Re: In response to Lyrica/ ladyriddick

[Guest guest]

I have 4 cousins with Lupus, another one with Fibro

and some connective tissue problem to quote her

doctor.

now these cousins are both maternal, and paternal.

my sisters also have OA and Fibro.

all of these relatives are female.

when i went through the he-- week the first time the

Crohns showed its evilness, i was hospitalized 2 weeks

, saw every doctor in the lists of specialties. even a

infectious dieases man . i saw him cause that actually

thought i picked up some weird disease from the troops

we were transporting on air evac that were coming home

from desert storm.

i ran a 107 fever, gastro system went on dam break.

and it was like i had polio. not able to move legs and

if anyone touched me i would scream from the pain.

then biospies all came back crohns.

but pain always here and back then too.

oncology doctors even said.. well there is some type

of inflamatory problem too.

my white count is always high, and i produce to many

platelets.

does any one else do that with lab work?

Diane

--- ladyriddick01 wrote:

> I to have Lupus and when I had a flare in 2005,I was

> on a number of

> drugs and it wasnt because they were for Lupus,it

> was because the

> doctors go through a process of elimination. There

> are some drugs

> that help and some that do nothing. I was on meds

> that they give

I

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

Are there definitive tests to determine if you have Lupus. I remember the

doctors thinking I had Lupus before I was dx with Fibro as one of many things

they ruled out, but I don't remember how they ruled it out. My daughter is

having symptoms that might point to Lupus and she is going to be tested, but

don't know how. I would surely like to know.

Marti

Nd wrote:

I have 4 cousins with Lupus, another one with Fibro

and some connective tissue problem to quote her

doctor.

now these cousins are both maternal, and paternal.

my sisters also have OA and Fibro.

all of these relatives are female.

when i went through the he-- week the first time the

Crohns showed its evilness, i was hospitalized 2 weeks

, saw every doctor in the lists of specialties. even a

infectious dieases man . i saw him cause that actually

thought i picked up some weird disease from the troops

we were transporting on air evac that were coming home

from desert storm.

i ran a 107 fever, gastro system went on dam break.

and it was like i had polio. not able to move legs and

if anyone touched me i would scream from the pain.

then biospies all came back crohns.

but pain always here and back then too.

oncology doctors even said.. well there is some type

of inflamatory problem too.

my white count is always high, and i produce to many

platelets.

does any one else do that with lab work?

Diane

--- ladyriddick01 wrote:

> I to have Lupus and when I had a flare in 2005,I was

> on a number of

> drugs and it wasnt because they were for Lupus,it

> was because the

> doctors go through a process of elimination. There

> are some drugs

> that help and some that do nothing. I was on meds

> that they give

I

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

>

> > I to have Lupus and when I had a flare in 2005,I was

> > on a number of

> > drugs and it wasnt because they were for Lupus,it

> > was because the

> > doctors go through a process of elimination. There

> > are some drugs

> > that help and some that do nothing. I was on meds

> > that they give

> I

> > with everyone on the list as to what treatments do

> > and don't work for us, pls always check with your

> > dr. Some treatments are dangerous when given along

> > with other meds as well as to certain health

> > conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't

> > matter what it is) pls don't be afraid to ask for

> > help. It is the first step to trying to make that

> > situation better.

> >

> > 3. To unsubscribe the e-mail is:

> >

> Fibromyalgia_Support_Group-unsubscribe

> >

> > 4. Also, it is not uncommon for more than one member

> > to be feeling bad at the same time when it comes to

> > flares and b/c of that potentially take something

> > another member says the wrong way. And that

> > includes the things that one member may find funny

> > (even if it's laughing at fibro itself) even though

> > we who deal with illness whether one such as fibro

> > or multiple illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you

> > are having a bad day pls let us know so that we can

> > do our best to offer our support.

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

Thanks . Do you know which ones they are?

Marti

arwilliams47 wrote:

>

> > I to have Lupus and when I had a flare in 2005,I was

> > on a number of

> > drugs and it wasnt because they were for Lupus,it

> > was because the

> > doctors go through a process of elimination. There

> > are some drugs

> > that help and some that do nothing. I was on meds

> > that they give

> I

> > with everyone on the list as to what treatments do

> > and don't work for us, pls always check with your

> > dr. Some treatments are dangerous when given along

> > with other meds as well as to certain health

> > conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't

> > matter what it is) pls don't be afraid to ask for

> > help. It is the first step to trying to make that

> > situation better.

> >

> > 3. To unsubscribe the e-mail is:

> >

> Fibromyalgia_Support_Group-unsubscribe

> >

> > 4. Also, it is not uncommon for more than one member

> > to be feeling bad at the same time when it comes to

> > flares and b/c of that potentially take something

> > another member says the wrong way. And that

> > includes the things that one member may find funny

> > (even if it's laughing at fibro itself) even though

> > we who deal with illness whether one such as fibro

> > or multiple illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you

> > are having a bad day pls let us know so that we can

> > do our best to offer our support.

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

There is a whole panel they do; I it's called CBC. Anyway, they check for RA

and a bunch of things in the panel. For Lupus its positive antinuclear

antibodies.

Sorry I butted in; but I have Lupus and I have a lab order so I thought I'd

chime in.

Angie Harley Mama Double-D

Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

" While we have the gift of life, it seems to me theonly tragedy is to allow part

of us to die - whether it is our spirit,our creativity or our glorious

uniqueness. " ~~~Gilda Radner

http://360.yahoo.com/lovinglifeinnv

http://www.myspace.com/amkg

http://doripost.agrato.info/

http://www.xanga.com/PurplePassionate

http://www.facebook.com/profile.php?id=592316375

http://health.groups.yahoo.com/group/LupusSurvivorsU/

Re: In response to Lyrica/ ladyriddick

Thanks . Do you know which ones they are?

Marti

arwilliams47 <arwilliams47@ yahoo.com> wrote:

>

> > I to have Lupus and when I had a flare in 2005,I was

> > on a number of

> > drugs and it wasnt because they were for Lupus,it

> > was because the

> > doctors go through a process of elimination. There

> > are some drugs

> > that help and some that do nothing. I was on meds

> > that they give

> I

> > with everyone on the list as to what treatments do

> > and don't work for us, pls always check with your

> > dr. Some treatments are dangerous when given along

> > with other meds as well as to certain health

> > conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't

> > matter what it is) pls don't be afraid to ask for

> > help. It is the first step to trying to make that

> > situation better.

> >

> > 3. To unsubscribe the e-mail is:

> >

> Fibromyalgia_ Support_Group- unsubscribe@ yahoogroups. com

> >

> > 4. Also, it is not uncommon for more than one member

> > to be feeling bad at the same time when it comes to

> > flares and b/c of that potentially take something

> > another member says the wrong way. And that

> > includes the things that one member may find funny

> > (even if it's laughing at fibro itself) even though

> > we who deal with illness whether one such as fibro

> > or multiple illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you

> > are having a bad day pls let us know so that we can

> > do our best to offer our support.

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

Thanks I know what those tests are and have them run regularly on me because of

the Methotrexate I'm taking. Positive antinuclear antibodies ANA can mean a lot

of things. I just wondered if there was an actual Lupus test. I guess it's a

group of symptoms put together just like fibromyalgia is. Another invisible

illness. I did finally google it and learned a lot.

Thanks for the info.

Take care, Marti

Angie wrote:

There is a whole panel they do; I it's called CBC. Anyway, they check

for RA and a bunch of things in the panel. For Lupus its positive antinuclear

antibodies.

Sorry I butted in; but I have Lupus and I have a lab order so I thought I'd

chime in.

Angie Harley Mama Double-D

Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

" While we have the gift of life, it seems to me theonly tragedy is to allow part

of us to die - whether it is our spirit,our creativity or our glorious

uniqueness. " ~~~Gilda Radner

http://360.yahoo.com/lovinglifeinnv

http://www.myspace.com/amkg

http://doripost.agrato.info/

http://www.xanga.com/PurplePassionate

http://www.facebook.com/profile.php?id=592316375

http://health.groups.yahoo.com/group/LupusSurvivorsU/

Re: In response to Lyrica/ ladyriddick

Thanks . Do you know which ones they are?

Marti

arwilliams47 <arwilliams47@ yahoo.com> wrote:

>

> > I to have Lupus and when I had a flare in 2005,I was

> > on a number of

> > drugs and it wasnt because they were for Lupus,it

> > was because the

> > doctors go through a process of elimination. There

> > are some drugs

> > that help and some that do nothing. I was on meds

> > that they give

> I

> > with everyone on the list as to what treatments do

> > and don't work for us, pls always check with your

> > dr. Some treatments are dangerous when given along

> > with other meds as well as to certain health

> > conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't

> > matter what it is) pls don't be afraid to ask for

> > help. It is the first step to trying to make that

> > situation better.

> >

> > 3. To unsubscribe the e-mail is:

> >

> Fibromyalgia_ Support_Group- unsubscribe@ yahoogroups. com

> >

> > 4. Also, it is not uncommon for more than one member

> > to be feeling bad at the same time when it comes to

> > flares and b/c of that potentially take something

> > another member says the wrong way. And that

> > includes the things that one member may find funny

> > (even if it's laughing at fibro itself) even though

> > we who deal with illness whether one such as fibro

> > or multiple illnesses try to keep a sense of humor.

> >

> > 5. Pls let's be gentle with each other, and if you

> > are having a bad day pls let us know so that we can

> > do our best to offer our support.

> >

> > Have a nice day everyone.

> >

> >