Re: Fwd: Important Announcement

[Guest guest]

Thank you for sharing this.

>

> To: dodgeturbo99@...

> Subject: Important Announcement

> Date: Tue, 29 Jan 2008 15:29:14 -0700

>

> This e-mail was sent to you by Fibromyalgia Network. To

ensure receipt of our e-mails, please add us (kthorson@...) to your

address book.

>

> Dear Lori Hammer,

> New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took

his distrust of the drug industry too far with an insane article

titled: " Drug Approved. Is Disease Real? " It's a tale about how

Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

that they could make a fortune selling their drugs to patients who do

not really have a disease at all—just problems adapting to the aches

and pains of living!

> The article trampled the reputation of fibromyalgia patients,

their doctors and scientists in the field. Berenson dredged up

antiquated beliefs held by three die-hard doctors who truly believe

millions of Americans are faking fibromyalgia. The stale theory that

pain was not real unless it could be documented with a blood test or

X-ray permeated the article.

> In response to Berenson's front-page feature in the NY Times,

Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the

experts have to say about fibromyalgia and share their comments with

anyone who doubts that your symptoms are real.

> As for the editors at the NY Times, do not hesitate to voice your

opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News

Department, the Public Editor, and the Managing Editor of the NY

Times are given at the end of the web page postings from the experts.

Feel free to include in your response a few of the valid points made

by the experts and ask in your e-mail that the editors at the NY

Times publish a quality article on fibromyalgia, its pain and

symptoms you struggle with daily.

> If you or someone you know has fibromyalgia, don't let the NY

Times set back the progress made in the field these past 20 years.

Read the comments from the experts and let your voice be heard—even

if it is a brief complaint.

> Kindest regards,

> Thorson, Editor

> Fibromyalgia Network

>

> ---------------------------------

> Fibromyalgia Network ... Helping Patients Since 1988

> Add us (kthorson@...) to your e-mail address book to

> ensure that you receive updates on services and savings!

>

> PO Box 31750 | Tucson, AZ 85751-1750 | |

www.fmnetnews.com

> © 2008 Fibromyalgia Network

>

> ---------------------------------

> This e-mail was sent to Lori Hammer at dodgeturbo99@... You

provided your e-mail address when you requested free information from

our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we

understand as well as respect your need for privacy. If you no

longer wish to receive e-mails from the Fibromyalgia Network, please

click here or reply to this message with " unsubscribe " as the subject

line.

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

ThanYOU Lori for the info. ............. . . . GOD grant me the serenityto

accept the things I cannot change the courage to change the things I canand the

wisdom to know the difference.

To: fibromyalgia_support_group@...:

Place_Vent_Here@...: dodgeturbo99@...: Tue, 29 Jan

2008 14:31:55 -0800Subject: Fwd: Important Announcement

I just got this.Lori HFibromyalgia Network wrote:From:

Fibromyalgia NetworkTo: dodgeturbo99@...:

Important AnnouncementDate: Tue, 29 Jan 2008 15:29:14 -0700This e-mail was sent

to you by Fibromyalgia Network. To ensure receipt of our e-mails, please add us

(kthorson@...) to your address book.Dear Lori Hammer,New York Times

writer Berenson bashes pharmaceutical companies on a regular basis. But on

January 14, 2008 the Times took his distrust of the drug industry too far with

an insane article titled: “Drug Approved. Is Disease Real?” It’s a tale about

how Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so that

they could make a fortune selling their drugs to patients who do not really have

a disease at all—just problems adapting to the aches and pains of living!The

article trampled the reputation of fibromyalgia patients, their doctors and

scientists in the field. Berenson dredged up antiquated beliefs held by three

die-hard doctors who truly believe millions of Americans are faking

fibromyalgia. The stale theory that pain was not real unless it could be

documented with a blood test or X-ray permeated the article.In response to

Berenson’s front-page feature in the NY Times, Fibromyalgia Network solicited

statements from researchers and physicians across the country. Visit our website

to read what the experts have to say about fibromyalgia and share their comments

with anyone who doubts that your symptoms are real. As for the editors at the NY

Times, do not hesitate to voice your opinion and let them know that they flubbed

up by attacking people with fibromyalgia, a real disease. E-mail addresses for

the News Department, the Public Editor, and the Managing Editor of the NY Times

are given at the end of the web page postings from the experts. Feel free to

include in your response a few of the valid points made by the experts and ask

in your e-mail that the editors at the NY Times publish a quality article on

fibromyalgia, its pain and symptoms you struggle with daily.If you or someone

you know has fibromyalgia, don’t let the NY Times set back the progress made in

the field these past 20 years. Read the comments from the experts and let your

voice be heard—even if it is a brief complaint.Kindest regards, Thorson,

EditorFibromyalgia Network---------------------------------Fibromyalgia Network

.... Helping Patients Since 1988Add us (kthorson@...) to your e-mail

address book to ensure that you receive updates on services and savings!PO Box

31750 | Tucson, AZ 85751-1750 | | www.fmnetnews.com © 2008

Fibromyalgia Network---------------------------------This e-mail was sent to

Lori Hammer at dodgeturbo99@.... You provided your e-mail address when you

requested free information from our website. Our privacy policy is simple; we do

not share any information about you with anyone. We are here to serve you, and

we understand as well as respect your need for privacy. If you no longer wish to

receive e-mails from the Fibromyalgia Network, please click here or reply to

this message with " unsubscribe " as the subject

line.---------------------------------Never miss a thing. Make Yahoo your

homepage.

[Guest guest]

ThanYOU Lori for the info. ............. . . . GOD grant me the serenityto

accept the things I cannot change the courage to change the things I canand the

wisdom to know the difference.

To: fibromyalgia_support_group@...:

Place_Vent_Here@...: dodgeturbo99@...: Tue, 29 Jan

2008 14:31:55 -0800Subject: Fwd: Important Announcement

I just got this.Lori HFibromyalgia Network wrote:From:

Fibromyalgia NetworkTo: dodgeturbo99@...:

Important AnnouncementDate: Tue, 29 Jan 2008 15:29:14 -0700This e-mail was sent

to you by Fibromyalgia Network. To ensure receipt of our e-mails, please add us

(kthorson@...) to your address book.Dear Lori Hammer,New York Times

writer Berenson bashes pharmaceutical companies on a regular basis. But on

January 14, 2008 the Times took his distrust of the drug industry too far with

an insane article titled: “Drug Approved. Is Disease Real?” It’s a tale about

how Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so that

they could make a fortune selling their drugs to patients who do not really have

a disease at all—just problems adapting to the aches and pains of living!The

article trampled the reputation of fibromyalgia patients, their doctors and

scientists in the field. Berenson dredged up antiquated beliefs held by three

die-hard doctors who truly believe millions of Americans are faking

fibromyalgia. The stale theory that pain was not real unless it could be

documented with a blood test or X-ray permeated the article.In response to

Berenson’s front-page feature in the NY Times, Fibromyalgia Network solicited

statements from researchers and physicians across the country. Visit our website

to read what the experts have to say about fibromyalgia and share their comments

with anyone who doubts that your symptoms are real. As for the editors at the NY

Times, do not hesitate to voice your opinion and let them know that they flubbed

up by attacking people with fibromyalgia, a real disease. E-mail addresses for

the News Department, the Public Editor, and the Managing Editor of the NY Times

are given at the end of the web page postings from the experts. Feel free to

include in your response a few of the valid points made by the experts and ask

in your e-mail that the editors at the NY Times publish a quality article on

fibromyalgia, its pain and symptoms you struggle with daily.If you or someone

you know has fibromyalgia, don’t let the NY Times set back the progress made in

the field these past 20 years. Read the comments from the experts and let your

voice be heard—even if it is a brief complaint.Kindest regards, Thorson,

EditorFibromyalgia Network---------------------------------Fibromyalgia Network

.... Helping Patients Since 1988Add us (kthorson@...) to your e-mail

address book to ensure that you receive updates on services and savings!PO Box

31750 | Tucson, AZ 85751-1750 | | www.fmnetnews.com © 2008

Fibromyalgia Network---------------------------------This e-mail was sent to

Lori Hammer at dodgeturbo99@.... You provided your e-mail address when you

requested free information from our website. Our privacy policy is simple; we do

not share any information about you with anyone. We are here to serve you, and

we understand as well as respect your need for privacy. If you no longer wish to

receive e-mails from the Fibromyalgia Network, please click here or reply to

this message with " unsubscribe " as the subject

line.---------------------------------Never miss a thing. Make Yahoo your

homepage.

[Guest guest]

You are very welcome ! I am going to be sending out a response to the NY

Times.

Lori H

Honeycutt wrote:

ThanYOU Lori for the info. ............. . . . GOD grant me the serenityto

accept the things I cannot change the courage to change the things I canand the

wisdom to know the difference.

To: fibromyalgia_support_group@...:

Place_Vent_Here@...: dodgeturbo99@...: Tue, 29 Jan

2008 14:31:55 -0800Subject: Fwd: Important Announcement

I just got this.Lori HFibromyalgia Network wrote:From: Fibromyalgia NetworkTo:

dodgeturbo99@...: Important AnnouncementDate: Tue, 29 Jan 2008

15:29:14 -0700This e-mail was sent to you by Fibromyalgia Network. To ensure

receipt of our e-mails, please add us (kthorson@...) to your address

book.Dear Lori Hammer,New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took his

distrust of the drug industry too far with an insane article titled: “Drug

Approved. Is Disease Real?” It’s a tale about how Pfizer, Eli Lilly, and Forest

Laboratories fabricated fibromyalgia so that they could make a fortune selling

their drugs to patients who do not really have a disease at all—just problems

adapting to the aches and pains of living!The article trampled the reputation of

fibromyalgia patients, their doctors and scientists in the field. Berenson

dredged up antiquated beliefs held by three die-hard

doctors who truly believe millions of Americans are faking fibromyalgia. The

stale theory that pain was not real unless it could be documented with a blood

test or X-ray permeated the article.In response to Berenson’s front-page feature

in the NY Times, Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the experts have

to say about fibromyalgia and share their comments with anyone who doubts that

your symptoms are real. As for the editors at the NY Times, do not hesitate to

voice your opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News Department, the

Public Editor, and the Managing Editor of the NY Times are given at the end of

the web page postings from the experts. Feel free to include in your response a

few of the valid points made by the experts and ask in your e-mail that the

editors at the NY Times publish a

quality article on fibromyalgia, its pain and symptoms you struggle with

daily.If you or someone you know has fibromyalgia, don’t let the NY Times set

back the progress made in the field these past 20 years. Read the comments from

the experts and let your voice be heard—even if it is a brief complaint.Kindest

regards, Thorson, EditorFibromyalgia

Network---------------------------------Fibromyalgia Network ... Helping

Patients Since 1988Add us (kthorson@...) to your e-mail address book

to ensure that you receive updates on services and savings!PO Box 31750 |

Tucson, AZ 85751-1750 | | www.fmnetnews.com © 2008 Fibromyalgia

Network---------------------------------This e-mail was sent to Lori Hammer at

dodgeturbo99@.... You provided your e-mail address when you requested free

information from our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we understand

as well

as respect your need for privacy. If you no longer wish to receive e-mails from

the Fibromyalgia Network, please click here or reply to this message with

" unsubscribe " as the subject line.---------------------------------Never miss a

thing. Make Yahoo your homepage.[Non-text portions of this message have been

removed]

_________________________________________________________________

Helping your favorite cause is as easy as instant messaging. You IM, we give.

http://im.live.com/Messenger/IM/Home/?source=text_hotmail_join

[Guest guest]

When this caused such an uproar on the 14th I also sent a reply Lori,

and am hoping that many more people suffering from fibromyalgia do the

same. Sad thing is, upon doing some research, it was not the only

article this month talking in that same tone about fibromyalgia. And

even worse, his article from the NY Times was picked up and ran in

hundreds of newspapers across the country, not just in New York.

I would suggest that in addition to writing the NY Times and Mr.

Bereson there that you send him an email on his website. The NY Times

website states that emails to the authors may be delayed when sent

through the NY Times but I bet emails through his website he would

receive immediately. Just a suggestion in case you wanted to send a

message to the author and the editor of the paper.

N.

[Guest guest]

This is fantastic!

Lori, could you put together a letter and post it in 'files' so we all

get an idea how to do this? Or maybe we'll all send the same letter.

I'd love to see a decent article about FM is the New York Times!

Rally on!!

a

>

> To: dodgeturbo99@...

> Subject: Important Announcement

> Date: Tue, 29 Jan 2008 15:29:14 -0700

>

> This e-mail was sent to you by Fibromyalgia Network. To

ensure receipt of our e-mails, please add us (kthorson@...) to your

address book.

>

> Dear Lori Hammer,

> New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took

his distrust of the drug industry too far with an insane article

titled: " Drug Approved. Is Disease Real? " It's a tale about how

Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

that they could make a fortune selling their drugs to patients who do

not really have a disease at all—just problems adapting to the aches

and pains of living!

> The article trampled the reputation of fibromyalgia patients,

their doctors and scientists in the field. Berenson dredged up

antiquated beliefs held by three die-hard doctors who truly believe

millions of Americans are faking fibromyalgia. The stale theory that

pain was not real unless it could be documented with a blood test or

X-ray permeated the article.

> In response to Berenson's front-page feature in the NY Times,

Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the

experts have to say about fibromyalgia and share their comments with

anyone who doubts that your symptoms are real.

> As for the editors at the NY Times, do not hesitate to voice your

opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News

Department, the Public Editor, and the Managing Editor of the NY Times

are given at the end of the web page postings from the experts. Feel

free to include in your response a few of the valid points made by the

experts and ask in your e-mail that the editors at the NY Times

publish a quality article on fibromyalgia, its pain and symptoms you

struggle with daily.

> If you or someone you know has fibromyalgia, don't let the NY

Times set back the progress made in the field these past 20 years.

Read the comments from the experts and let your voice be heard—even if

it is a brief complaint.

> Kindest regards,

> Thorson, Editor

> Fibromyalgia Network

>

> ---------------------------------

> Fibromyalgia Network ... Helping Patients Since 1988

> Add us (kthorson@...) to your e-mail address book to

> ensure that you receive updates on services and savings!

>

> PO Box 31750 | Tucson, AZ 85751-1750 | |

www.fmnetnews.com

> © 2008 Fibromyalgia Network

>

> ---------------------------------

> This e-mail was sent to Lori Hammer at dodgeturbo99@... You

provided your e-mail address when you requested free information from

our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we

understand as well as respect your need for privacy. If you no longer

wish to receive e-mails from the Fibromyalgia Network, please click

here or reply to this message with " unsubscribe " as the subject line.

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

a,

Actually it was N who brought it to the groups attention earlier. I just

got the email from the Fibro network and sent it out immediately. This is

terrible and should not be happening at all. Maybe will share hers ? I am

still trying to put mine together

Lori H

a wrote:

This is fantastic!

Lori, could you put together a letter and post it in 'files' so we all

get an idea how to do this? Or maybe we'll all send the same letter.

I'd love to see a decent article about FM is the New York Times!

Rally on!!

a

>

> To: dodgeturbo99@...

> Subject: Important Announcement

> Date: Tue, 29 Jan 2008 15:29:14 -0700

>

> This e-mail was sent to you by Fibromyalgia Network. To

ensure receipt of our e-mails, please add us (kthorson@...) to your

address book.

>

> Dear Lori Hammer,

> New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took

his distrust of the drug industry too far with an insane article

titled: " Drug Approved. Is Disease Real? " It's a tale about how

Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

that they could make a fortune selling their drugs to patients who do

not really have a disease at all—just problems adapting to the aches

and pains of living!

> The article trampled the reputation of fibromyalgia patients,

their doctors and scientists in the field. Berenson dredged up

antiquated beliefs held by three die-hard doctors who truly believe

millions of Americans are faking fibromyalgia. The stale theory that

pain was not real unless it could be documented with a blood test or

X-ray permeated the article.

> In response to Berenson's front-page feature in the NY Times,

Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the

experts have to say about fibromyalgia and share their comments with

anyone who doubts that your symptoms are real.

> As for the editors at the NY Times, do not hesitate to voice your

opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News

Department, the Public Editor, and the Managing Editor of the NY Times

are given at the end of the web page postings from the experts. Feel

free to include in your response a few of the valid points made by the

experts and ask in your e-mail that the editors at the NY Times

publish a quality article on fibromyalgia, its pain and symptoms you

struggle with daily.

> If you or someone you know has fibromyalgia, don't let the NY

Times set back the progress made in the field these past 20 years.

Read the comments from the experts and let your voice be heard—even if

it is a brief complaint.

> Kindest regards,

> Thorson, Editor

> Fibromyalgia Network

>

> ---------------------------------

> Fibromyalgia Network ... Helping Patients Since 1988

> Add us (kthorson@...) to your e-mail address book to

> ensure that you receive updates on services and savings!

>

> PO Box 31750 | Tucson, AZ 85751-1750 | |

www.fmnetnews.com

> © 2008 Fibromyalgia Network

>

> ---------------------------------

> This e-mail was sent to Lori Hammer at dodgeturbo99@... You

provided your e-mail address when you requested free information from

our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we

understand as well as respect your need for privacy. If you no longer

wish to receive e-mails from the Fibromyalgia Network, please click

here or reply to this message with " unsubscribe " as the subject line.

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

Here is a copy of what I am working on to send to them.

I am responding to the article published in the January 14, 2008 on page 1

of the New York Times about Fibromyalgia.

I suffer from this disease and I was extremely dishearten by this article in

the way that it tries to state that Fibromyalgia is not a real disease and

that the drug companies are just looking to get rich from the sales of drugs

for a non-existent disease. We are not just " chronic complainers " as was

stated in the article. Many of us have white knuckled this disease for years

trying to understand where the pain was coming from and trying to fix things

in our lives to get better all the while getting worse and being ostracized

from our family, friends and yes, sometimes even the medical community.

I fought the increasing pain in my body for over 10 years. I worked and

worked hard. The pain became increasingly worse. I took Ibuprofen like it

was candy. I got to the point that I could no longer wear a normal pair of

shoes. At home I can only wear soft memory foam slippers and when I am out I

can only stand to wear Crocs on my feet. Anything else hurts as though

someone was pounding my feet with a sledge hammer and that's on a good day!!

I lose my balance, fall for unknown reasons, forget how to do simple tasks

that I have done all of my life and all of this happened BEFORE taking

Lyrica or other medications.

I am in 100% agreement that drug companies are out to get rich, I don't like

them any more than the next person but I can assure you that when there was

a medication available to help me possibly go back to work and support my

four children I was ecstatic and then found out that my insurance wouldn't

cover it initially. They are now covering it for me and I have only begun

taking the medication. I pray that I get some pain relief from a monstrous

disease. Perhaps you and your writers should have done a little more

investigating before announcing that Fibromyalgia is not a real disease.

I suggest that you and your writers print an article about real fibromyalgia

patients and their daily struggles. Learn about us before you also hide us

in the closet and forget we exist because you don't understand what we go

through. We are real people just like all of you.

~~~~~

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of a

Sent: Tuesday, January 29, 2008 11:03 PM

To: Fibromyalgia_Support_Group

Subject: Re: Fwd: Important Announcement

This is fantastic!

Lori, could you put together a letter and post it in 'files' so we all

get an idea how to do this? Or maybe we'll all send the same letter.

I'd love to see a decent article about FM is the New York Times!

Rally on!!

a

>

> To: dodgeturbo99@...

> Subject: Important Announcement

> Date: Tue, 29 Jan 2008 15:29:14 -0700

>

> This e-mail was sent to you by Fibromyalgia Network. To

ensure receipt of our e-mails, please add us (kthorson@...) to your

address book.

>

> Dear Lori Hammer,

> New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took

his distrust of the drug industry too far with an insane article

titled: " Drug Approved. Is Disease Real? " It's a tale about how

Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

that they could make a fortune selling their drugs to patients who do

not really have a disease at all-just problems adapting to the aches

and pains of living!

> The article trampled the reputation of fibromyalgia patients,

their doctors and scientists in the field. Berenson dredged up

antiquated beliefs held by three die-hard doctors who truly believe

millions of Americans are faking fibromyalgia. The stale theory that

pain was not real unless it could be documented with a blood test or

X-ray permeated the article.

> In response to Berenson's front-page feature in the NY Times,

Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the

experts have to say about fibromyalgia and share their comments with

anyone who doubts that your symptoms are real.

> As for the editors at the NY Times, do not hesitate to voice your

opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News

Department, the Public Editor, and the Managing Editor of the NY Times

are given at the end of the web page postings from the experts. Feel

free to include in your response a few of the valid points made by the

experts and ask in your e-mail that the editors at the NY Times

publish a quality article on fibromyalgia, its pain and symptoms you

struggle with daily.

> If you or someone you know has fibromyalgia, don't let the NY

Times set back the progress made in the field these past 20 years.

Read the comments from the experts and let your voice be heard-even if

it is a brief complaint.

> Kindest regards,

> Thorson, Editor

> Fibromyalgia Network

>

> ---------------------------------

> Fibromyalgia Network ... Helping Patients Since 1988

> Add us (kthorson@...) to your e-mail address book to

> ensure that you receive updates on services and savings!

>

> PO Box 31750 | Tucson, AZ 85751-1750 | |

www.fmnetnews.com

> C 2008 Fibromyalgia Network

>

> ---------------------------------

> This e-mail was sent to Lori Hammer at dodgeturbo99@... You

provided your e-mail address when you requested free information from

our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we

understand as well as respect your need for privacy. If you no longer

wish to receive e-mails from the Fibromyalgia Network, please click

here or reply to this message with " unsubscribe " as the subject line.

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

,

Great Letter that will also help me!

Lori H

wrote:

Here is a copy of what I am working on to send to them.

I am responding to the article published in the January 14, 2008 on page 1

of the New York Times about Fibromyalgia.

I suffer from this disease and I was extremely dishearten by this article in

the way that it tries to state that Fibromyalgia is not a real disease and

that the drug companies are just looking to get rich from the sales of drugs

for a non-existent disease. We are not just " chronic complainers " as was

stated in the article. Many of us have white knuckled this disease for years

trying to understand where the pain was coming from and trying to fix things

in our lives to get better all the while getting worse and being ostracized

from our family, friends and yes, sometimes even the medical community.

I fought the increasing pain in my body for over 10 years. I worked and

worked hard. The pain became increasingly worse. I took Ibuprofen like it

was candy. I got to the point that I could no longer wear a normal pair of

shoes. At home I can only wear soft memory foam slippers and when I am out I

can only stand to wear Crocs on my feet. Anything else hurts as though

someone was pounding my feet with a sledge hammer and that's on a good day!!

I lose my balance, fall for unknown reasons, forget how to do simple tasks

that I have done all of my life and all of this happened BEFORE taking

Lyrica or other medications.

I am in 100% agreement that drug companies are out to get rich, I don't like

them any more than the next person but I can assure you that when there was

a medication available to help me possibly go back to work and support my

four children I was ecstatic and then found out that my insurance wouldn't

cover it initially. They are now covering it for me and I have only begun

taking the medication. I pray that I get some pain relief from a monstrous

disease. Perhaps you and your writers should have done a little more

investigating before announcing that Fibromyalgia is not a real disease.

I suggest that you and your writers print an article about real fibromyalgia

patients and their daily struggles. Learn about us before you also hide us

in the closet and forget we exist because you don't understand what we go

through. We are real people just like all of you.

~~~~~

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of a

Sent: Tuesday, January 29, 2008 11:03 PM

To: Fibromyalgia_Support_Group

Subject: Re: Fwd: Important Announcement

This is fantastic!

Lori, could you put together a letter and post it in 'files' so we all

get an idea how to do this? Or maybe we'll all send the same letter.

I'd love to see a decent article about FM is the New York Times!

Rally on!!

a

>

> To: dodgeturbo99@...

> Subject: Important Announcement

> Date: Tue, 29 Jan 2008 15:29:14 -0700

>

> This e-mail was sent to you by Fibromyalgia Network. To

ensure receipt of our e-mails, please add us (kthorson@...) to your

address book.

>

> Dear Lori Hammer,

> New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took

his distrust of the drug industry too far with an insane article

titled: " Drug Approved. Is Disease Real? " It's a tale about how

Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

that they could make a fortune selling their drugs to patients who do

not really have a disease at all-just problems adapting to the aches

and pains of living!

> The article trampled the reputation of fibromyalgia patients,

their doctors and scientists in the field. Berenson dredged up

antiquated beliefs held by three die-hard doctors who truly believe

millions of Americans are faking fibromyalgia. The stale theory that

pain was not real unless it could be documented with a blood test or

X-ray permeated the article.

> In response to Berenson's front-page feature in the NY Times,

Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the

experts have to say about fibromyalgia and share their comments with

anyone who doubts that your symptoms are real.

> As for the editors at the NY Times, do not hesitate to voice your

opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News

Department, the Public Editor, and the Managing Editor of the NY Times

are given at the end of the web page postings from the experts. Feel

free to include in your response a few of the valid points made by the

experts and ask in your e-mail that the editors at the NY Times

publish a quality article on fibromyalgia, its pain and symptoms you

struggle with daily.

> If you or someone you know has fibromyalgia, don't let the NY

Times set back the progress made in the field these past 20 years.

Read the comments from the experts and let your voice be heard-even if

it is a brief complaint.

> Kindest regards,

> Thorson, Editor

> Fibromyalgia Network

>

> ---------------------------------

> Fibromyalgia Network ... Helping Patients Since 1988

> Add us (kthorson@...) to your e-mail address book to

> ensure that you receive updates on services and savings!

>

> PO Box 31750 | Tucson, AZ 85751-1750 | |

www.fmnetnews.com

> C 2008 Fibromyalgia Network

>

> ---------------------------------

> This e-mail was sent to Lori Hammer at dodgeturbo99@... You

provided your e-mail address when you requested free information from

our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we

understand as well as respect your need for privacy. If you no longer

wish to receive e-mails from the Fibromyalgia Network, please click

here or reply to this message with " unsubscribe " as the subject line.

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

Thank you, .

This is a great start!

a

>

> Here is a copy of what I am working on to send to them.

>

>

>

>

>

> I am responding to the article published in the January 14, 2008 on

page 1

> of the New York Times about Fibromyalgia.

>

> I suffer from this disease and I was extremely dishearten by this

article in

> the way that it tries to state that Fibromyalgia is not a real

disease and

> that the drug companies are just looking to get rich from the sales

of drugs

> for a non-existent disease. We are not just " chronic complainers " as was

> stated in the article. Many of us have white knuckled this disease

for years

> trying to understand where the pain was coming from and trying to

fix things

> in our lives to get better all the while getting worse and being

ostracized

> from our family, friends and yes, sometimes even the medical community.

>

>

>

> I fought the increasing pain in my body for over 10 years. I worked and

> worked hard. The pain became increasingly worse. I took Ibuprofen

like it

> was candy. I got to the point that I could no longer wear a normal

pair of

> shoes. At home I can only wear soft memory foam slippers and when I

am out I

> can only stand to wear Crocs on my feet. Anything else hurts as though

> someone was pounding my feet with a sledge hammer and that's on a

good day!!

> I lose my balance, fall for unknown reasons, forget how to do simple

tasks

> that I have done all of my life and all of this happened BEFORE taking

> Lyrica or other medications.

>

>

>

> I am in 100% agreement that drug companies are out to get rich, I

don't like

> them any more than the next person but I can assure you that when

there was

> a medication available to help me possibly go back to work and

support my

> four children I was ecstatic and then found out that my insurance

wouldn't

> cover it initially. They are now covering it for me and I have only

begun

> taking the medication. I pray that I get some pain relief from a

monstrous

> disease. Perhaps you and your writers should have done a little more

> investigating before announcing that Fibromyalgia is not a real disease.

>

>

>

> I suggest that you and your writers print an article about real

fibromyalgia

> patients and their daily struggles. Learn about us before you also

hide us

> in the closet and forget we exist because you don't understand what

we go

> through. We are real people just like all of you.

>

>

>

>

>

> ~~~~~

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of a

> Sent: Tuesday, January 29, 2008 11:03 PM

> To: Fibromyalgia_Support_Group

> Subject: Re: Fwd: Important Announcement

>

>

>

> This is fantastic!

> Lori, could you put together a letter and post it in 'files' so we all

> get an idea how to do this? Or maybe we'll all send the same letter.

> I'd love to see a decent article about FM is the New York Times!

>

> Rally on!!

> a

[Guest guest]

Tell that jerk that wrote the article that he is a selfish a#$hole. And please

tell him he is ignorant. OH well, maybe not just like that. LOL. You get the

picture.

love,

Debra V.

Lori Hammer wrote:

You are very welcome ! I am going to be sending out a response to

the NY Times.

Lori H

Honeycutt wrote:

ThanYOU Lori for the info. ............. . . . GOD grant me the serenityto

accept the things I cannot change the courage to change the things I canand the

wisdom to know the difference.

To: fibromyalgia_support_group@...:

Place_Vent_Here@...: dodgeturbo99@...: Tue, 29 Jan

2008 14:31:55 -0800Subject: Fwd: Important Announcement

I just got this.Lori HFibromyalgia Network wrote:From: Fibromyalgia NetworkTo:

dodgeturbo99@...: Important AnnouncementDate: Tue, 29 Jan 2008

15:29:14 -0700This e-mail was sent to you by Fibromyalgia Network. To ensure

receipt of our e-mails, please add us (kthorson@...) to your address

book.Dear Lori Hammer,New York Times writer Berenson bashes pharmaceutical

companies on a regular basis. But on January 14, 2008 the Times took his

distrust of the drug industry too far with an insane article titled: “Drug

Approved. Is Disease Real?” It’s a tale about how Pfizer, Eli Lilly, and Forest

Laboratories fabricated fibromyalgia so that they could make a fortune selling

their drugs to patients who do not really have a disease at all—just problems

adapting to the aches and pains of living!The article trampled the reputation of

fibromyalgia patients, their doctors and scientists in the field. Berenson

dredged up antiquated beliefs held by three die-hard

doctors who truly believe millions of Americans are faking fibromyalgia. The

stale theory that pain was not real unless it could be documented with a blood

test or X-ray permeated the article.In response to Berenson’s front-page feature

in the NY Times, Fibromyalgia Network solicited statements from researchers and

physicians across the country. Visit our website to read what the experts have

to say about fibromyalgia and share their comments with anyone who doubts that

your symptoms are real. As for the editors at the NY Times, do not hesitate to

voice your opinion and let them know that they flubbed up by attacking people

with fibromyalgia, a real disease. E-mail addresses for the News Department, the

Public Editor, and the Managing Editor of the NY Times are given at the end of

the web page postings from the experts. Feel free to include in your response a

few of the valid points made by the experts and ask in your e-mail that the

editors at the NY Times publish a

quality article on fibromyalgia, its pain and symptoms you struggle with

daily.If you or someone you know has fibromyalgia, don’t let the NY Times set

back the progress made in the field these past 20 years. Read the comments from

the experts and let your voice be heard—even if it is a brief complaint.Kindest

regards, Thorson, EditorFibromyalgia

Network---------------------------------Fibromyalgia Network ... Helping

Patients Since 1988Add us (kthorson@...) to your e-mail address book

to ensure that you receive updates on services and savings!PO Box 31750 |

Tucson, AZ 85751-1750 | | www.fmnetnews.com © 2008 Fibromyalgia

Network---------------------------------This e-mail was sent to Lori Hammer at

dodgeturbo99@.... You provided your e-mail address when you requested free

information from our website. Our privacy policy is simple; we do not share any

information about you with anyone. We are here to serve you, and we understand

as well

as respect your need for privacy. If you no longer wish to receive e-mails from

the Fibromyalgia Network, please click here or reply to this message with

" unsubscribe " as the subject line.---------------------------------Never miss a

thing. Make Yahoo your homepage.[Non-text portions of this message have been

removed]

__________________________________________________________

Helping your favorite cause is as easy as instant messaging. You IM, we give.

http://im.live.com/Messenger/IM/Home/?source=text_hotmail_join

[Guest guest]

Whats his website ?

Re: Fwd: Important Announcement

When this caused such an uproar on the 14th I also sent a reply Lori,

and am hoping that many more people suffering from fibromyalgia do the

same. Sad thing is, upon doing some research, it was not the only

article this month talking in that same tone about fibromyalgia. And

even worse, his article from the NY Times was picked up and ran in

hundreds of newspapers across the country, not just in New York.

I would suggest that in addition to writing the NY Times and Mr.

Bereson there that you send him an email on his website. The NY Times

website states that emails to the authors may be delayed when sent

through the NY Times but I bet emails through his website he would

receive immediately. Just a suggestion in case you wanted to send a

message to the author and the editor of the paper.

N.

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.