Re: Alone

[Guest guest]

at least here in the group I can vent a little and not be ridiculed, put down, made to feel like it's my fault this happened to me or anything like that...so I'll stay in my little world of physical and emotional pain and hope that things could get better. How are you doing today??

Hugs,

~Chrissy~

Chrissy,

I am sorry that you feel so alone in your battle with this monster. That is true at least you can vent in here without anyone saying to make you feel bad. This group has kept me sane, well at least as sane as I was.

I will keep you in my prayers.

Lin

[Guest guest]

Yep, we are essentially alone. A select few do have families and friends that

believe them. But mostly we are alone anyway. The people here are the only

ones that make me feel as if I am not completely alone. It is a lonely illness

in that it tears your life apart from the core. Then it takes away everything

you ever were before. It also designs itself to MAKE us look like liars,

hypochonriacs, and drug seekers. It is an evil sad disease that takes us over

and no one else can see its presence.

love and hugs,

Debra V.

lyriczada wrote:

Is it just me or does this illness really make, you feel alone even if

you're surrounded by people. Days when my husband can't even touch me

because their, is so much pain. I had three really good weeks without

migraines after my first round of shots, and now they are back with a

vengeance. I had some relief with the lower back and now well you can

guess. It's enough to discourage the most positive of people. Needless

to say I'm not that positive. My resolve to continue to fight this

illness is going down. It's getting harder and harder and I begin to

wonder if I will ever have my life back. Even if it's just a shell of

my former life at least it would be better then where I stand now. I

can understand why soo many people opt for a way out. I just hope I

never reach that desperate measure but I wonder.

---------------------------------

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[Guest guest]

I think we do feel isolated and alone with this darn disease. That is why I am

thankful for this support group. I can communicate with others that understand

and are going through the same things I am. Hang in there. I am praying things

will improve for you soon. You may email me anytime you need an ear.

lyriczada wrote: Is it just me or does this illness

really make, you feel alone even if

you're surrounded by people. Days when my husband can't even touch me

because their, is so much pain. I had three really good weeks without

migraines after my first round of shots, and now they are back with a

vengeance. I had some relief with the lower back and now well you can

guess. It's enough to discourage the most positive of people. Needless

to say I'm not that positive. My resolve to continue to fight this

illness is going down. It's getting harder and harder and I begin to

wonder if I will ever have my life back. Even if it's just a shell of

my former life at least it would be better then where I stand now. I

can understand why soo many people opt for a way out. I just hope I

never reach that desperate measure but I wonder.

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Yes, I feel the same way. When you are in some pain, you have no one to talk

to. I have family, but they do not understand and they rather stay out of it

then to listen. What does a person do? Before I was diagnosed, I was extremely

active in sports. I Love SPORTS! Now, I am lucky if I can go outside and throw

the ball around with my son. My son understands to a certain point, but it is

not far for him to see me like this. I know some of you have spouses and they

can be supportive and some not. I have male friends, but they have no clue what

I am going through. When I just call to tell them I am in pain, I just want

them to help me forget the pain I am in. They do not grasp it just like my

family. So, I am alone and I get really depressed. I have no control over my

body any more. I keep fighting. I am so close to graduating from college. The

first in my generation and I am excited, but this disease (monster) gets in the

way. Loneliness

is terrible to go through, but I have to be positive about the end result cos

one day they will find a cure.

Lussia

God Bless You!

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[Guest guest]

I don't know if it is because some friends have also experienced some

of the things I have, have extended family members who have a variety

of ailments, but the only time I remember working in a place where I

KNEW every other person in that office thought I was crazy. And it

was very obvious when the controller, who was more or less the

manager of the rest of the small staff had us in a conference room

for a meeting. They had been interviewing people to fill several

positions and one of the younger " professional " women starting saying

that she had told someone she had spoken to about M....!!! " Did she

ever have a red face! I didn't get along with that many of the

support staff, but when I came back from a week off and the same

controller said " we are changing the direction of the company and we

are no longer going to need you at the end of the month. " I took a

day off, bumped into a fellow employee who had no reason to know why

I was out, I decided I would just give them my notice the next time I

was at work -- either that day or the end of the week. What was very

bizzare, was that the president and co-founder of the company came to

my desk and gave me a going away gift and thanked me for all I had

done. I saw the box, it was the right size for a box of 4 Godiva

chocolates, so while with some of my husband's co-workers at a pizza

place that evening, one of the women wanted some chocolate. I said,

Oh, I've got some in my purse! Well, big surprise!! It was not a box

of four Godiva chocolates but one of the small bottles of Chanel #5

PERFUME (I think it was around $75 at that time if not more!) So it

was a very big shock and I don't think either of the founders knew I

had essentially been fired. But that's the place where they just DID

NOT believe me when I told them I COULD NOT CARRY A COFFEE POT FULL

OF WATER from the ladies room to the office!!!

But the other thing is that while I was still married to my first

husband, I worked more often as a temp rather than having a full time

job so I could cover up the problem --- and we all know (or at least

some may) that " you can't always count on a temp! " At the same time,

I was seldom not working when I wanted to so the agency I worked for

obviously always got good reports about me. But I am amazed that it

was one of my childhood friends who repeatedly told me MARY, FILE FOR

DISABILITY!!! And no one in my family seems to think it strange.

And then there is my sweet niece, I had my first bout of severe pain

she was probably 6 or 7 and I happened to visiting she and her

parents for a few days. At sometime during the period I was there,

she reached up for me to pick her up and then said " Oh, I forgot,

Aunt , it might hurt you if you pick me up! " So she and her

daughers all know Aunt may not be able to do everything they

would like for her to do and I can't do things that I would love to

do with them!

And at my last job, there were a number of people who also had fibro

and I only know of one vile group leader who treated one of his

employees in such a way that she could have filed a lawsuit against

him and the company IF his boss would have backed her up!!! Strange,

even the ladies at the local library make sure I take the elevator

instead of climbing the front steps!

So sometimes there are people who do believe some of us --- I know

the jerk who said what he did to the one woman didn't believe her and

she could have sued the company for a great deal of money had the

other person in the office at the time supported her!!!

So, I guess I am very fortunate that most people understand what I

have.

And I am very sad that most of you don't get the support that I do.

> Is it just me or does this illness really make, you feel

alone even if

> you're surrounded by people. Days when my husband can't even touch

me

> because their, is so much pain. I had three really good weeks

without

> migraines after my first round of shots, and now they are back with

a

> vengeance. I had some relief with the lower back and now well you

can

> guess. It's enough to discourage the most positive of people.

Needless

> to say I'm not that positive. My resolve to continue to fight this

> illness is going down. It's getting harder and harder and I begin

to

> wonder if I will ever have my life back. Even if it's just a shell

of

> my former life at least it would be better then where I stand now.

I

> can understand why soo many people opt for a way out. I just hope I

> never reach that desperate measure but I wonder.

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>

[Guest guest]

Hi Lyric - Yes, I understand the loneliness. I live with my husband and 2

daughters, but I still feel very lonely. They leave the house to live their

lives. I mostly don't. When my husband is on his normal shift, and they

are all home in the evening, I can only tolerate a little bit of time with

them. Some of it is my pain is up and energy level is used up for the day,

so I go up to my room to read and sleep.

I've encouraged my girls to spend time reading with me in my room, so we at

least can feel some sense of togetherness. But that doesn't happen real

often.

My DH and I have been married for 21 years. We haven't shared a bed for

about 20 years. My DH is one of the loudest snorers in the world. And he

doesn't just snore in a nice even rhythm that could lull me to sleep either.

It keeps changing and just drives me nuts. He used to start out the night

in our bed, but there would always come a point where I'd kick him out to

sleep on the couch, that it just became easier for him to always sleep

there. When our oldest moves out of the house, he might finally get his own

bedroom. Poor guy. I've said it before, any other man would have divorced

me long ago.

So, Lyric, you just gotta hang in there. There are researchers working

hard to solve this FM mystery. More new meds for us are coming down the

road. So life will have its ups and downs and we just gotta accept the way

our new lives are. Hope this helps some.

Jeanne in WI

> Is it just me or does this illness really make, you feel alone even if

> you're surrounded by people. Days when my husband can't even touch me

> because their, is so much pain. I had three really good weeks without

migraines after my first round of shots, and now they are back with a

vengeance. I had some relief with the lower back and now well you can guess.

It's enough to discourage the most positive of people. Needless

to say I'm not that positive. My resolve to continue to fight this illness

is going down. It's getting harder and harder and I begin to wonder if I

will ever have my life back. Even if it's just a shell of my former life at

least it would be better then where I stand now. I can understand why soo

many people opt for a way out. I just hope I never reach that desperate

measure but I wonder.