Bonnie

[Guest guest]

Bonnie

Hi!!! Hi!!! Hi!!!!, LOL!!!!! I have a lot of challenges, but at least I am

still here. Am begining to feel a little better each day. Hi Everybody!

Just

signed back on list....need to keep my mind off of stuff, if you know what I

mean.

Hugs,

Sue

~~~~~~~

Yeah! One day at a time is GOOD!!!

Bonnie

[Guest guest]

HI SUE,

Boy have I missed you. Good to see you back and to know that you are

again feeling up to spending a little time up and about.

Hope your recovery continues and that you are back to your old self

soon.

Missed You and thinking of you all the time...

...... MERRY CHRISTMAS and a HAPPY and HEALTHY NEW YEAR to YOU and

YOUR FAMILY .....

Sharon (shazinoz)

> In a message dated 12/16/03 9:17:22 AM Eastern Standard Time,

> bonnieh4455@s... writes:

>

> << Welcome back to the list! Glad to see you here!!! Hope you are

feeling

> better now, at least a little! >>

>

> Hi!!! Hi!!! Hi!!!!, LOL!!!!! I have a lot of challenges, but at

least I am

> still here. Am begining to feel a little better each day. Hi

Everybody! Just

> signed back on list....need to keep my mind off of stuff, if you

know what I

> mean.

>

> Hugs,

> Sue

[Guest guest]

In a message dated 12/16/03 5:50:05 PM Eastern Standard Time,

shazzinoz@... writes:

<< Missed You and thinking of you all the time...

..... MERRY CHRISTMAS and a HAPPY and HEALTHY NEW YEAR to YOU and

YOUR FAMILY .....

Sharon (shazinoz) >>

Same here, Sharon! How is my twin, LOL!!!

Hugs,

Sue

[Guest guest]

Bonnie,

You just put into writing what a friend of mine who has FM said - my

body " hates " itself and because of all the immunosuppression I have

gone thru due to illnesses and meds themselves, I have no defenses

whatsoever! But I fight back in little ways, while I wait for my dx,

I do what I can do and leave the rest for another day. My house won't

be condemned today, mostly thanks to DH who hates clutter. My kids

will survive if we have to have " reruns " for dinner! Right now,

selfish as it may sound, I have gotta take care of " me " . If that

means I sleep because the meds knock me out, so be it. If that means

I eat or follow a specific food plan, then pat me on the back and let

me be! I know I have to go back to the kids' school and take myself

off one of the volunteer days I was doing. I am so open to any

infection right now (too much prednisone due to the asthma) and

spending 2 days with kids is 1 day too much. I don't want to give up

the 1st day however because I'm working with special needs kids (like

mine are) and it helps me to know that someday they'll have someone

in their classroom to help them out.

I am enjoying this list. I know I'll enjoy getting to know everyone.

I feel far stronger mentally after doing my own research that I am on

the right track health-wise as far as moving toward a diagnosis. And

if noone " gets it " , well, they can take their negative selves

someplace else! My house will be my refuge and I will work on healing

as much as I can.

Darlene

>

> My life is sooo traumatic I don't know WHICH one caused the FM.

> My first husband sent me to a women's refuse and convent,

> My second husband tried to kill me, then killed himself and my baby

son.

> I too almost died with the birth of my second and third children.

> Both are autistic, one is home schooled, my divorce 5 years ago was

> horrific during which I was held hostage by my divorce lawyer.

> I started having syptoms after a saw him again after a 2 year

absence.

> Do I think he caused it NO, do I think my body was ready for this

> OHHHHHH YYYYEESSS, I think everyone expresses " symptoms "

> in their own way, I think there are drunks, drug addicts and then

the mentally

> ill and then I think there is US. If " depression " is " anger turned

inward "

> then we are the people who have learnt to channel their

> feelings inward and " pain " is an expression of the things we can't

> get rid of so we just " toxic build " those feelings until they

literally

> hurt our system, now if anyone can build us a pain dialysis we are

> onto a winner. I firmly beleive that within the next 5 years FM

will be

> diagnosed as a " toxic " build up of something in our system.

>

> Bonnie

[Guest guest]

Hi Darlene,

My friend gave me a big picture, its him standing inside a cave looking out into

the bush, I have it in my bedroom and every morning I wake up and look at " me "

standing in my cave looking out into the bush and I lie there until I am bloody

good an ready to leave my cave and deal with the day, if its ten minutes their

my TEN MINUTES, if I'm in pain I take my meds and wait til they kick in but at

the end of the day it's MY CAVE and if you don't want to visit don't come

because right now in my life I only want people who understand that I am

crippled by this thing.

I am essentially a baby working out where my limitations are and I don't need

anyone interfering with that process. Anyone who has the " Shoulds and Musts "

needs to leave because they are simply imposing on me what I can't deliver right

now. Roo says I sound militant but its not militance its dogma, I am dogged in

that I know what I am doing right now in my living room is far better therapy

than at some Dr's office where all they have to talk about is pills. If pills

fixed it then I would be cured by now I rattle so much, so since they can't help

I have to find my own way and today its clean my bathroom day, (should take a

few hours at my speed).

Have fun

BOnnie

Re: Bonnie

Bonnie,

You just put into writing what a friend of mine who has FM said - my

body " hates " itself and because of all the immunosuppression I have

gone thru due to illnesses and meds themselves, I have no defenses

whatsoever! But I fight back in little ways, while I wait for my dx,

I do what I can do and leave the rest for another day. My house won't

be condemned today, mostly thanks to DH who hates clutter. My kids

will survive if we have to have " reruns " for dinner! Right now,

selfish as it may sound, I have gotta take care of " me " . If that

means I sleep because the meds knock me out, so be it. If that means

I eat or follow a specific food plan, then pat me on the back and let

me be! I know I have to go back to the kids' school and take myself

off one of the volunteer days I was doing. I am so open to any

infection right now (too much prednisone due to the asthma) and

spending 2 days with kids is 1 day too much. I don't want to give up

the 1st day however because I'm working with special needs kids (like

mine are) and it helps me to know that someday they'll have someone

in their classroom to help them out.

I am enjoying this list. I know I'll enjoy getting to know everyone.

I feel far stronger mentally after doing my own research that I am on

the right track health-wise as far as moving toward a diagnosis. And

if noone " gets it " , well, they can take their negative selves

someplace else! My house will be my refuge and I will work on healing

as much as I can.

Darlene

>

> My life is sooo traumatic I don't know WHICH one caused the FM.

> My first husband sent me to a women's refuse and convent,

> My second husband tried to kill me, then killed himself and my baby

son.

> I too almost died with the birth of my second and third children.

> Both are autistic, one is home schooled, my divorce 5 years ago was

> horrific during which I was held hostage by my divorce lawyer.

> I started having syptoms after a saw him again after a 2 year

absence.

> Do I think he caused it NO, do I think my body was ready for this

> OHHHHHH YYYYEESSS, I think everyone expresses " symptoms "

> in their own way, I think there are drunks, drug addicts and then

the mentally

> ill and then I think there is US.. If " depression " is " anger turned

inward "

> then we are the people who have learnt to channel their

> feelings inward and " pain " is an expression of the things we can't

> get rid of so we just " toxic build " those feelings until they

literally

> hurt our system, now if anyone can build us a pain dialysis we are

> onto a winner. I firmly beleive that within the next 5 years FM

will be

> diagnosed as a " toxic " build up of something in our system.

>

> Bonnie

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

I am so sorry to hear about your BC. It is curable these days so I will keep

good thoughts and pray for a great outcome. Glad to hear you have a court date

now for the education stuff for your child. Here if you need a friend.

Hugs,

Kate Court wrote:

Yeah! Score one for our side.

Well I got some good news I finally get my lumpectomy for my br ca, its next

friday. I can't wait for it to be over because it scares my kids, at least being

sick with FM means I am still gonna be around but br ca is too uncertain for all

of us. AND then after 6 years my son who is 12 his case will finally be heard in

court. The Education Department refuses to give him a school so now we finally

get to go to court and have our day which is awesome because after 6 years of

home schooling I am so ready for a payout that allows me to hire a few tutors.

Yeah !!!

Bonnie

No, I didn't fall off the face of the earth! LOL

Okay, well it's been a whole month since being fired for being out too much

due to my fibromyalgia. I did file for unemployment, and according to their

scales I was to get a whopping $348 a week. Woo Hoo! That doesn't even cover

daycare expenses for my two, which is over $400 a week. But, MedAssurant

decides to fight my getting unemployment, as it makes it's rates go up on

their unemployment insurance. I was sent a notice for an appointment time,

that I had to remain at home for, by the phone. She and I were on the phone

over an hour. When I told her why I was fired, she didn't believe me, so I

read her the letter from the company firing me. She was dumbfounded! I also

had to explain what fibromyalgia was, and even spell it for her. Well over

the last three weeks, the state found in my favor, I got a check for the

last three weeks, I've only had two small flares, gone back to church, and I

got hired for my dream job! I will be working in property management again,

for a smaller PM company. While I have been hired as the Leasing Consultant,

I've been told that after my 90 days they will more than likely go ahead and

promote me to site/property manager, which I will be doing the job managing

the property anyways. I love my new boss. She's even going to take me

shopping to pick out things to update the lounge (It's a college community),

set the hours for the office, etc. She also has a son my son's age, and due

with her second child. The company is going to put me through industry

certification in March, too.

I'm so excited! I'm taking a lot of supplements, particularly the B vitamins

(Thank You, !), and have more energy.

Well, gotta run!

Catch you guys later!

Kiley