Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 There is one " doctor " who claims a very strict diet, no carbs, sugars, etc, etc, taking high doses of Mucinex, strict sleep, etc will cure or alleviate all fibro symptoms. Titles of books are something like what your doctor doesn't want you to know. Some of the explanations for fibro make some sense, the diet can't hurt but you have to take it all with skepticism. There are so many books and people that have the answer to so many things so if they work then why doesn't everyone follow them? I think husbands and families don't understand why we can't be fixed and if we do this then we will be fixed. We are broken and changed and it is hard for family and people who love us to get it and except that this is who we are now. It takes time and some never get it. Neda > DH called me from work last week & told me he heard on the radio about > this website www.stopfibro.com & that they had found the cure to > Fibro. The website is for Dr Whitcomb & his method. Nothing on the > site is accessible unless you give them your info & become a member. > You can't even find out what fibro is or it's symptoms until you > become a member. It all seems a bit unbelievable to me. I really > have no interest in this guy or his methods. It seems that if what > he's doing really were a cure, then it would be all over the medical > community. Not on a radio commercial. Is anybody familiar with this > dr or his methods? > > I had a really rough weekend. We were really shorthanded for my > organization's biggest fundraiser of the year. I warned dh that it > would take me at least a few days if not the week to recover from the > weekend. (In addition to the FMS, I have scoliosis, DDD, OA in my > hip, OA in L hand/wrist, migraines, asthma, anemia, endometriosis, & > my Rheummy is testing me for RA & other stuff.) DH came home from > work yesterday & found me napping. It was 4pm. Our younger 2 > children were napping & the older 2 weren't home from school yet. > I've been in a horrible flare since Saturday. DH doesn't get it at > all. When I try to explain, he comes back with his back hurts & he > goes to work everyday. I just need to get over it. He thinks I'm > just trying to get attention. He thinks I got a cane from my dr, just > for attention. Honestly, it's embarrassing. I'm 31. I hate having a > cane. Since hearing the radio commercial, he keeps asking me to find > out if our insurance will cover seeing the dr that can cure me. I > don't know how to explain it to him so he'll understand that this > isn't going to take a quick fix & not everybody is the same. Any > suggestions? Sorry to ramble on. Thank you for reading all of this. > > ~allie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Yeah that's kind of fishy to me. If they truly want to help people, they would make information easy to get to. When the fibro and fatigue centers opened in the DFW area, I found out they do not accept insurance. That is just odd to me. paigeturner76 wrote: > DH called me from work last week & told me he heard on the radio about > this website www.stopfibro.com & that they had found the cure to > Fibro. The website is for Dr Whitcomb & his method. Nothing on the > site is accessible unless you give them your info & become a member. > You can't even find out what fibro is or it's symptoms until you > become a member. It all seems a bit unbelievable to me. I really > have no interest in this guy or his methods. It seems that if what > he's doing really were a cure, then it would be all over the medical > community. Not on a radio commercial. Is anybody familiar with this > dr or his methods? > > I had a really rough weekend. We were really shorthanded for my > organization's biggest fundraiser of the year. I warned dh that it > would take me at least a few days if not the week to recover from the > weekend. (In addition to the FMS, I have scoliosis, DDD, OA in my > hip, OA in L hand/wrist, migraines, asthma, anemia, endometriosis, & > my Rheummy is testing me for RA & other stuff.) DH came home from > work yesterday & found me napping. It was 4pm. Our younger 2 > children were napping & the older 2 weren't home from school yet. > I've been in a horrible flare since Saturday. DH doesn't get it at > all. When I try to explain, he comes back with his back hurts & he > goes to work everyday. I just need to get over it. He thinks I'm > just trying to get attention. He thinks I got a cane from my dr, just > for attention. Honestly, it's embarrassing. I'm 31. I hate having a > cane. Since hearing the radio commercial, he keeps asking me to find > out if our insurance will cover seeing the dr that can cure me. I > don't know how to explain it to him so he'll understand that this > isn't going to take a quick fix & not everybody is the same. Any > suggestions? Sorry to ramble on. Thank you for reading all of this. > > ~allie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 I've heard that a high protein, lower carb diet is good for fibro. I've never been disciplined enough to stick with it though. I have been baby stepping in trying to incease my protein this year. Neda Wilmhoff wrote: > There is one " doctor " who claims a very strict diet, no carbs, > sugars, etc, etc, taking high doses of Mucinex, strict sleep, etc > will cure or alleviate all fibro symptoms. Titles of books are > something like what your doctor doesn't want you to know. Some of the > explanations for fibro make some sense, the diet can't hurt but you > have to take it all with skepticism. There are so many books and > people that have the answer to so many things so if they work then > why doesn't everyone follow them? I think husbands and families > don't understand why we can't be fixed and if we do this then we will > be fixed. We are broken and changed and it is hard for family and > people who love us to get it and except that this is who we are now. > It takes time and some never get it. Neda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 It is called people in pain will pay anything if they think it will cure them. Sounds like a scam. Neda > Yeah that's kind of fishy to me. If they truly want to help people, > they would make information easy to get to. > When the fibro and fatigue centers opened in the DFW area, I found out > they do not accept insurance. That is just odd to me. > > paigeturner76 wrote: > > DH called me from work last week & told me he heard on the radio > about > > this website www.stopfibro.com & that they had found the cure to > > Fibro. The website is for Dr Whitcomb & his method. Nothing on the > > site is accessible unless you give them your info & become a member. > > You can't even find out what fibro is or it's symptoms until you > > become a member. It all seems a bit unbelievable to me. I really > > have no interest in this guy or his methods. It seems that if what > > he's doing really were a cure, then it would be all over the medical > > community. Not on a radio commercial. Is anybody familiar with this > > dr or his methods? > > > > I had a really rough weekend. We were really shorthanded for my > > organization's biggest fundraiser of the year. I warned dh that it > > would take me at least a few days if not the week to recover from > the > > weekend. (In addition to the FMS, I have scoliosis, DDD, OA in my > > hip, OA in L hand/wrist, migraines, asthma, anemia, endometriosis, & > > my Rheummy is testing me for RA & other stuff.) DH came home from > > work yesterday & found me napping. It was 4pm. Our younger 2 > > children were napping & the older 2 weren't home from school yet. > > I've been in a horrible flare since Saturday. DH doesn't get it at > > all. When I try to explain, he comes back with his back hurts & he > > goes to work everyday. I just need to get over it. He thinks I'm > > just trying to get attention. He thinks I got a cane from my dr, > just > > for attention. Honestly, it's embarrassing. I'm 31. I hate having a > > cane. Since hearing the radio commercial, he keeps asking me to find > > out if our insurance will cover seeing the dr that can cure me. I > > don't know how to explain it to him so he'll understand that this > > isn't going to take a quick fix & not everybody is the same. Any > > suggestions? Sorry to ramble on. Thank you for reading all of this. > > > > ~allie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Allie, When I read your e-mail it immediately made me think of the group " Cure Autism Now " . As far as I know there is no cure for autism and the best we can do is to accept these children for who they are and love them. That does not mean that we shouldn't try to help them in any way we can, but cure? Not yet. There are many ways to educate them at least many of them but no cure has been found and I think we do a disservice to these children trying to cure them. The same for " Stop Fibro.com " We do whatever we can to ease our lives but stop the fibro? I don't think so. Not yet at least. As for your husband's attitude I don't know a cure for that either. Far too many husbands and families feel this way it seems after my joining this list. I am so lucky that my children and grandchildren do understand. It sure makes life easier for me. I do have a daughter who is a psychiatrist but she is in research and the only patients she sees are part of that research. Keep posting to the list and you will find people who do understand. If you are not up to posting - just keep reading. Margaret B > DH called me from work last week & told me he heard on the radio about > this website www.stopfibro.com & that they had found the cure to > Fibro. The website is for Dr Whitcomb & his method. Nothing on the > site is accessible unless you give them your info & become a member. > You can't even find out what fibro is or it's symptoms until you > become a member. It all seems a bit unbelievable to me. I really > have no interest in this guy or his methods. It seems that if what > he's doing really were a cure, then it would be all over the medical > community. Not on a radio commercial. Is anybody familiar with this > dr or his methods? > > I had a really rough weekend. We were really shorthanded for my > organization's biggest fundraiser of the year. I warned dh that it > would take me at least a few days if not the week to recover from the > weekend. (In addition to the FMS, I have scoliosis, DDD, OA in my > hip, OA in L hand/wrist, migraines, asthma, anemia, endometriosis, & > my Rheummy is testing me for RA & other stuff.) DH came home from > work yesterday & found me napping. It was 4pm. Our younger 2 > children were napping & the older 2 weren't home from school yet. > I've been in a horrible flare since Saturday. DH doesn't get it at > all. When I try to explain, he comes back with his back hurts & he > goes to work everyday. I just need to get over it. He thinks I'm > just trying to get attention. He thinks I got a cane from my dr, just > for attention. Honestly, it's embarrassing. I'm 31. I hate having a > cane. Since hearing the radio commercial, he keeps asking me to find > out if our insurance will cover seeing the dr that can cure me. I > don't know how to explain it to him so he'll understand that this > isn't going to take a quick fix & not everybody is the same. Any > suggestions? Sorry to ramble on. Thank you for reading all of this. > > ~allie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 The guy is a joke.. Here are some articles about him.. The first one is an interview, you have to scroll down to read it. http://www.newstarget.com/008526.html http://www.newstarget.com/008247.html http://www.immunesupport.com/library/showarticle.cfm?id=6419 & t=CFIDS_FM http://vids.myspace.com/index.cfm?fuseaction=vids.individual & videoid=21169642 (what a crock)..sHE WROTE A BOOK AND DID THIS TO PROMOTE IT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Well lets throw d/h into the pile with the rest of the aggravating closed minded know it alls. Yeah, yeah, I had back pain sometimes before I ever got fibro... let me tell you it does not compare to the intensity or magnitude of this disease and its overal effects. I guess they just think it is as simple as a tension headache. NOT. Oh well, we unfortunately live with a society full of people that don't believe what we say. I know you love him. I guess I can't blame him in a way because as I have said, this damn disease designed itself to make us look like wimps and liars. You are not alone. hugs, Debra V. paigeturner76 wrote: DH called me from work last week & told me he heard on the radio about this website www.stopfibro.com & that they had found the cure to Fibro. The website is for Dr Whitcomb & his method. Nothing on the site is accessible unless you give them your info & become a member. You can't even find out what fibro is or it's symptoms until you become a member. It all seems a bit unbelievable to me. I really have no interest in this guy or his methods. It seems that if what he's doing really were a cure, then it would be all over the medical community. Not on a radio commercial. Is anybody familiar with this dr or his methods? I had a really rough weekend. We were really shorthanded for my organization's biggest fundraiser of the year. I warned dh that it would take me at least a few days if not the week to recover from the weekend. (In addition to the FMS, I have scoliosis, DDD, OA in my hip, OA in L hand/wrist, migraines, asthma, anemia, endometriosis, & my Rheummy is testing me for RA & other stuff.) DH came home from work yesterday & found me napping. It was 4pm. Our younger 2 children were napping & the older 2 weren't home from school yet. I've been in a horrible flare since Saturday. DH doesn't get it at all. When I try to explain, he comes back with his back hurts & he goes to work everyday. I just need to get over it. He thinks I'm just trying to get attention. He thinks I got a cane from my dr, just for attention. Honestly, it's embarrassing. I'm 31. I hate having a cane. Since hearing the radio commercial, he keeps asking me to find out if our insurance will cover seeing the dr that can cure me. I don't know how to explain it to him so he'll understand that this isn't going to take a quick fix & not everybody is the same. Any suggestions? Sorry to ramble on. Thank you for reading all of this. ~allie --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 I just read the first link so far. He talks a lot about chiropractic treatments for fibro. I see my chiro pretty regularly, it does help me a lot. But it doesn't seem to heal me, just help me manage this thing. I just start to hurt worse if I wait too long between visits. Peachie wrote: > The guy is a joke.. Here are some articles about him.. The first one is an > interview, you have to scroll down to read it. > http://www.newstarget.com/008526.html > http://www.newstarget.com/008247.html > http://www.immunesupport.com/library/showarticle.cfm?id=6419 & t=CFIDS_FM > http://vids.myspace.com/index.cfm?fuseaction=vids.individual & videoid=21169642 (what a crock)..sHE WROTE A BOOK AND DID THIS TO PROMOTE IT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 There are thousands of " cures " out there, but I would be especially leary of a site that require your to register before you can even enter. You'll be opening yourself up for spam. I clicked on the video and viewed it. I've never known a person to suffer such speech problems from fibro fog alone. Yeah, she does seem to get better after one treatment, but I bet those treatments are costly and maybe not covered by insurance. Guess you'd have to risk signing up to find out. Sorry about your DH. It seems to me that if you were " cured " of your FM, you'd still have pretty frequent pain from your other health conditions. Good luck and take care. Jeanne in WI Dr Cures Fibro? & dh doesn't get it > DH called me from work last week & told me he heard on the radio about > this website www.stopfibro.com & that they had found the cure to > Fibro. The website is for Dr Whitcomb & his method. Nothing on the > site is accessible unless you give them your info & become a member. > You can't even find out what fibro is or it's symptoms until you > become a member. It all seems a bit unbelievable to me. I really > have no interest in this guy or his methods. It seems that if what > he's doing really were a cure, then it would be all over the medical > community. Not on a radio commercial. Is anybody familiar with this > dr or his methods? > > I had a really rough weekend. We were really shorthanded for my > organization's biggest fundraiser of the year. I warned dh that it > would take me at least a few days if not the week to recover from the > weekend. (In addition to the FMS, I have scoliosis, DDD, OA in my > hip, OA in L hand/wrist, migraines, asthma, anemia, endometriosis, & > my Rheummy is testing me for RA & other stuff.) DH came home from > work yesterday & found me napping. It was 4pm. Our younger 2 > children were napping & the older 2 weren't home from school yet. > I've been in a horrible flare since Saturday. DH doesn't get it at > all. When I try to explain, he comes back with his back hurts & he > goes to work everyday. I just need to get over it. He thinks I'm > just trying to get attention. He thinks I got a cane from my dr, just > for attention. Honestly, it's embarrassing. I'm 31. I hate having a > cane. Since hearing the radio commercial, he keeps asking me to find > out if our insurance will cover seeing the dr that can cure me. I > don't know how to explain it to him so he'll understand that this > isn't going to take a quick fix & not everybody is the same. Any > suggestions? Sorry to ramble on. Thank you for reading all of this. > > ~allie > > > > 1. While it is wonderful to share our experiences with everyone on the > list as to what treatments do and don't work for us, pls always check with > your dr. Some treatments are dangerous when given along with other meds > as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls > don't be afraid to ask for help. It is the first step to trying to make > that situation better. > > 3. To unsubscribe the e-mail is: > Fibromyalgia_Support_Group-unsubscribe > > 4. Also, it is not uncommon for more than one member to be feeling bad at > the same time when it comes to flares and b/c of that potentially take > something another member says the wrong way. And that includes the things > that one member may find funny (even if it's laughing at fibro itself) > even though we who deal with illness whether one such as fibro or multiple > illnesses try to keep a sense of humor. > > 5. Pls let's be gentle with each other, and if you are having a bad day > pls let us know so that we can do our best to offer our support. > > Have a nice day everyone. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Thank you for the links. I was hoping somebody here had something on this guy. ~allie > > The guy is a joke.. Here are some articles about him.. The first one is an > interview, you have to scroll down to read it. > http://www.newstarget.com/008526.html > http://www.newstarget.com/008247.html > http://www.immunesupport.com/library/showarticle.cfm?id=6419 & t=CFIDS_FM > http://vids.myspace.com/index.cfm?fuseaction=vids.individual & videoid=21169642 (what a crock)..sHE WROTE A BOOK AND DID THIS TO PROMOTE IT > > Quote Link to comment Share on other sites More sharing options...
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