Hello, I'm new to this group ...

[Guest guest]

Hello, my name is Rhonda and I'm here to learn as much as I can about

this " monster. " My very best friend in the whole world has this and I

wish so bad I could help her.

I'm reading and learning and this group has a wealth of information.

I do have a question for now... do any of you take narcotics for the

pain? If so, how much do you take daily to function? (hope that's not

to personal, it's okay if you'd rather not respond)

Beware, I'm " almost " a nurse (I take my LPN state boards on Monday)

and I tend to ask a lot of questions. It's the assessment process

always running through my head. Also, I'm a nurse that believes if

the patient/person says they have pain ... they HAVE pain! It is not

my job to judge their pain level only to try to relieve it.

Thank you in advance for all your input!

[Guest guest]

Hello Rhonda - Welcome to the group. You sound like a great lady and you

will make a great nurse, understanding people's pain is real. I am Jeanne

in WI, married with 2 teenage daughters. I've been diagnosed for 10 years

but have had symptoms since childhood. I do not take narcotics at this

time. I take tramadol and Tylenol for my pain. I also use Lidoderm pain

patches and the OTC ones like BenGay or Salonpas. I suffer more from

fatigue than pain, though. Or maybe my body fights the pain better and

that's why I'm tired a lot? Hard to know for sure. Anyway, welcome again.

Jeanne in WI

Dealing with FM & WLS?

http://health.groups.yahoo.com/group/FM-WLS/

> Hello, my name is Rhonda and I'm here to learn as much as I can about this

> " monster. " My very best friend in the whole world has this and I wish so

> bad I could help her. I'm reading and learning and this group has a

> wealth of information. I do have a question for now... do any of you take

> narcotics for the pain? If so, how much do you take daily to function?

> (hope that's not to personal, it's okay if you'd rather not respond)

> Beware, I'm " almost " a nurse (I take my LPN state boards on Monday) and I

> tend to ask a lot of questions. It's the assessment process always

> running through my head. Also, I'm a nurse that believes if the

> patient/person says they have pain ... they HAVE pain! It is not my job

> to judge their pain level only to try to relieve it. Thank you in advance

> for all your input!

[Guest guest]

What a good friend you are! I wish I had as good of a friend as you.

My best friend couldn't care less about my fibro.

I don't take narcotic pain relievers. If I flare, I'll take a Naproxen

(prescription strength Aleve) and it does wonders on my pain.

rdrupe wrote:

> Hello, my name is Rhonda and I'm here to learn as much as I can about

> this " monster. " My very best friend in the whole world has this and I

> wish so bad I could help her.

> I'm reading and learning and this group has a wealth of information.

> I do have a question for now... do any of you take narcotics for the

> pain? If so, how much do you take daily to function? (hope that's not

> to personal, it's okay if you'd rather not respond)

> Beware, I'm " almost " a nurse (I take my LPN state boards on Monday)

> and I tend to ask a lot of questions. It's the assessment process

> always running through my head. Also, I'm a nurse that believes if

> the patient/person says they have pain ... they HAVE pain! It is not

> my job to judge their pain level only to try to relieve it.

> Thank you in advance for all your input!

>

>

>

> 1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

>

> 3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

Most of us here wish we had a friend to understand what the " monster "

is doing to us. But there are many that do not understand. My doctor

knows about the pain I go through. I personally am taking methadone

and vicodin for the pain. And so you know it helps very little. I am

tired all day, I don't sleep at night. My life sucks and my poor

husband is starting to understand very little about the pain. When he

tries to give me a massage I have to ask him to please stop because it

hurts so bad. Or in the middle of the night when he wants to snuggle

to me and I have to tell him be very easy about touch it is the middle

of the night and no more pain meds for me to help. I take all kinds of

meds to " knock me out " so at least I can get a couple hours of sleep

every night. Hell when I went to the doctor the other day to talk

about medications with my doctor I heard the nurses talking crap about

me saying " She was just in here last week, She is on alot of high

medications already I bet she wants more " This is crap I was in there

last week to see my reg doctor because I had a severe ear ache and it

felt like there was someone taking a knife to my ear and jaw area. I

have a severe case of FM here soon I see myself in a wheel chair. Next

doctors visit I am going to ask for a walker that i can sit down on

because my legs hurt so bad and they are tired fast. Anyways I think

it is great of you to join this group to know more about your friend

and with you becomming a nurse and all I think it is great maybe you

will be able to educate more about us to those that don't believe us.

I am sick and tired of being called a drug addict by people whom do

not walk in my shoes. God Bless Krystal

[Guest guest]

Thanks Jeanne for sharing. I really do appreciate your input.

I live in the KC, Missour area and just today found a support group

to take my friend to. The lady that facilitates the support group

returned my call and was so helpful and nice. I am so excited and

anxious to attend this meeting. Many times the have speakers to

share information.

Thanks again!

Rhonda

>

> Hello Rhonda - Welcome to the group. You sound like a great lady

and you

> will make a great nurse, understanding people's pain is real. I

am Jeanne

> in WI, married with 2 teenage daughters. I've been diagnosed for

10 years

> but have had symptoms since childhood. I do not take narcotics at

this

> time. I take tramadol and Tylenol for my pain. I also use

Lidoderm pain

> patches and the OTC ones like BenGay or Salonpas. I suffer more

from

> fatigue than pain, though. Or maybe my body fights the pain

better and

> that's why I'm tired a lot? Hard to know for sure. Anyway,

welcome again.

> Jeanne in WI

> Dealing with FM & WLS?

> http://health.groups.yahoo.com/group/FM-WLS/

>

>

>

> > Hello, my name is Rhonda and I'm here to learn as much as I can

about this

> > " monster. " My very best friend in the whole world has this and

I wish so

> > bad I could help her. I'm reading and learning and this group

has a

> > wealth of information. I do have a question for now... do any of

you take

> > narcotics for the pain? If so, how much do you take daily to

function?

> > (hope that's not to personal, it's okay if you'd rather not

respond)

> > Beware, I'm " almost " a nurse (I take my LPN state boards on

Monday) and I

> > tend to ask a lot of questions. It's the assessment process

always

> > running through my head. Also, I'm a nurse that believes if the

> > patient/person says they have pain ... they HAVE pain! It is

not my job

> > to judge their pain level only to try to relieve it. Thank you

in advance

> > for all your input!

>

[Guest guest]

Thanks Melody, I think sometimes people do the " I don't care "

attitude because they can't understand and if they can't " fix " it,

it is easier not to deal with it. I know my friend's family is

under this category.

I'm taking notes of all the input and different things I see

posted. I think she gets so discouraged that she gives up

investigating other options for pain relief.

Thank you again!

Rhonda

> > Hello, my name is Rhonda and I'm here to learn as much as I can

about

> > this " monster. " My very best friend in the whole world has this

and I

> > wish so bad I could help her.

> > I'm reading and learning and this group has a wealth of

information.

> > I do have a question for now... do any of you take narcotics for

the

> > pain? If so, how much do you take daily to function? (hope

that's not

> > to personal, it's okay if you'd rather not respond)

> > Beware, I'm " almost " a nurse (I take my LPN state boards on

Monday)

> > and I tend to ask a lot of questions. It's the assessment

process

> > always running through my head. Also, I'm a nurse that believes

if

> > the patient/person says they have pain ... they HAVE pain! It

is not

> > my job to judge their pain level only to try to relieve it.

> > Thank you in advance for all your input!

> >

> >

> >

> > 1. While it is wonderful to share our experiences with everyone

on the list as to what treatments do and don't work for us, pls

always check with your dr. Some treatments are dangerous when given

along with other meds as well as to certain health conditions or

just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter what it

is) pls don't be afraid to ask for help. It is the first step to

trying to make that situation better.

> >

> > 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-

unsubscribe

> >

> > 4. Also, it is not uncommon for more than one member to be

feeling bad at the same time when it comes to flares and b/c of that

potentially take something another member says the wrong way. And

that includes the things that one member may find funny (even if

it's laughing at fibro itself) even though we who deal with illness

whether one such as fibro or multiple illnesses try to keep a sense

of humor.

> >

> > 5. Pls let's be gentle with each other, and if you are having a

bad day pls let us know so that we can do our best to offer our

support.

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

Krystal, I have tears in my eyes because you sound so much like my

friend and I see what you are going through. The vicadin helps my

friend function (doesn't take away all the pain), doesn't last

through the day and sleeping for her almost doesn't happen. It's

the same with her husband. Even her puppy snuggling close to her to

keep warm was hurting her.

She also gets the attitude at the pharmacy. We live in a small town

where " every body knows your name " so she goes closer to the city to

fill her prescriptions so she can be " unknown. "

Thank you, Thank you for sharing with me.

Many blessings to you as well.

Rhonda

>

> Most of us here wish we had a friend to understand what

the " monster "

> is doing to us. But there are many that do not understand. My

doctor

> knows about the pain I go through. I personally am taking methadone

> and vicodin for the pain. And so you know it helps very little. I

am

> tired all day, I don't sleep at night. My life sucks and my poor

> husband is starting to understand very little about the pain. When

he

> tries to give me a massage I have to ask him to please stop

because it

> hurts so bad. Or in the middle of the night when he wants to

snuggle

> to me and I have to tell him be very easy about touch it is the

middle

> of the night and no more pain meds for me to help. I take all

kinds of

> meds to " knock me out " so at least I can get a couple hours of

sleep

> every night. Hell when I went to the doctor the other day to talk

> about medications with my doctor I heard the nurses talking crap

about

> me saying " She was just in here last week, She is on alot of high

> medications already I bet she wants more " This is crap I was in

there

> last week to see my reg doctor because I had a severe ear ache and

it

> felt like there was someone taking a knife to my ear and jaw area.

I

> have a severe case of FM here soon I see myself in a wheel chair.

Next

> doctors visit I am going to ask for a walker that i can sit down on

> because my legs hurt so bad and they are tired fast. Anyways I

think

> it is great of you to join this group to know more about your

friend

> and with you becomming a nurse and all I think it is great maybe

you

> will be able to educate more about us to those that don't believe

us.

> I am sick and tired of being called a drug addict by people whom do

> not walk in my shoes. God Bless Krystal

>

[Guest guest]

Hi Rhonda,

I've not been around and so am welcoming you late. I hope you get as much

support from this wonderful group of people as I do.

Welcome,

Marti

rdrupe wrote:

Hello, my name is Rhonda and I'm here to learn as much as I can about

this " monster. " My very best friend in the whole world has this and I

wish so bad I could help her.

I'm reading and learning and this group has a wealth of information.

I do have a question for now... do any of you take narcotics for the

pain? If so, how much do you take daily to function? (hope that's not

to personal, it's okay if you'd rather not respond)

Beware, I'm " almost " a nurse (I take my LPN state boards on Monday)

and I tend to ask a lot of questions. It's the assessment process

always running through my head. Also, I'm a nurse that believes if

the patient/person says they have pain ... they HAVE pain! It is not

my job to judge their pain level only to try to relieve it.

Thank you in advance for all your input!

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Rhonda, I missed your question the first time I read it. I take 5mg

hydrocodone as needed up to 3 X day. Marti

rdrupe wrote: Hello, my name is Rhonda and I'm here

to learn as much as I can about

this " monster. " My very best friend in the whole world has this and I

wish so bad I could help her.

I'm reading and learning and this group has a wealth of information.

I do have a question for now... do any of you take narcotics for the

pain? If so, how much do you take daily to function? (hope that's not

to personal, it's okay if you'd rather not respond)

Beware, I'm " almost " a nurse (I take my LPN state boards on Monday)

and I tend to ask a lot of questions. It's the assessment process

always running through my head. Also, I'm a nurse that believes if

the patient/person says they have pain ... they HAVE pain! It is not

my job to judge their pain level only to try to relieve it.

Thank you in advance for all your input!

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

> >

> > Most of us here wish we had a friend to understand what

> the " monster "

> > is doing to us. But there are many that do not understand. My

> doctor

> > knows about the pain I go through. I personally am taking

methadone

> > and vicodin for the pain. And so you know it helps very little. I

> am

> > tired all day, I don't sleep at night. My life sucks and my poor

> > husband is starting to understand very little about the pain.

When

> he

> > tries to give me a massage I have to ask him to please stop

> because it

> > hurts so bad. Or in the middle of the night when he wants to

> snuggle

> > to me and I have to tell him be very easy about touch it is the

> middle

> > of the night and no more pain meds for me to help. I take all

> kinds of

> > meds to " knock me out " so at least I can get a couple hours of

> sleep

> > every night. Hell when I went to the doctor the other day to talk

> > about medications with my doctor I heard the nurses talking crap

> about

> > me saying " She was just in here last week, She is on alot of high

> > medications already I bet she wants more " This is crap I was in

> there

> > last week to see my reg doctor because I had a severe ear ache

and

> it

> > felt like there was someone taking a knife to my ear and jaw

area.

> I

> > have a severe case of FM here soon I see myself in a wheel chair.

> Next

> > doctors visit I am going to ask for a walker that i can sit down

on

> > because my legs hurt so bad and they are tired fast. Anyways I

> think

> > it is great of you to join this group to know more about your

> friend

> > and with you becomming a nurse and all I think it is great maybe

> you

> > will be able to educate more about us to those that don't

believe

> us.

> > I am sick and tired of being called a drug addict by people whom

do

> > not walk in my shoes. God Bless Krystal

> >

>Hi Krystal I know exactly where you are coming from. my Dr refused

to give me any narcotics she said that they will only mask my pain

and that not help the real problem so I called 1 day crying in such

pain, she not only refusued to give me any thing she dropped me as

her patient. I have never been on anything very strong for my FM and

when she did give me somthing i took it very sparingly so she had no

reason to treat me like a drug seeker but I got treated like that

anyway so I know how you feel Stay strong.....

[Guest guest]

I have to say that the " drug addict " label really hurts me. I have never taken

any illegal drugs and I really resent the idea that a diabetic and an asthmatic

can take stuff and they aren't criminally labelled so why should I ?

Having said that one thing that they don't tell you as a nurse is that people

who " do drugs " need twice as much pain medication as people who don't. The

reason is that " drugs " fill receptors in the brain, once those receptors are

full the " pain medication " kicks in. People who have been drug addicts need to

fill in those receptors first the longer or stronger they have been on the meds

the more receptors need to be filled first before anything else can happen.

When I did work I used to ask my druggies twice, first without the explanation,

then after, those that were would change their story quick smart and at that

point I would have a serious conversation about what was the best drug for them

when it came to pain relief. Most already knew what worked and what didn't and

if your being cut up, your recreational habits don't concern me, only managing

your pain whilst you are post op. Also with those who are recovering, they can

still have pain relief but you use a step down process and you put them in

charge of their meds, most are so afriad of relapse that they will endure just

about anything not to slip which is sad because they can't tell the difference

between the " need " for pain meds and the " desire " for them and it does not have

to be that hard.

The catch for us here though is that as long term pain medicators we also need

to be aware that we have more pain receptors too and thus our meds need to be

constantly adjusted as well. Hence that nurses comment " she was only in here

last week " which should really be " we are not managing this patients pain very

well are we " .

Sorry, I had to rant, my Boss just illegally got hold of my medical file,

obviously there is a lot of " mad before label " in there and I get to go to court

over it. So So So happy today, now where did I put those pills.........???????

Sadly, they don't have " your boss is an arsehole " tablet, or else it would be a

suppositary.

Bonnie

Re: Hello, I'm new to this group ...

> >

> > Most of us here wish we had a friend to understand what

> the " monster "

> > is doing to us. But there are many that do not understand. My

> doctor

> > knows about the pain I go through. I personally am taking

methadone

> > and vicodin for the pain. And so you know it helps very little. I

> am

> > tired all day, I don't sleep at night. My life sucks and my poor

> > husband is starting to understand very little about the pain.

When

> he

> > tries to give me a massage I have to ask him to please stop

> because it

> > hurts so bad. Or in the middle of the night when he wants to

> snuggle

> > to me and I have to tell him be very easy about touch it is the

> middle

> > of the night and no more pain meds for me to help. I take all

> kinds of

> > meds to " knock me out " so at least I can get a couple hours of

> sleep

> > every night. Hell when I went to the doctor the other day to talk

> > about medications with my doctor I heard the nurses talking crap

> about

> > me saying " She was just in here last week, She is on alot of high

> > medications already I bet she wants more " This is crap I was in

> there

> > last week to see my reg doctor because I had a severe ear ache

and

> it

> > felt like there was someone taking a knife to my ear and jaw

area.

> I

> > have a severe case of FM here soon I see myself in a wheel chair.

> Next

> > doctors visit I am going to ask for a walker that i can sit down

on

> > because my legs hurt so bad and they are tired fast. Anyways I

> think

> > it is great of you to join this group to know more about your

> friend

> > and with you becomming a nurse and all I think it is great maybe

> you

> > will be able to educate more about us to those that don't

believe

> us.

> > I am sick and tired of being called a drug addict by people whom

do

> > not walk in my shoes. God Bless Krystal

> >

>Hi Krystal I know exactly where you are coming from. my Dr refused

to give me any narcotics she said that they will only mask my pain

and that not help the real problem so I called 1 day crying in such

pain, she not only refusued to give me any thing she dropped me as

her patient. I have never been on anything very strong for my FM and

when she did give me somthing i took it very sparingly so she had no

reason to treat me like a drug seeker but I got treated like that

anyway so I know how you feel Stay strong.....

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.