Re: questions,feelings and advise

[Guest guest]

First thing in the morning... Horrible stiffness and aches. Can't bend to get

up alot of days and have to slide out of bed somehow.

Then the pain hits. It is all over aching with a couple of places that are

sheer pain... shoulders/knees/back. Take my medication, it lets up enough after

about an hour or so that I can wander to the bathtub.

Tired, tired, tired 95% of the time. Problems with concentrating. Numbness

and tingling in the fingers at times. Electrical shock sensations in the hands

at times.

Well, that is just the tip of the iceberg.

Hope it goes well with the education of coworkers and such. It seems no

matter what I say to most people they think I am a hypochondriac.

hugs,

Debra V.

Nd wrote:

Hey everyone, I am attempting to educated my friends

and co workers to what we go through in our dailey

lifes. I would like everyone to tell a little bit

about a week in the life of some one with Fibro.

Thanks

Diane

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

---------------------------------

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[Guest guest]

thanks Debra for your input.

reading it was like looking into a mirror.

today is a not so good day in my house, i feel so

quilty as i just am so tired i can't get up from the

bed..

Diane

--- debra van ness wrote:

> First thing in the morning... Horrible stiffness and

> aches. Can't bend to get up alot of days and have

> to slide out of bed somehow.

> Then the pain hits. It is all over aching with a

> couple of places that are sheer pain...

> shoulders/knees/back. Take my medication, it lets

> up enough after about an hour or so that I can

> wander to the bathtub.

> Tired, tired, tired 95% of the time. Problems

> with concentrating. Numbness and tingling in the

> fingers at times. Electrical shock sensations in

> the hands at times.

> Well, that is just the tip of the iceberg.

> Hope it goes well with the education of coworkers

> and such. It seems no matter what I say to most

> people they think I am a hypochondriac.

> hugs,

> Debra V.

>

> Nd wrote:

> Hey everyone, I am attempting to educated

> my friends

> and co workers to what we go through in our dailey

> lifes. I would like everyone to tell a little bit

> about a week in the life of some one with Fibro.

>

> Thanks

> Diane

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

thank you Marti, i will go look now.

Diane

--- Marti Boguski wrote:

> Hi Diane, I will be happy to tell you what my week

> is like when I have more time.

> I did want to see if you have read The Spoon Story

> on the web site

> butyoudontlooksick.com. It is really good at

> educating friends, family and coworkers about what a

> life with fibro is like. I used it and it worked

> well. the link is below. If it doesn't work just

> go to the web site and scroll down the left side

> until you get to The Spoon Theory and click on that

> and it will take you there.

>

>

>

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

>

> Take care,

> Marti

>

> I hope it helps some.

> Nd wrote:

> Hey everyone, I am attempting to educated

> my friends

> and co workers to what we go through in our dailey

> lifes. I would like everyone to tell a little bit

> about a week in the life of some one with Fibro.

>

> Thanks

> Diane

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

>

> Hey everyone, I am attempting to educated my friends

> and co workers to what we go through in our dailey

> lifes. I would like everyone to tell a little bit

> about a week in the life of some one with Fibro.

>

> Thanks

> Diane

>

> Hi Diane, there are mornings that I can get up feeling no pain what

so ever, and by afternoon, I'm wiped out, and hurting like some one

beat me up with a ball bat, on other days I get up and I hurt so bad,

that I can hardly walk across the floor,I deal with chest pain,

shortness of breath,migraines, and the list goes on and on, good luck

trying to educate your friends and co workers, I have friends that say

they understand but they really don't, they make smart comments like,

i just don't understand why you can't go to work cleaning or something

simple like that, hell if that was the case I would spend all my time

cleaning my own house, but I do what I can do when i can do it!!!!! I

did have a supervisor that understood my circumstances due to the fact

that she had R.A. so she did understand which i was lucky, so again

good luck let us know how it turns out! Leanne

>

________________________________________________________________________________\

____

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

[Guest guest]

I just really love the t- shirts. Talk about save your breath I've heard it all

before. It sure shuts people up.

Re: questions,feelings and advise

Hi Diane, I will be happy to tell you what my week is like when I have more

time.

I did want to see if you have read The Spoon Story on the web site

butyoudontlooksick.com. It is really good at educating friends, family and

coworkers about what a life with fibro is like. I used it and it worked well.

the link is below. If it doesn't work just go to the web site and scroll down

the left side until you get to The Spoon Theory and click on that and it will

take you there.

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Take care,

Marti

I hope it helps some..

Nd wrote:

Hey everyone, I am attempting to educated my friends

and co workers to what we go through in our dailey

lifes. I would like everyone to tell a little bit

about a week in the life of some one with Fibro.

Thanks

Diane

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

>

> Hey everyone, I am attempting to educated my friends

> and co workers to what we go through in our dailey

> lifes. I would like everyone to tell a little bit

> about a week in the life of some one with Fibro.

>

> Thanks

> Diane

>

>

>

______________________________________________________________________

______________

>Diane, I don't know if you are aware of the National Fibromyalgia

Association or not, but that group and several others that are doing

research, do ask for stories from people who visit the site. And

they always have several posted. They also publish a magazine on a

quarterly basis, I believe that, while a single issue is about $10 or

$11 and seems small, does have good info. And some doctors offices

have handouts, phamplets on Fibro.

And to any one else who may not be aware of any of the national

organizations, just type in National Fibromyalgia Association in a

search and several organizations pop up --- I actually think that may

be how I discovered this group on Yahoo.

But it certainly can be hard to explain what we all go through and,

for myself, I have symtoms others don't have and vis versa.

[Guest guest]

yes i get the magazine, love it. i found at my old docs office, i was

so exited to fine something about me, it comes out 4 tmes ayear for

only 20 something, i also printed off a letter to normals and made my

family read it. I also got the bands you wear to raise money, I got

my hubby to wear, it made me happy. well, gotta sleep befoe my legs

start again. I have this to say, some days I wish I could sleep for a

week. I miss my old me, the happy me, the who does not count meds to

live, but heck I would not give this pain to anyone. I was in ICU 7

months ago, haging on life after 6 months of siesures, lycra stopped

them. I am truely glad to be alive, years ago I would not say that,

so if we find the right doc that cares it is better. sure I have had

it all. Siesures, teeth problems, restless leg, sleep problems,

migraines, pain to the point of cying. Family that does not

understand, trying to find the right meds, depression, you name it.

but, all in all I started keeping a journal of everyday, so i know

what i forgot, or most of all my almost good days. she is right go to

the site and print off the letter to normals it is great. vikki

> >

> > Hey everyone, I am attempting to educated my friends

> > and co workers to what we go through in our dailey

> > lifes. I would like everyone to tell a little bit

> > about a week in the life of some one with Fibro.

> >

> > Thanks

> > Diane

> >

> >

> >

>

______________________________________________________________________

> ______________

> >Diane, I don't know if you are aware of the National Fibromyalgia

> Association or not, but that group and several others that are

doing

> research, do ask for stories from people who visit the site. And

> they always have several posted. They also publish a magazine on a

> quarterly basis, I believe that, while a single issue is about $10

or

> $11 and seems small, does have good info. And some doctors offices

> have handouts, phamplets on Fibro.

> And to any one else who may not be aware of any of the national

> organizations, just type in National Fibromyalgia Association in a

> search and several organizations pop up --- I actually think that

may

> be how I discovered this group on Yahoo.

> But it certainly can be hard to explain what we all go through and,

> for myself, I have symtoms others don't have and vis versa.

>

>

[Guest guest]

Aren't they great. I'd love to wear several of them. I also love the name of

the web site.

marti

Kate Court wrote:

I just really love the t- shirts. Talk about save your breath I've

heard it all before. It sure shuts people up.

Re: questions,feelings and advise

Hi Diane, I will be happy to tell you what my week is like when I have more

time.

I did want to see if you have read The Spoon Story on the web site

butyoudontlooksick.com. It is really good at educating friends, family and

coworkers about what a life with fibro is like. I used it and it worked well.

the link is below. If it doesn't work just go to the web site and scroll down

the left side until you get to The Spoon Theory and click on that and it will

take you there.

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Take care,

Marti

I hope it helps some..

Nd wrote:

Hey everyone, I am attempting to educated my friends

and co workers to what we go through in our dailey

lifes. I would like everyone to tell a little bit

about a week in the life of some one with Fibro.

Thanks

Diane

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.