Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 Hello everyone...not sure if I'm doing this right...but wanted to jump right on in. I'm Anita (known online as ButterflyKisses) I'm a 45, married mother of two, grandmother of one, and am owned by my two mini dach's...lol After 8 years of pain, going from one doctor to the next...5 years ago I was diagnosed with MS...but that didn't account for the daily pain...now I'm sure I'm not the only one out there that has went through the following... Q. Where do you hurt. A. Depends on the day, and what I'm doing. Q. How bad is the pain A. Depends on the day, and what I'm doing. Q. Is it a stabbing pain? A. Depends on the day and what I'm doing (see a pattern forming??? LOL What other symptoms do you have...well let's see... Fatigue, numbness, tingling, pin pricks, ... Okay where... UUHHH depends on the day and what I'm doing! Now I've been playing this little cat and mouse game for years! My family doctor cared, but had NO clue what was happening. I ended up being on a Duragesic Patch (75 MG)... Which when taken with my Neurontin and Elavil really did wonders! Was I pain free? Nope... But at least I could function. My world came crashing down last November. You see my family doctor got sick and ended up having of all things...open heart surgery. She's been my doctor for over 8 years, and knew all about my struggle. When she got ill, I had to see another doctor in the same building, since you can't get refill s on the Patch. This doctor told me it was all in my head, that I just like getting high, and that it was over. I put on my last patch on the 2nd of January... Now I'm not sure if you all know this...but...you are NEVER suppose to go off that patch cold turkey, you're suppose to be weaned...not me...oohhh nooo... And to be honest....for over a week...I went through the worst withdraws... I went through hell! The only GOOD thing about it... I finally was sent to the Cleveland Clinic (no one within 200 miles wanted to touch me)... But I digress.... Finally . ..I have an answer...it's Fibro....which by the way was the FIRST thing my family doctor thought it was....will the Cleveland Clinic treat me and help me??? Not unless I go to Cleveland, stay for a month (in a motel room....) and go to Physical Therapy, Group Therapy (long story..lol), Individual Therapy, and various other therapies! Welllll.... Number one my husbands insurance would have a cow! And we would go bankrupt between the motel cost and food costs. So where does that leave me??? Struggling! All those symptoms that had become bearable are now back with fury! Right now it's impossible to do anything for any length of time. I never wanted to get high.....I wanted to be able to function!!! Okay, I'm sorry...I've screamed long enough...I don't want to push you all away with my first post.... Someone, anyone...tell me there's hope out there!!! Thanks for listening...uuhh reading Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Hi Anita, I want to welcome you to the group (and all the newbies I have missed). You probably haven't seen my name a lot as I am having sight issues and having trouble reading and replying to posts. I was able to magnify your letter (some I can't or I lose the right side of the letter - go figure). You're right about a lot of people going through several of things you have mentioned, so don't feel bad at all " screaming " about them, as you say. We are use to doctors and others who say we are drug seekers and don't have any reason for wanting pain meds except to get high. It makes me want to growl just typing it. GRRRRRR I'm so sorry you lost the doctor who was so helpful. I haven't used the patch, but can imagine the withdrawal was terrible. I read about this " cold turkey " business a lot on here and don't know why the doctors don't wean people when they have to know they should. I hope you find a solution soon and I'm sorry you are in such pain. We are here to support and comfort you so you have come to the right place. Welcome, Marti " tubelover2u@... " wrote: Hello everyone...not sure if I'm doing this right...but wanted to jump right on in. I'm Anita (known online as ButterflyKisses) I'm a 45, married mother of two, grandmother of one, and am owned by my two mini dach's...lol After 8 years of pain, going from one doctor to the next...5 years ago I was diagnosed with MS...but that didn't account for the daily pain...now I'm sure I'm not the only one out there that has went through the following... Q. Where do you hurt. A. Depends on the day, and what I'm doing. Q. How bad is the pain A. Depends on the day, and what I'm doing. Q. Is it a stabbing pain? A. Depends on the day and what I'm doing (see a pattern forming??? LOL What other symptoms do you have...well let's see... Fatigue, numbness, tingling, pin pricks, ... Okay where... UUHHH depends on the day and what I'm doing! Now I've been playing this little cat and mouse game for years! My family doctor cared, but had NO clue what was happening. I ended up being on a Duragesic Patch (75 MG)... Which when taken with my Neurontin and Elavil really did wonders! Was I pain free? Nope... But at least I could function. My world came crashing down last November. You see my family doctor got sick and ended up having of all things...open heart surgery. She's been my doctor for over 8 years, and knew all about my struggle. When she got ill, I had to see another doctor in the same building, since you can't get refill s on the Patch. This doctor told me it was all in my head, that I just like getting high, and that it was over. I put on my last patch on the 2nd of January... Now I'm not sure if you all know this...but...you are NEVER suppose to go off that patch cold turkey, you're suppose to be weaned...not me...oohhh nooo... And to be honest....for over a week...I went through the worst withdraws... I went through hell! The only GOOD thing about it... I finally was sent to the Cleveland Clinic (no one within 200 miles wanted to touch me)... But I digress.... Finally . ...I have an answer...it's Fibro....which by the way was the FIRST thing my family doctor thought it was....will the Cleveland Clinic treat me and help me??? Not unless I go to Cleveland, stay for a month (in a motel room....) and go to Physical Therapy, Group Therapy (long story..lol), Individual Therapy, and various other therapies! Welllll.... Number one my husbands insurance would have a cow! And we would go bankrupt between the motel cost and food costs. So where does that leave me??? Struggling! All those symptoms that had become bearable are now back with fury! Right now it's impossible to do anything for any length of time. I never wanted to get high.....I wanted to be able to function!!! Okay, I'm sorry...I've screamed long enough...I don't want to push you all away with my first post.... Someone, anyone...tell me there's hope out there!!! Thanks for listening...uuhh reading Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Hi Anita - Is your wonderful doctor going to be able to continue with her practice after recovering from the surgery? Keep searching for another good doc. They are out there. Take care. Jeanne in WI > Hello everyone...not sure if I'm doing this right...but wanted to jump > right on in. I'm Anita (known online as ButterflyKisses) I'm a 45, > married mother of two, grandmother of one, and am owned by my two mini > dach's...lol > > After 8 years of pain, going from one doctor to the next...5 years ago I > was diagnosed with MS...but that didn't account for the daily pain...now > I'm sure I'm not the only one out there that has went through the > following... > Q. Where do you hurt. A. Depends on the day, and what I'm doing. Q. How > bad is the pain A. Depends on the day, and what I'm doing. Q. Is it a > stabbing pain? A. Depends on the day and what I'm doing (see a pattern > forming??? LOL What other symptoms do you have...well let's see... > Fatigue, numbness, tingling, pin pricks, ... Okay where... UUHHH depends > on the day > and what I'm doing! Now I've been playing this little cat and mouse game > for years! My family doctor cared, but had NO clue what was happening. I > ended up being on a Duragesic Patch (75 MG)... Which when taken with my > Neurontin and Elavil really did wonders! Was I pain free? Nope... But at > least I could function. > > My world came crashing down last November. You see my family doctor got > sick and ended up having of all things...open heart surgery. She's been > my doctor for over 8 years, and knew all about my struggle. When she got > ill, I had to see another doctor in the same building, since you can't get > refills on the Patch. This doctor told me it was all in my head, that I > just like getting high, and that it was over. I put on my last patch on > the 2nd of January... Now I'm not sure if you all know this...but...you are NEVER suppose to go off that patch cold turkey, you're suppose to be weaned...not me...oohhh nooo... And to be honest....for over a week...I went through the worst withdraws... I went through hell! > > The only GOOD thing about it... I finally was sent to the Cleveland Clinic > (no one within 200 miles wanted to touch me)... But I digress.... Finally > .I have an answer...it's Fibro....which by the way was the FIRST thing my > family doctor thought it was....will the Cleveland Clinic treat me and > help me??? Not unless I go to Cleveland, stay for a month (in a motel > room....) and go to Physical Therapy, Group Therapy (long story..lol), Individual Therapy, and various other therapies! Welllll.... Number one my husbands > insurance would have a cow! And we would go bankrupt between the motel > cost and food costs. So where does that leave me??? Struggling! All > those symptoms that had become bearable are now back with fury! Right now it's impossible to do anything for any length of time. I never wanted to get high.....I wanted to be able to function!!! > > Okay, I'm sorry...I've screamed long enough...I don't want to push you all > away with my first post.... Someone, anyone...tell me there's hope out > there!!! > > Thanks for listening...uuhh reading > > Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Welcome, Anita!! You're right on -- it's simultaneously " terrifying " and frustrating that the dx, tx, good doctors, etc., are so hard to find, then when you do find one and all is beginning to improve, even stabilize, one tiny little pebble or grain of sand in the system fan blow it all away. I think that is part of what makes this group so great -- no matter where we are or how often we do or do not get out, we are able to hear others' experiences and realize that we are not alone!!!! Now, even the soap box NYT stirred up has to be enlarged! For example, I know that for me, it's given me another reference point to be able to tell my dr that I've started participating in this group, and for example, I am not the only one (although the only one he/d ever heard of) that had the reaction that I did to Lyrica. Anyway, I am pretty new here too and I have already found it to have very supportive benefits. Welcome!! Cheryl M. Quote Link to comment Share on other sites More sharing options...
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