Jump to content
RemedySpot.com

ever wonder what I look like... here is a description

Rate this topic


Guest guest

Recommended Posts

Okay.

Debra, you started this.

I am 61 and now look it thanks to Fibro, 4' 10 " and about 128 lbs. Oh I can

still remember being 93 lbs. Thanks to the med. " s. it's no more. Was pretty

cute at one time so I was told. Brown hair streaked with blonde, hazel green

eyes and love to laugh,smile and tell jokes. I also enjoy helping others. Have

had a pretty good life with some big time losses. But I have survived and will

continue to thru this group.

I live in Las Vegas with my aunt and have for almost a year after leaving

beautiful Oregon.

I have a little Yorki that I love dearly and is spoiled rotten.

I got the nickname of lilbit because I'm so short.

Love this group.

Little

LINDA

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Link to comment
Share on other sites

Well I quit using the word " pudgy " or heavy, I AM FLUFFY!!!! lol

>

> Just was thinking how we have such wonderful hearts here for each

other. I just thought I would give you all a little description of

me as if you came to my front door.

>

> I am about 5'5 " ... I am 43 and look closer to 50 on bad days. I

am overweight which has been worse with the years since the fibro

monster moved in full time. LOL. I weigh about 196 lbs. I am

pudgy. Not real obese, but pudgy. I have blonde hair that I color

myself... (really a true brunette.. LOL). I did figure out through

trial and error how to get my hair blonde instead of orange. I have

brown eyes. Some days when I wear makeup, I see a little hint of the

pretty young woman I use to be. (she kind of faded away now)... On

bad days, I scare myself in the mornings. LOL...... " oh no, my hair

looks like a stack of straw " ... lol.

> I ALWAYS have the dark circles around my eyes no matter how much

makeup I put on or don't. I look exhausted. No one seems to notice

because they are use to it. (that is why I say the people at work

have probably thought I am an alcolholic... because I look like I

have partied all night sometimes when I did not even get the benefit

of the FUN part)... LOL.

> Anyway, just a pudgy middle aged (did I say that?) nurse with a

big heart. I get along with everyone I work with. They all seem to

like me because I treat people right. My nurse aids would rather

work with me than most people. LOL.

>

> And I love all of you. I wish you could all just beam up here

like on star trek. hmmmmm?

> Ok I am getting a little wierd now. Guess I will go and read

some more posts.

>

> Agape,

> Debra V.

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>

Link to comment
Share on other sites

thanks for telling us Debra.

how many of us are candid enough to really tell a

stranger who can not see us , what we really look

like.

I just turned 54 on the 15th, have loved being a

paramedic and miss being on the trucks now.

my hair was red (now snow white/silver).blue eyes and

my irish ancestors decided i should have a light

complextion that sunburns in 15minutes then more

freckles pop.lol

i used to never leave the house with out at least

mascara (what good southern girl does). but now a days

it just seems even that takes too much energy.

I love your description of pudgy. I call it short and

compacted. and i can tell all of the partners i have

had on the ambulance. " well at least i can stand up in

the dang thing with out busting my head "

Diane

--- debra van ness wrote:

> Just was thinking how we have such wonderful hearts

> here for each other. I just thought I would give

> you all a little description of me as if you came to

> my front door.

>

> I am about 5'5 " ... I am 43 and look closer to 50

> on bad days. I am overweight which has been worse

> with the years since the fibro monster moved in full

> time. LOL. I weigh about 196 lbs. I am pudgy.

> Not real obese, but pudgy. I have blonde hair that

> I color myself... (really a true brunette.. LOL). I

> did figure out through trial and error how to get my

> hair blonde instead of orange. I have brown eyes.

> Some days when I wear makeup, I see a little hint of

> the pretty young woman I use to be. (she kind of

> faded away now)... On bad days, I scare myself in

> the mornings. LOL...... " oh no, my hair looks like

> a stack of straw " ... lol.

> I ALWAYS have the dark circles around my eyes no

> matter how much makeup I put on or don't. I look

> exhausted. No one seems to notice because they are

> use to it. (that is why I say the people at work

> have probably thought I am an alcolholic... because

> I look like I have partied all night sometimes when

> I did not even get the benefit of the FUN part)...

> LOL.

> Anyway, just a pudgy middle aged (did I say that?)

> nurse with a big heart. I get along with everyone I

> work with. They all seem to like me because I treat

> people right. My nurse aids would rather work with

> me than most people. LOL.

>

> And I love all of you. I wish you could all just

> beam up here like on star trek. hmmmmm?

> Ok I am getting a little wierd now. Guess I will

> go and read some more posts.

>

> Agape,

> Debra V.

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

Link to comment
Share on other sites

Thanks for the description of you! I always wonder

what people look like. The only thing I didn't

understand was 5'5 " and 196 lbs, because we use

centimeters and kilograms. But I can probably check it

on the internet sometime. I knew you are a nurse,

didn't know the age. But anyway, it was nice to read.

Now I have a little picture of you.

--

--- debra van ness wrote:

> Just was thinking how we have such wonderful hearts

> here for each other. I just thought I would give

> you all a little description of me as if you came to

> my front door.

>

> I am about 5'5 " ... I am 43 and look closer to 50

> on bad days. I am overweight which has been worse

> with the years since the fibro monster moved in full

> time. LOL. I weigh about 196 lbs. I am pudgy.

> Not real obese, but pudgy. I have blonde hair that

> I color myself... (really a true brunette.. LOL). I

> did figure out through trial and error how to get my

> hair blonde instead of orange. I have brown eyes.

> Some days when I wear makeup, I see a little hint of

> the pretty young woman I use to be. (she kind of

> faded away now)... On bad days, I scare myself in

> the mornings. LOL...... " oh no, my hair looks like

> a stack of straw " ... lol.

> I ALWAYS have the dark circles around my eyes no

> matter how much makeup I put on or don't. I look

> exhausted. No one seems to notice because they are

> use to it. (that is why I say the people at work

> have probably thought I am an alcolholic... because

> I look like I have partied all night sometimes when

> I did not even get the benefit of the FUN part)...

> LOL.

> Anyway, just a pudgy middle aged (did I say that?)

> nurse with a big heart. I get along with everyone I

> work with. They all seem to like me because I treat

> people right. My nurse aids would rather work with

> me than most people. LOL.

>

> And I love all of you. I wish you could all just

> beam up here like on star trek. hmmmmm?

> Ok I am getting a little wierd now. Guess I will

> go and read some more posts.

>

> Agape,

> Debra V.

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

Link to comment
Share on other sites

Oh Marti,

And....everyone....I just don't get it. {I understand what YOU are saying..I

just don't get other people that have left us} We've all lost sooo much and

sooo many friends and family. This disease just sucks the life out of you.

Takes everything in it's path. SIGHHHH. Kinda like a major flood. It just

sweeps everything in your life away and leaves you standing with nothing left

including your dignity. A shadow of the person you once were. Everything is

gone.

You are left damaged and alone.

I've lost everything too. Family was never really there for me but now it's

taken the rest of 'em. But friends, good friends that I thought would be there

beside me/us forever.....gone. Disappeared. Or, the couple that remain are

sooo quick to judge and talk behind your back. We've even lost the " family "

that used to include us in everything including holiday dinners (it was shared,

we did our part too. They never did ALL the work by any means). Now they've

asked us not to join them anymore b/c they have new people to come instead.

How many times have we heard them say, in a public setting, " They used to be

like family but they really weren't our family. Our family is family...they

were just *like it*. " I call it the " Pretty Woman Syndrome " where he says to

her " When did I ever treat you like a prostitute? " and says " you

just did. " That's EXACTLY how they make us feel. My hubby agrees. Sad.

My mother stole my daughter and I was too sick to fight her the last time.

the disease took me son. I have nothing left. Hubby's family are all dead, he

lost them as a teen. We have nothing left.

Oh Marti, I never intended to make this about me. I am sorry. Just feeling

sorry for myself lately is all. I was only trying to say I understood how YOU

felt and agree with you. I better sign off before I stick my foot further

down my throat. LOL.

I do appreciate you!

~Jennie

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

Link to comment
Share on other sites

Debra - You know it doesn't matter what you look like on the outside. You

have a truly beautiful spirit and I'm sure that comes out in your

personality when you are in contact with physical persons as well as us

online friends.

But thanks for sharing anyways.

Jeanne in WI

> Just was thinking how we have such wonderful hearts here for each other.

> I just thought I would give you all a little description of me as if you

> came to my front door.

>

> I am about 5'5 " ... I am 43 and look closer to 50 on bad days. I am

> overweight which has been worse with the years since the fibro monster

> moved in full time. LOL. I weigh about 196 lbs. I am pudgy. Not real

> obese, but pudgy. I have blonde hair that I color myself... (really a

> true brunette.. LOL). I did figure out through trial and error how to get

> my hair blonde instead of orange. I have brown eyes. Some days when I

> wear makeup, I see a little hint of the pretty young woman I use to be.

> (she kind of faded away now)... On bad days, I scare myself in the

> mornings. LOL...... " oh no, my hair looks like a stack of straw " ... lol.

> I ALWAYS have the dark circles around my eyes no matter how much makeup I

> put on or don't. I look exhausted. No one seems to notice because they

> are use to it. (that is why I say the people at work have probably

> thought I am an alcolholic... because I look like I have partied all night

> sometimes when I did not even get the benefit of the FUN part)... LOL.

> Anyway, just a pudgy middle aged (did I say that?) nurse with a big

> heart. I get along with everyone I work with. They all seem to like me

> because I treat people right. My nurse aids would rather work with me

> than most people. LOL.

Link to comment
Share on other sites

ok, my turn. I am 51, 65 inches tall and weigh 148 today. Not obese but

overweight some. Have brown shoulder length hair and light blue eyes.

English, irish and Cherokee ancestors. My stomach is my pudgiest part.

Do have my share of fibro pain. Also cery dry hands and painful

stomach. Seem to be frequently sick, also. Shy around people I haven't

met. Lurk most of the time here.

soft hugs,

Debbie J

Link to comment
Share on other sites

Thanks for sharing. What a wonderful person you are. I am a german indian.

LOL. Seriously I have a whole lot of german as my father was almost full blood.

My mother's mother was chrokee indian and was born on an indian reservation in

Roland Oklahoma.

So I call myself a German Indian.

Love ya Deb. My thoughts are sure with you lately.

Debra V.

deebs87 wrote:

ok, my turn. I am 51, 65 inches tall and weigh 148 today. Not obese

but

overweight some. Have brown shoulder length hair and light blue eyes.

English, irish and Cherokee ancestors. My stomach is my pudgiest part.

Do have my share of fibro pain. Also cery dry hands and painful

stomach. Seem to be frequently sick, also. Shy around people I haven't

met. Lurk most of the time here.

soft hugs,

Debbie J

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Link to comment
Share on other sites

>

> So I call myself a German Indian.

> Love ya Deb. My thoughts are sure with you lately.

> Debra V.

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo!

Search.

>

>

Link to comment
Share on other sites

Hi Debra, Sorry so long.

I was trying to catch up on some e-mails - only have 700 to go (did someone

say mass delete - I'll have to unfortunately) and yours intrigued me. It would

be so great if we could all get together and have a " convention " somewhere, but

don't think that's going to happen for numerous reasons - cost being a main one.

Some of us that live close together maybe could meet one day.

But what intrigues me the most is that we've become friends/family over the

Internet where we can't see each other and so our impressions of each other are

not biased by looks. Whether we want to or not the way someone looks, being

that it's the first thing we see, affects the way we hear what they say. On

here I think our true selves can come out, even if a little at a time, until we

actually know more about each other than if we did meet. There's something to

be said for being anonymous. There's no one to tell or gossip to that even

knows us and we don't have to worry about what our families or friends might

think when we are writing from our hearts. I feel like we can tell things about

us and our lives that we wouldn't want our families to know we are telling.

Anyway this whole thing led me to want to follow suit with Debra and give my

description.

Debra, you sound a lot like me. I am 5'5 " (and haven't started shrinking yet,

yay!), but I'm 59 and this will be the year of the big 60 in September. I used

to look 10 years younger that I was and now I guess I look about my age. I have

blue eyes and color my hair blond, although it has always been blond until the

grey came in with a vengeance about 10 years ago. I'm trying to stay about the

same color that I was before. It has a lot of ash in the color and not a lot of

yellowish blond, so the grey blends some. My hair has also started thinning out

and my full, too thick hair - that I used to complain about taking forever to

dry - is not so full anymore. Right now it's long, about 3 " below my shoulders,

but I'm planning to get it cut about 2 to 3 " soon. It's all one length.

I have very pale skin, but can tan - don't have the kind of skin that just

burns and peels. Don't tan anymore of course, but my face could surely use the

color. I am overweight. I weighed 200 at my last doctor's visit, although just

3 months before I weighed 180, and 3 months before that 160. The doctor says the

Prednisone has really added the water weight and when I come off of it I will go

back down. We'll see. My face used to be an oval and now it's more like a blow

fish and my legs (my socks I've worn for years leave marks where they end now)

and arms are puffy. Even my glasses make indentations on the sides of my face

because of the puffiness. Before Fibro I weighed 130 for many, many years and

didn't have to worry about what I ate. I was one of the lucky ones until 50. I

exercised a lot, playing tennis and walking mostly and looked like I would love

to look again and, as you said, I see glimpses of that person occasionally. I

had to have a picture taken

for my website that is being redone (on Autism and Asperger Syndrome) and

looking at pictures from last May, I don't even seem to resemble that person in

the picture.

Of course there are the tell tale dark circles all around my eyes, along with

the bags and droopiness that didn't use to be there. I always had some darkness

under my eyes that doctors call allergy eyes, but I could hide it with makeup.

Forget that now. Sarcoidosis added to some of that and my eyes that used to be

my best feature have red and yellow where the white is supposes to be, also from

the sarcoid.

I too look exhausted, but can hide it with makeup for part of the day. As the

day wears on nothing can hide it. I do hear it all the time. Don't know which

is better - for people to notice or not. I kind of think noticing is better

because at least they are looking at me. Most of the time I just feel ignored.

I too have a big heart and get emotional about things happening to other

people, animals, cartoons, movies. I am a very loyal friend and even though I

wear my feelings on my sleeve and can get hurt, I also get over it quickly and

" letitgo " (I generally say it like it's one word.) I never hold grudges. I've

been trying to work on toughening up my skin and it's working somewhat. I've

become down over the people who I thought were the best of my friends, but who

have drifted away as the fibro, etc has made me less available and fun. Making

plans and having to cancel because I don't feel well (or hurt like hell) has

driven both friends and family away. Some friendships I've had for many years

and thought would last forever have just disappeared without any explanation.

This part of the disease is the hardest for me. I would never do that to a

friend and will never understand why it happens.

Well that's about as long a description as anyone has ever written I'm sure.

I get long winded sometime - funny because right now I'm very short winded.

I love you all and appreciate your being here for me. I really need it. You

are mostly all I have, with a few exceptions.

Marti

debra van ness wrote:

Just was thinking how we have such wonderful hearts here for each

other. I just thought I would give you all a little description of me as if you

came to my front door.

I am about 5'5 " ... I am 43 and look closer to 50 on bad days. I am overweight

which has been worse with the years since the fibro monster moved in full time.

LOL. I weigh about 196 lbs. I am pudgy. Not real obese, but pudgy. I have blonde

hair that I color myself... (really a true brunette.. LOL). I did figure out

through trial and error how to get my hair blonde instead of orange. I have

brown eyes. Some days when I wear makeup, I see a little hint of the pretty

young woman I use to be. (she kind of faded away now)... On bad days, I scare

myself in the mornings. LOL...... " oh no, my hair looks like a stack of

straw " ... lol.

I ALWAYS have the dark circles around my eyes no matter how much makeup I put on

or don't. I look exhausted. No one seems to notice because they are use to it.

(that is why I say the people at work have probably thought I am an

alcolholic... because I look like I have partied all night sometimes when I did

not even get the benefit of the FUN part)... LOL.

Anyway, just a pudgy middle aged (did I say that?) nurse with a big heart. I get

along with everyone I work with. They all seem to like me because I treat people

right. My nurse aids would rather work with me than most people. LOL.

And I love all of you. I wish you could all just beam up here like on star trek.

hmmmmm?

Ok I am getting a little wierd now. Guess I will go and read some more posts.

Agape,

Debra V.

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Link to comment
Share on other sites

Isn't if funny about us Southerm Girls and our makeup. I live in CT now and

don't give it much though. If I feel well enough or am going somewhere special

I put on makeup. But I was raised down south and always had some makeup on

before I left the house, heck even in the house.

Marti

Nd wrote:

thanks for telling us Debra.

how many of us are candid enough to really tell a

stranger who can not see us , what we really look

like.

I just turned 54 on the 15th, have loved being a

paramedic and miss being on the trucks now.

my hair was red (now snow white/silver).blue eyes and

my irish ancestors decided i should have a light

complextion that sunburns in 15minutes then more

freckles pop.lol

i used to never leave the house with out at least

mascara (what good southern girl does). but now a days

it just seems even that takes too much energy.

I love your description of pudgy. I call it short and

compacted. and i can tell all of the partners i have

had on the ambulance. " well at least i can stand up in

the dang thing with out busting my head "

Diane

--- debra van ness wrote:

> Just was thinking how we have such wonderful hearts

> here for each other. I just thought I would give

> you all a little description of me as if you came to

> my front door.

>

> I am about 5'5 " ... I am 43 and look closer to 50

> on bad days. I am overweight which has been worse

> with the years since the fibro monster moved in full

> time. LOL. I weigh about 196 lbs. I am pudgy.

> Not real obese, but pudgy. I have blonde hair that

> I color myself... (really a true brunette.. LOL). I

> did figure out through trial and error how to get my

> hair blonde instead of orange. I have brown eyes.

> Some days when I wear makeup, I see a little hint of

> the pretty young woman I use to be. (she kind of

> faded away now)... On bad days, I scare myself in

> the mornings. LOL...... " oh no, my hair looks like

> a stack of straw " ... lol.

> I ALWAYS have the dark circles around my eyes no

> matter how much makeup I put on or don't. I look

> exhausted. No one seems to notice because they are

> use to it. (that is why I say the people at work

> have probably thought I am an alcolholic... because

> I look like I have partied all night sometimes when

> I did not even get the benefit of the FUN part)...

> LOL.

> Anyway, just a pudgy middle aged (did I say that?)

> nurse with a big heart. I get along with everyone I

> work with. They all seem to like me because I treat

> people right. My nurse aids would rather work with

> me than most people. LOL.

>

> And I love all of you. I wish you could all just

> beam up here like on star trek. hmmmmm?

> Ok I am getting a little wierd now. Guess I will

> go and read some more posts.

>

> Agape,

> Debra V.

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

Link to comment
Share on other sites

I think it's fun learning what people look like.

Marti

Svensson wrote:

Thanks for the description of you! I always wonder

what people look like. The only thing I didn't

understand was 5'5 " and 196 lbs, because we use

centimeters and kilograms. But I can probably check it

on the internet sometime. I knew you are a nurse,

didn't know the age. But anyway, it was nice to read.

Now I have a little picture of you.

--

--- debra van ness wrote:

> Just was thinking how we have such wonderful hearts

> here for each other. I just thought I would give

> you all a little description of me as if you came to

> my front door.

>

> I am about 5'5 " ... I am 43 and look closer to 50

> on bad days. I am overweight which has been worse

> with the years since the fibro monster moved in full

> time. LOL. I weigh about 196 lbs. I am pudgy.

> Not real obese, but pudgy. I have blonde hair that

> I color myself... (really a true brunette.. LOL). I

> did figure out through trial and error how to get my

> hair blonde instead of orange. I have brown eyes.

> Some days when I wear makeup, I see a little hint of

> the pretty young woman I use to be. (she kind of

> faded away now)... On bad days, I scare myself in

> the mornings. LOL...... " oh no, my hair looks like

> a stack of straw " ... lol.

> I ALWAYS have the dark circles around my eyes no

> matter how much makeup I put on or don't. I look

> exhausted. No one seems to notice because they are

> use to it. (that is why I say the people at work

> have probably thought I am an alcolholic... because

> I look like I have partied all night sometimes when

> I did not even get the benefit of the FUN part)...

> LOL.

> Anyway, just a pudgy middle aged (did I say that?)

> nurse with a big heart. I get along with everyone I

> work with. They all seem to like me because I treat

> people right. My nurse aids would rather work with

> me than most people. LOL.

>

> And I love all of you. I wish you could all just

> beam up here like on star trek. hmmmmm?

> Ok I am getting a little wierd now. Guess I will

> go and read some more posts.

>

> Agape,

> Debra V.

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

---------------------------------

Never miss a thing. Make Yahoo your homepage.

Link to comment
Share on other sites

Well said Angie. I think we all feel the same as you. I too wear my heart my

my sleeve as my dad put it. I'm now finally learning to wait and see method.

thank god my best friend in the whole world is still my best friend. she tells

me she is in awe on how I handle all that pain. Well what else can I do I tell

her. and she is interested in Fibro and has looked it up on the internet so she

can better understand what I am going thru.

anyway glad to sort of meet you.

Little

LINDA

---------------------------------

Never miss a thing. Make Yahoo your homepage.

Link to comment
Share on other sites

Jeanne, you have a huge family now. the group and we care about you so very

much. I know that things you have written to me have made a hugh impact. So

remember how to get ahold of your " family " anytime. We'll come a running.

God bless

Little

LINDA

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Link to comment
Share on other sites

Jennie, it's just so true. I wish there were someway to find out why they go

away. I know it's something I would never do and couldn't imagine them doing it

either. We use to have Thanksgiving with one of these friends. We were

friends, lived across the street from each other, in Georgia. They ended up

moving to Maine and we came to CT. Neither of us had family to have

Thanksgiving with so we started rotating one year we'd go to Maine and the other

year they'd come to CT. Then a few years ago - nothing. We'd known each other

and she and I were so close since our children were born. The kids were very

close. Mine were 2 years younger that hers. The whole families were close. We

laughed, told our secrets to each other and loved each other. It's gone. I

don't have any idea why or how such a thing can happen. They were truly closer

than family, because my dad died and my mother and I are not close and my

brother died. It makes no sense. It doesn't compute. We

had gone to her youngest sons wedding in Maine and they had come to my

daughter's wedding. Then her oldest son gets married last year in Georgia and

we didn't even get an invitation. All correspondence is cut off. If I call her

on the phone, which I have stopped doing, she will talk to me acting as if

nothing is different and then go on about her business. We vacationed together.

There is another family just as close who I've been friends with since

college. We couldn't have been closer. When we had our children they became

best friends too. When we moved to CT they stayed in Georgia and we took turns

every year going back and forth to see each other. Constantly talked on the

phone. Exchanged presents and cards. We were family. We have grandchildren

the same ages. Two Thanksgivings ago I called and left a message.and no one

returned it. I just thought it got lost. I called back a few days later and

left another message. I haven't heard anything from them since then. It's like

I fell off the face of the earth. It doesn't make sense.

I could go on and on, but it's too much. These things depress me more than

the pain and foggy brain and not being able to get around or work. I know I

should let it go but I still want to know why.

Anyway, didn't mean to go on and on, but we have suffered the same plight and

it hurts like hell.

Take care, Marti

jenniesattic@... wrote:

Oh Marti,

And....everyone....I just don't get it. {I understand what YOU are saying..I

just don't get other people that have left us} We've all lost sooo much and

sooo many friends and family. This disease just sucks the life out of you.

Takes everything in it's path. SIGHHHH. Kinda like a major flood. It just

sweeps everything in your life away and leaves you standing with nothing left

including your dignity. A shadow of the person you once were. Everything is

gone.

You are left damaged and alone.

I've lost everything too. Family was never really there for me but now it's

taken the rest of 'em. But friends, good friends that I thought would be there

beside me/us forever.....gone. Disappeared. Or, the couple that remain are

sooo quick to judge and talk behind your back. We've even lost the " family "

that used to include us in everything including holiday dinners (it was shared,

we did our part too. They never did ALL the work by any means). Now they've

asked us not to join them anymore b/c they have new people to come instead.

How many times have we heard them say, in a public setting, " They used to be

like family but they really weren't our family. Our family is family...they

were just *like it*. " I call it the " Pretty Woman Syndrome " where he says to

her " When did I ever treat you like a prostitute? " and says " you

just did. " That's EXACTLY how they make us feel. My hubby agrees. Sad.

My mother stole my daughter and I was too sick to fight her the last time.

the disease took me son. I have nothing left. Hubby's family are all dead, he

lost them as a teen. We have nothing left.

Oh Marti, I never intended to make this about me. I am sorry. Just feeling

sorry for myself lately is all. I was only trying to say I understood how YOU

felt and agree with you. I better sign off before I stick my foot further

down my throat. LOL.

I do appreciate you!

~Jennie

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

Link to comment
Share on other sites

I am so glad you still have your best friend. I don't know what happened to

mine and losing her is worse than my divorce was. I love what she tells you and

how she supports you.

Marti

wrote:

Well said Angie. I think we all feel the same as you. I too wear my

heart my my sleeve as my dad put it. I'm now finally learning to wait and see

method. thank god my best friend in the whole world is still my best friend. she

tells me she is in awe on how I handle all that pain. Well what else can I do I

tell her. and she is interested in Fibro and has looked it up on the internet so

she can better understand what I am going thru.

anyway glad to sort of meet you.

Little

LINDA

---------------------------------

Never miss a thing. Make Yahoo your homepage.

Link to comment
Share on other sites

Jeanne, What Little said is so true. Always remember we are here. And

since I don't have any family maybe we can be each others. Write me anytime,

except of course when I am in the hospital and don't tell anyone.

Take care,

Marti

wrote:

Jeanne, you have a huge family now. the group and we care about you so

very much. I know that things you have written to me have made a hugh impact. So

remember how to get ahold of your " family " anytime. We'll come a running.

God bless

Little

LINDA

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Link to comment
Share on other sites

You know ya'll we must have all been abducted by

aliens as we sound like we are in a parrell world.

I was trying to explain to my mother in law about

this last diagnosis when they MRI'd my neck, and she

said what else are they going to find wrong? don't ask

...

Then she told me I was a victim , .. Yep thats me a

victim of life of hard knocks.

she said go to the physch people. .

Then I remembered what a doctor told my mom when i was

12. He, being and USAF doctor told my mom " you know

your daughter has a spastic colon, it is problably

because of your husbands/daddy's classification. "

(my dad is still MIA) and it was freakin crohn's

trying to rear up.

Well , I am not a victim, crap,. I lost my son to

M.D. I have been divorced x2. and i have seen it all

from the back of the ambulance. I don't or have always

stood true to we might loose the battle but we are not

done with fighting . but this dang fibro ,,.

kudo's and high five's to all

Diane

--- jenniesattic@... wrote:

> Oh Marti,

>

> And....everyone....I just don't get it. {I

> understand what YOU are saying..I

> just don't get other people that have left us} We've

> all lost sooo much and

> sooo many friends and family. This disease just

> sucks the life out of you.

> Takes everything in it's path. SIGHHHH. Kinda like a

> major flood. It just

> sweeps everything in your life away and leaves you

> standing with nothing left

> including your dignity. A shadow of the person you

> once were. Everything is gone.

> You are left damaged and alone.

>

> I've lost everything too. Family was never really

> there for me but now it's

> taken the rest of 'em. But friends, good friends

> that I thought would be there

> beside me/us forever.....gone. Disappeared. Or, the

> couple that remain are

> sooo quick to judge and talk behind your back.

> We've even lost the " family "

> that used to include us in everything including

> holiday dinners (it was shared,

> we did our part too. They never did ALL the work by

> any means). Now they've

> asked us not to join them anymore b/c they have new

> people to come instead.

> How many times have we heard them say, in a public

> setting, " They used to be

> like family but they really weren't our family. Our

> family is family...they

> were just *like it*. " I call it the " Pretty Woman

> Syndrome " where he says to

> her " When did I ever treat you like a prostitute? "

> and says " you

> just did. " That's EXACTLY how they make us feel. My

> hubby agrees. Sad.

>

> My mother stole my daughter and I was too sick to

> fight her the last time.

> the disease took me son. I have nothing left.

> Hubby's family are all dead, he

> lost them as a teen. We have nothing left.

>

> Oh Marti, I never intended to make this about me. I

> am sorry. Just feeling

> sorry for myself lately is all. I was only trying to

> say I understood how YOU

> felt and agree with you. I better sign off before I

> stick my foot further

> down my throat. LOL.

>

> I do appreciate you!

> ~Jennie

>

>

>

>

>

>

> **************Biggest Grammy Award surprises of all

> time on AOL Music.

>

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

> 48)

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

Link to comment
Share on other sites

Yes I am very fortunate to have had her in my life for 30 years now. We

have laugh, cried, traveled, raised kids together and been thru hell and

back. I wish everyone had a friend like Jan. I can tell her anything

and she never judges. I would certainly share her if I could. She is

so happy I found this group. She sends me all kinds of jokes and sweet

pictures of animals which I share with some of the group. I think I

have sent you a few. If not I will from now on if it's okay with you.

And feel free to e-mail me privately and we can become good friends.

Can't have too many of them.

So as of now you have a good friend waiting if you want one.

Hope your day was a good one.

god bless and take good care of you.

Little

> Well said Angie. I think we all feel the same as you. I too

wear my heart my my sleeve as my dad put it. I'm now finally learning to

wait and see method. thank god my best friend in the whole world is

still my best friend. she tells me she is in awe on how I handle all

that pain. Well what else can I do I tell her. and she is interested in

Fibro and has looked it up on the internet so she can better understand

what I am going thru.

> anyway glad to sort of meet you.

> Little

>

> LINDA

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

Link to comment
Share on other sites

Me too Debra, German and Irish I mean. Don't we have just the neatest

of friends here in this group? Love it here. Love and hugs. (brar hugs

gently)

Little

> ok, my turn. I am 51, 65 inches tall and weigh 148 today.

Not obese but

> overweight some. Have brown shoulder length hair and light blue eyes.

> English, irish and Cherokee ancestors. My stomach is my pudgiest part.

> Do have my share of fibro pain. Also cery dry hands and painful

> stomach. Seem to be frequently sick, also. Shy around people I haven't

> met. Lurk most of the time here.

> soft hugs,

> Debbie J

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo!

Search.

>

>

Link to comment
Share on other sites

Hey we are the same age!! I'm divorced, going on 17 years. so glad you

are getting to move back to Illinois if that's what makes you happy. I

live in Las Vegas now but I'm from beautiful Southern Oregon. Oh how

I'd love to be back in the trees and mountains. Nice meeting you, per

say.

We are all in the same boat as far as pain goes. when I hurt I can't

stand to be touched it hurts so bad. Of course no one offers to rub my

back. lol.

Have a nice sunday.

Little

> >

>

> > So I call myself a German Indian.

> > Love ya Deb. My thoughts are sure with you lately.

> > Debra V.

> >

>

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with Yahoo!

> Search.

> >

> >

Link to comment
Share on other sites

I'm so sorry you had to go through that. What a nasty thing for your

mother-in-law to say. Does she think everyone who has things wrong with them

are victims? How about her? Is she perfect? I doubt it.

Take care - you have an understanding family here.

Marti

Nd wrote:

You know ya'll we must have all been abducted by

aliens as we sound like we are in a parrell world.

I was trying to explain to my mother in law about

this last diagnosis when they MRI'd my neck, and she

said what else are they going to find wrong? don't ask

....

Then she told me I was a victim , .. Yep thats me a

victim of life of hard knocks.

she said go to the physch people. .

Then I remembered what a doctor told my mom when i was

12. He, being and USAF doctor told my mom " you know

your daughter has a spastic colon, it is problably

because of your husbands/daddy's classification. "

(my dad is still MIA) and it was freakin crohn's

trying to rear up.

Well , I am not a victim, crap,. I lost my son to

M.D. I have been divorced x2. and i have seen it all

from the back of the ambulance. I don't or have always

stood true to we might loose the battle but we are not

done with fighting . but this dang fibro ,,.

kudo's and high five's to all

Diane

--- jenniesattic@... wrote:

> Oh Marti,

>

> And....everyone....I just don't get it. {I

> understand what YOU are saying..I

> just don't get other people that have left us} We've

> all lost sooo much and

> sooo many friends and family. This disease just

> sucks the life out of you.

> Takes everything in it's path. SIGHHHH. Kinda like a

> major flood. It just

> sweeps everything in your life away and leaves you

> standing with nothing left

> including your dignity. A shadow of the person you

> once were. Everything is gone.

> You are left damaged and alone.

>

> I've lost everything too. Family was never really

> there for me but now it's

> taken the rest of 'em. But friends, good friends

> that I thought would be there

> beside me/us forever.....gone. Disappeared. Or, the

> couple that remain are

> sooo quick to judge and talk behind your back.

> We've even lost the " family "

> that used to include us in everything including

> holiday dinners (it was shared,

> we did our part too. They never did ALL the work by

> any means). Now they've

> asked us not to join them anymore b/c they have new

> people to come instead.

> How many times have we heard them say, in a public

> setting, " They used to be

> like family but they really weren't our family. Our

> family is family...they

> were just *like it*. " I call it the " Pretty Woman

> Syndrome " where he says to

> her " When did I ever treat you like a prostitute? "

> and says " you

> just did. " That's EXACTLY how they make us feel. My

> hubby agrees. Sad.

>

> My mother stole my daughter and I was too sick to

> fight her the last time.

> the disease took me son. I have nothing left.

> Hubby's family are all dead, he

> lost them as a teen. We have nothing left.

>

> Oh Marti, I never intended to make this about me. I

> am sorry. Just feeling

> sorry for myself lately is all. I was only trying to

> say I understood how YOU

> felt and agree with you. I better sign off before I

> stick my foot further

> down my throat. LOL.

>

> I do appreciate you!

> ~Jennie

>

>

>

>

>

>

> **************Biggest Grammy Award surprises of all

> time on AOL Music.

>

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

> 48)

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

Link to comment
Share on other sites

Well I have " me disease " . I am definitely in PTSD mode at the moment, I was an

internet addict and in the last few weeks as this disease has exacerbated I

havent even had the energy to dial in. I was reading the posts and thinking g-d

we're a lot of whinger's and then thinking that's what other people think of me,

that I'm just a whinger, how horrible that my life is now defined not what a

great parent I am or what things I have accomplished but that all I can do is

talk about which bit hurts the most. This monster has totally taken over my life

and I can't get out from under it. I am waking up in the middle of the night, I

can't sleep, I tremor now, although I think it's the meds, in fact I think a lot

of my new symptoms are medication reactions not real symptoms, but at the end of

the day I feel like I have been hit by a bus and that's that I guess.

It does not help of course that I was fired from my job because of my dog and

now knowing that they will have to pay me out, they have gone down my medical

records and are now trying to build a case that I am mentally ill and thus

" should never have been hired in the first place " . I find it just terrible that

they have access to my medical records and that they can use one Dr's ignorance

about FM to claim such terrible things about me. Lucky for me my test results

are all positive for FM so I am not worried about a case, I am just so upset

that my life has become my medical condition. How sad.

the real me just gets up every day thats all.

Re: ever wonder what I look like... here is a description

Oh Marti,

And.....everyone....I just don't get it. {I understand what YOU are saying..I

just don't get other people that have left us} We've all lost sooo much and

sooo many friends and family. This disease just sucks the life out of you.

Takes everything in it's path. SIGHHHH. Kinda like a major flood. It just

sweeps everything in your life away and leaves you standing with nothing left

including your dignity. A shadow of the person you once were. Everything is

gone.

You are left damaged and alone.

I've lost everything too. Family was never really there for me but now it's

taken the rest of 'em. But friends, good friends that I thought would be there

beside me/us forever.....gone. Disappeared. Or, the couple that remain are

sooo quick to judge and talk behind your back. We've even lost the " family "

that used to include us in everything including holiday dinners (it was shared,

we did our part too. They never did ALL the work by any means). Now they've

asked us not to join them anymore b/c they have new people to come instead.

How many times have we heard them say, in a public setting, " They used to be

like family but they really weren't our family. Our family is family...they

were just *like it*. " I call it the " Pretty Woman Syndrome " where he says to

her " When did I ever treat you like a prostitute? " and says " you

just did. " That's EXACTLY how they make us feel. My hubby agrees. Sad.

My mother stole my daughter and I was too sick to fight her the last time.

the disease took me son. I have nothing left. Hubby's family are all dead, he

lost them as a teen. We have nothing left.

Oh Marti, I never intended to make this about me. I am sorry. Just feeling

sorry for myself lately is all. I was only trying to say I understood how YOU

felt and agree with you. I better sign off before I stick my foot further

down my throat. LOL.

I do appreciate you!

~Jennie

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

Link to comment
Share on other sites

I think meant that for Jennie. I have family still, but you guys are

better than family because you know and understand what it's like to be a

fibromite. Love you guys.

Jeanne in WI

> Jeanne, What Little said is so true. Always remember we are here.

> And since I don't have any family maybe we can be each others. Write me

> anytime, except of course when I am in the hospital and don't tell anyone.

> Take care,

> Marti

>

> wrote:

> Jeanne, you have a huge family now. the group and we care about

> you so very much. I know that things you have written to me have made a

> hugh impact. So remember how to get ahold of your " family " anytime. We'll

> come a running.

> God bless

> Little

Link to comment
Share on other sites

>

> Okay.

> Debra, you started this.

> I am 61 and now look it thanks to Fibro, 4' 10 " and about 128 lbs.

Oh I can still remember being 93 lbs. Thanks to the med. " s. it's no

more. Was pretty cute at one time so I was told. Brown hair

streaked with blonde, hazel green eyes and love to laugh,smile and

tell jokes. I also enjoy helping others. Have had a pretty good

life with some big time losses. But I have survived and will

continue to thru this group.

> I live in Las Vegas with my aunt and have for almost a year after

leaving beautiful Oregon.

> I have a little Yorki that I love dearly and is spoiled rotten.

> I got the nickname of lilbit because I'm so short.

> Love this group.

> Little

>

> If I were not taking all of the meds I do, I might be back to at

least 140! When we got married in 1986, I weighted 110 (looking at

those pictures when I have short sleeves on, scare me today, but as

my late father-in-law used to loved to take me out for a big southern

style breakfast and not gain a pound, it must have been my

metobolism!) The other bit with the weight is lack of exercise, but

how do you do that when it seems you fall or hurt yourself everytime

you try???)

> LINDA

>

>

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo!

Search.

>

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...