Re: Rice Crispy Neck/ now questions

[Guest guest]

thanks everyone for the advice.

has anyone here been able to retire medically?

I told my hubby i just can't stand it anymore, i can't

stand all day long in front of a podieum, and do the

EMT training.

the stress at work IS effecting my health problems.

so if you all had to answer 2 questions what would be

your replies.

question

1.Fully describe your disease?

2.Describe how your disease effects your daily living

and interferes or restrictions of your activties

imposed by this disease.

--- LadyMoonkist wrote:

> Hi Diane...

>

> I bought books on it, and kept them laying around

> when my friends would come

> to visit...and being that people are often

> " nosey " ...they would pick them up

> and thumb through them. I also printed out a poster

> on this site, its the

> black and white one, and would pass it around to

> them, and say...this is

> what I deal with, and when I don't say words right,

> or I complain about my

> pain over and over again, please just try to

> remember this http://www

>

fibrohugs.com/staticpages/index.php?page=20040408162126370

>

> Some of my friends would come over in the beginning

> before I had my

> gallbladder removed and they could see I was sick

> bad. I lost 147 lbs. In a

> years time before the docs found the dead

> gallbladder. I couldn't eat, and

> when I did, it was babyfood...and it didn't always

> stay down. So most of

> them saw me sick and in pain, and knew there was

> something going on.

>

> Although some are still around, by phone only

> nowadays it seems, I feel as

> if they do understand, but are afraid, even though I

> have told them time

> after time fibro is not contagious...I feel as if

> they worry about " catching

> it.

>

>

>

> -- Re: Fwd: Re: Rice Crispy Neck

> > >

> > > Hi Diane,

> > > I don't think I've ever heard it put that way

> > > before, but I have the same

> > > thing. Not all the time, but a lot of the time.

> > I

> > > try to tell my doctor

> > > that is sounds like snaps and crackles, but I

> > forgot

> > > about the pop. Never

> > > related it to rice crispies, but that is the

> > perfect

> > > description. I have a

> > > pretty good range of motion at least, but it

> hurts

> > > if I go too far, like

> > > when I'm looking backward to back the car up.

> > > I've also had the bad chest pains. Mine are

> > just

> > > below the breast bone

> > > and then continue down the side of my abdomen.

> > I've

> > > been to the emergency

> > > room it has been so bad.

> > > Thankfully I don't have a sensation of walking

> > on

> > > glass, but if I don't

> > > wear just the right shoes my hips hurt terribly.

> > My

> > > left hip hurts anyway.

> > > My hands and particularly my feet have spasms

> and

> > > cramps that come out of

> > > nowhere. I do have involuntary shakes too.

> > > Aren't you glad to hear all of this. I guess

> it

> > > might be good to know you

> > > are not alone, but I guess they are symptoms of

> > > fibromyalgia, although who

> > > knows anymore.

> > > ttfn,

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > > 1. While it is wonderful to share our

> experiences

> > > with everyone on the list as to what treatments

> do

> > > and don't work for us, pls always check with

> your

> > > dr. Some treatments are dangerous when given

> > along

> > > with other meds as well as to certain health

> > > conditions or just dangerous in general.

> > >

> > > 2. If you are in a difficult situation (doesn't

> > > matter what it is) pls don't be afraid to ask

> for

> > > help. It is the first step to trying to make

> that

> > > situation better.

> > >

> > > 3. To unsubscribe the e-mail is:

> > >

> >

>

Fibromyalgia_Support_Group-unsubscribe

> > >

> > > 4. Also, it is not uncommon for more than one

> > member

> > > to be feeling bad at the same time when it comes

> > to

> > > flares and b/c of that potentially take

> something

> > > another member says the wrong way. And that

> > > includes the things that one member may find

> funny

> > > (even if it's laughing at fibro itself) even

>

=== message truncated ===

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