Re: Re: Fwd: Important Announcement - To everyone

[Guest guest]

I am so glad someone is standing up for us. It infuriates me to have the

patients of this damn disease blasted and called lunatics. You all know that is

my soap box.

love and hugs,

Debra V.

deebs87 wrote:

Thank you for sharing this.

>

> To: dodgeturbo99@...

> Subject: Important Announcement

> Date: Tue, 29 Jan 2008 15:29:14 -0700

>

> This e-mail was sent to you by Fibromyalgia Network. To

ensure receipt of our e-mails, please add us (kthorson@...) to your

address book.

>

> Dear Lori Hammer,

> New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took

his distrust of the drug industry too far with an insane article

titled: " Drug Approved. Is Disease Real? " It's a tale about how

Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

that they could make a fortune selling their drugs to patients who do

not really have a disease at all—just problems adapting to the aches

and pains of living!

> The article trampled the reputation of fibromyalgia patients,

their doctors and scientists in the field. Berenson dredged up

antiquated beliefs held by three die-hard doctors who truly believe

millions of Americans are faking fibromyalgia. The stale theory that

pain was not real unless it could be documented with a blood test or

X-ray permeated the article.

> In response to Berenson's front-page feature in the NY Times,

Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the

experts have to say about fibromyalgia and share their comments with

anyone who doubts that your symptoms are real.

> As for the editors at the NY Times, do not hesitate to voice your

opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News

Department, the Public Editor, and the Managing Editor of the NY

Times are given at the end of the web page postings from the experts.

Feel free to include in your response a few of the valid points made

by the experts and ask in your e-mail that the editors at the NY

Times publish a quality article on fibromyalgia, its pain and

symptoms you struggle with daily.

> If you or someone you know has fibromyalgia, don't let the NY

Times set back the progress made in the field these past 20 years.

Read the comments from the experts and let your voice be heard—even

if it is a brief complaint.

> Kindest regards,

> Thorson, Editor

> Fibromyalgia Network

>

> ---------------------------------

> Fibromyalgia Network ... Helping Patients Since 1988

> Add us (kthorson@...) to your e-mail address book to

> ensure that you receive updates on services and savings!

>

> PO Box 31750 | Tucson, AZ 85751-1750 | |

www.fmnetnews.com

> © 2008 Fibromyalgia Network

>

> ---------------------------------

> This e-mail was sent to Lori Hammer at dodgeturbo99@... You

provided your e-mail address when you requested free information from

our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we

understand as well as respect your need for privacy. If you no

longer wish to receive e-mails from the Fibromyalgia Network, please

click here or reply to this message with " unsubscribe " as the subject

line.

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

Hey Lori is there room for me on that soap box. I get that way when someone I

run into makes comments about people with CP,I let them have right to their

face. And now I am learning not to take any Bull over Fibro.It's a hard

decease,and it is real,and it hurts alot,some days worse than others.So<Can I

sit on that soap Box too??? God Bless all of us.

debra van ness wrote: I am so glad someone is

standing up for us. It infuriates me to have the patients of this damn disease

blasted and called lunatics. You all know that is my soap box.

love and hugs,

Debra V.

deebs87 wrote:

Thank you for sharing this.

>

> To: dodgeturbo99@...

> Subject: Important Announcement

> Date: Tue, 29 Jan 2008 15:29:14 -0700

>

> This e-mail was sent to you by Fibromyalgia Network. To

ensure receipt of our e-mails, please add us (kthorson@...) to your

address book.

>

> Dear Lori Hammer,

> New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took

his distrust of the drug industry too far with an insane article

titled: " Drug Approved. Is Disease Real? " It's a tale about how

Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

that they could make a fortune selling their drugs to patients who do

not really have a disease at all—just problems adapting to the aches

and pains of living!

> The article trampled the reputation of fibromyalgia patients,

their doctors and scientists in the field. Berenson dredged up

antiquated beliefs held by three die-hard doctors who truly believe

millions of Americans are faking fibromyalgia. The stale theory that

pain was not real unless it could be documented with a blood test or

X-ray permeated the article.

> In response to Berenson's front-page feature in the NY Times,

Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the

experts have to say about fibromyalgia and share their comments with

anyone who doubts that your symptoms are real.

> As for the editors at the NY Times, do not hesitate to voice your

opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News

Department, the Public Editor, and the Managing Editor of the NY

Times are given at the end of the web page postings from the experts.

Feel free to include in your response a few of the valid points made

by the experts and ask in your e-mail that the editors at the NY

Times publish a quality article on fibromyalgia, its pain and

symptoms you struggle with daily.

> If you or someone you know has fibromyalgia, don't let the NY

Times set back the progress made in the field these past 20 years.

Read the comments from the experts and let your voice be heard—even

if it is a brief complaint.

> Kindest regards,

> Thorson, Editor

> Fibromyalgia Network

>

> ---------------------------------

> Fibromyalgia Network ... Helping Patients Since 1988

> Add us (kthorson@...) to your e-mail address book to

> ensure that you receive updates on services and savings!

>

> PO Box 31750 | Tucson, AZ 85751-1750 | |

www.fmnetnews.com

> © 2008 Fibromyalgia Network

>

> ---------------------------------

> This e-mail was sent to Lori Hammer at dodgeturbo99@... You

provided your e-mail address when you requested free information from

our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we

understand as well as respect your need for privacy. If you no

longer wish to receive e-mails from the Fibromyalgia Network, please

click here or reply to this message with " unsubscribe " as the subject

line.

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

It looks like you are going to have to get a bigger box, 'cause I want up there

too. I've started a letter to the editor and the managing editor and the other

e-mail address that was on the Fibromyalgia Network. I think they had the right

idea about including what some of the doctors and researchers had to say in

their statements. I hope we can get them to do another article like the FN

suggests.

It was a good letter from them. It took me forever to read it and read the

links but it was worth it. When I enlarge the print I lose part of it so I have

to go back and forth. This eye thing sucks.

Anyway I've definitely had enough of people not " believing " in Fibromyalgia.

It's like a neighbor of mine said one time she didn't believe in " politics " .

How can you not believe in something that is not a question of believing, it

just is! There's no other option.

And whoever said in their letter that it would be stupid to pretend to have a

disease that gets you ridiculed and treated like you were crazy by friends,

family, etc is right on! Now that would be crazy.

Blessed be,

Marti

Lori H wrote:

Definitely Cheryl, let them have it with both barrels. [X-(]

Lori H []

> > From: Fibromyalgia Networkkthorson@

> > To: dodgeturbo99@

> > Subject: Important Announcement

> > Date: Tue, 29 Jan 2008 15:29:14 -0700

> >

> > This e-mail was sent to you by Fibromyalgia Network. To

> ensure receipt of our e-mails, please add us (kthorson@) to your

> address book.

> >

> > Dear Lori Hammer,

> > New York Times writer Berenson bashes pharmaceutical

> companies on a regular basis. But on January 14, 2008 the Times took

> his distrust of the drug industry too far with an insane article

> titled: " Drug Approved. Is Disease Real? " It's a tale about how

> Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

> that they could make a fortune selling their drugs to patients who do

> not really have a disease at all—just problems adapting to the

aches

> and pains of living!

> > The article trampled the reputation of fibromyalgia patients,

> their doctors and scientists in the field. Berenson dredged up

> antiquated beliefs held by three die-hard doctors who truly believe

> millions of Americans are faking fibromyalgia. The stale theory that

> pain was not real unless it could be documented with a blood test or

> X-ray permeated the article.

> > In response to Berenson's front-page feature in the NY Times,

> Fibromyalgia Network solicited statements from researchers and

> physicians across the country. Visit our website to read what the

> experts have to say about fibromyalgia and share their comments with

> anyone who doubts that your symptoms are real.

> > As for the editors at the NY Times, do not hesitate to voice your

> opinion and let them know that they flubbed up by attacking people

> with fibromyalgia, a real disease. E-mail addresses for the News

> Department, the Public Editor, and the Managing Editor of the NY

> Times are given at the end of the web page postings from the experts.

> Feel free to include in your response a few of the valid points made

> by the experts and ask in your e-mail that the editors at the NY

> Times publish a quality article on fibromyalgia, its pain and

> symptoms you struggle with daily.

> > If you or someone you know has fibromyalgia, don't let the NY

> Times set back the progress made in the field these past 20 years.

> Read the comments from the experts and let your voice be

heard—even

> if it is a brief complaint.

> > Kindest regards,

> > Thorson, Editor

> > Fibromyalgia Network

> >

> > ---------------------------------

> > Fibromyalgia Network ... Helping Patients Since 1988

> > Add us (kthorson@) to your e-mail address book to

> > ensure that you receive updates on services and savings!

> >

> > PO Box 31750 | Tucson, AZ 85751-1750 | |

> www.fmnetnews.com

> > © 2008 Fibromyalgia Network

> >

> > ---------------------------------

> > This e-mail was sent to Lori Hammer at dodgeturbo99@ You

> provided your e-mail address when you requested free information from

> our website. Our privacy policy is simple; we do not share any

> information about you with anyone. We are here to serve you, and we

> understand as well as respect your need for privacy. If you no

> longer wish to receive e-mails from the Fibromyalgia Network, please

> click here or reply to this message with " unsubscribe " as the subject

> line.

> >

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make Yahoo your homepage.

> >

> >