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Re: Re:Oh the theories of this --To

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Yep , I agree. I use to actually have the brain fog years ago. I just

thought it was " normal " I guess. But I remember times in my 20's when I would

get where I felt like I was not really there. Could not think well and

everything was.... foggy. I don't believe it is my medications. Now I am sure

there are some medications that would make it worse, but the ones I take don't

affect me that way. Much the opposite... they help it.

hugs,

Debra V.

wrote:

I have to disagree. I have brain fog without meds. It is part of this

dd fibro. My 2 cents.

Kate Court wrote: I was thinking of the anti

depressants and epileptic meds.

Re:Oh the theories of this disease..... what confusion

Part of the confusion comes from newer research. From my

understanding fibro was once considered autoimmunie and is now

considered central nervous in the latest research.

>

> I'm reading that book by Dr. Wallace that Angie recommended. He

writes

> about the Autonomic Nervous System, which if I understood correctly

is a

> subset of the CNS. The actual physiology and stuff kind of was

over my

> head, but he refers often to the ANS being the root cause of FM.

And in

> case someone needs the title of the book, is is " Fibromyalgia- An

Essential

> Guide for Patients and Their Families. " It was written in 2003, so

already

> a bit out of date, but still some helpful info. I haven't finished

the book

> yet. I also bought Fibromyalgia for Dummies to read after I finish

with Dr.

> Wallace's book.

> Jeanne in WI

>

>

> >I kind of agree with you and your docs Ruthie. I truly believe it

is the

> >central nervous system

> > because just about every symptom of this can be traced to the

affects of

> > a whacked out nervous system. Now, it is possible though that

their is

> > some kind of toxin messing with the CNS. Or a chemical

imbalance, or

> > deficiency. etc.

> > But I really think that is the newest and best theory of this

damn thing.

> > Thanks so much for being here for me. I don't know what I would

do

> > without all my cyber friends at this site.

> > love ya for real,

> > Debra V.

>

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4.. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

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I agree with you and Debra,

I have had the brain fog for years and years. It comes and goes on its own

and I never know if it will affect my day until I get up. It doesn't stay a

predictable amount of time or let up for any particular reason. I never could

understand why on certain days or at certain times I just couldn't figure out

what was going on. It was just like I got lost and couldn't think where I was.

I can stare at a pile of anything at those time and not be able to decide what

to do with any of it. I can be at the mall or another store and, as I put it,

have my " fibro wall " come down on me and not be able to drive home. That is why

I'm isolated so much at home, living alone. I will go places but not without

someone going with me because I'm afraid I can't get home My son had to rush me

to the doctor earlier in the week because my pneumonia got worse and I couldn't

determine where it was. I gave him the wrong directions and then when it was

the wrong place he had to find

directions for himself. This was my PCP too. I've been there a lot.

At any rate this fog can happen with no meds of any kind. They started before

I was taking any melds. I have only had 5mg of hydrocodone for 1 month and

other meds on and off, but the fog doesn't relate to any of the times I was

taking them. It doesn't go away with any meds either.

Just my buck and 1/4, sorry so long,

Marti

debra van ness wrote:

Yep , I agree. I use to actually have the brain fog years ago. I

just thought it was " normal " I guess. But I remember times in my 20's when I

would get where I felt like I was not really there. Could not think well and

everything was.... foggy. I don't believe it is my medications. Now I am sure

there are some medications that would make it worse, but the ones I take don't

affect me that way. Much the opposite... they help it.

hugs,

Debra V.

wrote:

I have to disagree. I have brain fog without meds. It is part of this dd fibro.

My 2 cents.

Kate Court wrote: I was thinking of the anti

depressants and epileptic meds.

Re:Oh the theories of this disease..... what confusion

Part of the confusion comes from newer research. From my

understanding fibro was once considered autoimmunie and is now

considered central nervous in the latest research.

>

> I'm reading that book by Dr. Wallace that Angie recommended. He

writes

> about the Autonomic Nervous System, which if I understood correctly

is a

> subset of the CNS. The actual physiology and stuff kind of was

over my

> head, but he refers often to the ANS being the root cause of FM.

And in

> case someone needs the title of the book, is is " Fibromyalgia- An

Essential

> Guide for Patients and Their Families. " It was written in 2003, so

already

> a bit out of date, but still some helpful info. I haven't finished

the book

> yet. I also bought Fibromyalgia for Dummies to read after I finish

with Dr.

> Wallace's book.

> Jeanne in WI

>

>

> >I kind of agree with you and your docs Ruthie. I truly believe it

is the

> >central nervous system

> > because just about every symptom of this can be traced to the

affects of

> > a whacked out nervous system. Now, it is possible though that

their is

> > some kind of toxin messing with the CNS. Or a chemical

imbalance, or

> > deficiency. etc.

> > But I really think that is the newest and best theory of this

damn thing.

> > Thanks so much for being here for me. I don't know what I would

do

> > without all my cyber friends at this site.

> > love ya for real,

> > Debra V.

>

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4.. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

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