it's back...

[Guest guest]

I thought I was doing so much better too..Doing everything I was told...all

the right supplements, off the lyrica and onto the topamax (less swelling and

additional weight loss benefits), exercising at the gym three times a week,

and then the three sugar cookies Tuesday after NO sugar for 4 months. Then

the horrible storms Wednesday nite and I have been in the worst pain ever since

then. Every muscle in my body hurts, my head hurts, even my bladder hurts.

I can not believe it - I thought I was so much better. I had forgotten

just how bad it can get. Having 20 people here tomorrow for my grandson's

birthday and I just want to crawl in a hole and pull my dirty house after me.

So

yes, I do think this dam disease progresses no matter what we do and I think

that stinks!!! BUT I have do not time for a pity party so I have to postpone

it for now- now if my body will just get me thru the next 24 hours I will

collapse and totally give in, again!!

Gentle hugs,,Marla

In a message dated 2/1/2008 11:38:47 A.M. Central Standard Time,

chwhitewolf@... writes:

I was starting to do better, even without the flexerill. the lyrica

proved too much for me ( i was sooo dizzy constntly ) so doc backed the

dose down 2 weeks ago. suddenly yesterday my legs were in unimaginable

(well, I know you guys CAN imagine...) pain! I almost couldn't walk to

my truck to go pick up my daughter from school! this morning I can

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

[Guest guest]

I was starting to do better, even without the flexerill. the lyrica

proved too much for me ( i was sooo dizzy constntly ) so doc backed the

dose down 2 weeks ago. suddenly yesterday my legs were in unimaginable

(well, I know you guys CAN imagine...) pain! I almost couldn't walk to

my truck to go pick up my daughter from school! this morning I can

hardly move at all! legs arms back...worse than ever! it really does

seem to get worse with each flare up. my daughter came into the

bathroom this morning because she heard me crying, my poor baby didn't

know what to say or do, she just gave me a hug ,then I told her to

finish getting ready for school. she's just 7.

wether my insurance finaly came through or not I am picking up the

flexerill today, one more they can reimburse me for when they pull

their heads out. $ 135 already. the boys have fixed my wheelchair..just

in case. sweet, but theres nothing I hate more than that P.O.S. ya

know. God please don't let it come to that. I haven't needed it in 5

years.

[Guest guest]

The damn monster always comes back. It sucks. Yes it is progressive and I

don't care what doctor says it is not. It is like living in hell that no one

else can see but you.

Hang in honey. I can't imagine how you are going to hold up to the birthday

party. After that, rest, rest and rest some more. That is an order. LOL.

so sorry to hear this.

And the other person that wrote about the leg pain. I am so sorry to hear

that too. We just never know what will set the monster off. I so hope both of

you find some kind of relief.

love and hugs,

Debra V.

jessiejo10@... wrote:

I thought I was doing so much better too..Doing everything I was

told...all

the right supplements, off the lyrica and onto the topamax (less swelling and

additional weight loss benefits), exercising at the gym three times a week,

and then the three sugar cookies Tuesday after NO sugar for 4 months. Then

the horrible storms Wednesday nite and I have been in the worst pain ever since

then. Every muscle in my body hurts, my head hurts, even my bladder hurts.

I can not believe it - I thought I was so much better. I had forgotten

just how bad it can get. Having 20 people here tomorrow for my grandson's

birthday and I just want to crawl in a hole and pull my dirty house after me. So

yes, I do think this dam disease progresses no matter what we do and I think

that stinks!!! BUT I have do not time for a pity party so I have to postpone

it for now- now if my body will just get me thru the next 24 hours I will

collapse and totally give in, again!!

Gentle hugs,,Marla

In a message dated 2/1/2008 11:38:47 A.M. Central Standard Time,

chwhitewolf@... writes:

I was starting to do better, even without the flexerill. the lyrica

proved too much for me ( i was sooo dizzy constntly ) so doc backed the

dose down 2 weeks ago. suddenly yesterday my legs were in unimaginable

(well, I know you guys CAN imagine...) pain! I almost couldn't walk to

my truck to go pick up my daughter from school! this morning I can

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)