past week or so I have just been skimming over most.

> >

> > GOD Bless You

> All ! ! ! . . . ................................................ .

> . . Gentle Hugs,

> > __________________________________________________________

> > Put your friends on the big screen with Windows Vista® + Windows

> Live™.

> > http://www.microsoft.com/windows/shop/specialoffers.mspx?

> ocid=TXT_TAGLM_CPC_MediaCtr_bigscreen_012008

> >

> >

[Guest guest]

I know that size couldn't have anything to do with it. I got is when I was

a kid and I was scrawny. I didn't get a weight problem until my late 2o's

and in my 30's I got down to the proper weight for my size and age, then I was

dx'd with fibro and the weight piled on...my doc said it was because of the

meds. Right now, I am almost 5'5 " tall and weigh around 200 lbs. During

these lower weight times, I still had bad flares. So it doesn't seem to be the

weight that sets it off.

Love and gentle hugs,

Debi/So. Cal.-54

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[Guest guest]

> During

> these lower weight times, I still had bad flares. So it doesn't

> seem to be the

> weight that sets it off.

About a year or so after my weight loss surgery (Aug 2005), when I'd

lost > 100 lbs, I said to my doc that deep down I was hoping that the

weight loss would help the fibromyalgia symptoms. She looked at me,

a little sadly, and said that fibro is not caused by obesity and that

thin people get it too.

For me, the four major surgeries I had between Aug 2005 and May 2007

left me in a period of non-stop flare. It seems to have eased up a

bit - I'm having stretches of days when I feel pretty decent (today

isn't one of them). But I've had fibro symptoms since I was 11,

regardless of my weight.

I hope you can find a way of eating and exercising despite the fibro

that helps you drop a few pounds. Even though my weight loss didn't

help the fibro symptoms directly, it enabled me to take care of side

issues which caused other kinds of pain. The more strength I can

build through exercise, the fewer additional problems I will have.

It's like I cleared out a whole lot of pain-causing conditions, and

what's left is the fibromyalgia.

But isn't it aggravating, when you're heavy, when docs tell you that

everything is because of your weight? I think my doc finally had a

kind of epiphany once when she said something like that, and I asked

her " Do thin people get this? " (whatever it was) She said " Yes " , and

I said " What do you tell them about why they have it? "

Z

[Guest guest]

Yep! LOL I can attest to that one.

> She looked at me,

> a little sadly, and said that fibro is not caused by obesity and that

> thin people get it too.

>