Re: Newcomer in auto accident

[Guest guest]

Welcome newcomer, I to am only a couple days in, and find it my daily activity

now, as I to have been feeling so poorly I have not had anything in me ti

communicate with anyone, family included, though I get caught up with if I don't

talk no one will know, and the other thought if I do talk they will get sick of

hearing I still don't feel better. I am sorry to hear u had an accident, that

is all the Fibro needed, all I did was fall out in my driveway on the

snowcovered ice and it did me in for weeks. I felt like I had jumped off the

Empire State building and survived but wished I hadn't! I also suffer with the

thyroid thing, or should I say I don't suffer with the gland itself anymore as

they took it out with para's back in 1977, but still suffer with issues seems

also to run in cycles! I think though now if u get the test and they say u

should have it gone, now they do it by a radioactive pill., much easier, I had

it done in Boston and the choice was drink a

radioactive drink, but if I wanted kids that DR. did not recommend taking that

drink, so later sought a awsome Dr. in Boston and he surgically removed, I had

come close to death with it, when I have something happen it happens big!

So again, welcome hope u recover quickly and that fibro backs off quick, that is

the frustrating thing to me. I need a knee replacement, had shoulder surgeries

2 yrs in row, and my Rhuemo, says I really should not have surgery because it

causes Fibro flare-ups and may not quit, I have been in a whopper now since

Aug., but I am dealing with alot of stress also that feed this wicked disease!

I have learned one thing that was very hard for me to do. and that was pacing

out jobs I want to accomplish and when my boody says it is tired and rest I have

to no matter what my mind wants to do. Again Welcometeri

wrote:

Hey, new one here. Actually I have been lurking for a couple of weeks. I

felt too lousy to even jump in and say hello. WOW, I do know exactly

how you feel. I arrived in this condition from an auto accident….

Some young man used the back of my car to stop is car….abruptly I

might say. I look fine other than a closed head injury, herniated disks

and a really bad back now! To make matters worse this FM set in and has

taken up permanent residence had to ½ my neck fused together, my

thyroid then developed nodules (too many x-rays or possibly from the

surgery) my gall bladder came out this spring. I am on more meds than I

can remember to list and am seeing a pain management doctor. Oh did

forget to mention I will be seeing an endocrinologist in a couple of

weeks or as soon as I can get an appointment because the doctor keeps

having to increase my thyroid medication….I guess they might yank

that out too depending on what they find again.

But hey I look great! It's terrible how we are treated for having

this monster! So sorry you have to be treated like that. I couldn't go

back to work because I am permanantly disabled. But I do know of friends

who have to go through that at work. I give all of you credit who are

still trying to make it to work everyday. It takes great strength on

your part..... you should know in your heart they would crumble should

they try to walk a mile in your shoes! God bless all of you!

P.S And it snowed 6 inches last night….I HURT!

T.R.

>

> Debra,

> I'm so sorry. This is what I have been saying about what I went

through. People don't care. For the most part they look for anything to

talk bad about you. I don't know what the hell happened to compassion,

but it is sure hard to find anymore. I was so sick the last few months I

was at work I didn't wear makeup anymore and my hair was in a ponytail

most of the time because that way I didn't have to fuss with it.

>

> They all knew I had Lupus for 2 years and all they did was berate me

behind my back. I'd drag in there looking so bad and being so sick and I

still worked circles around them. So they badmouthed me because of that.

Then they tell me to take it easy and not work so hard and then they'd

badmouth me because I wasn't doing everyone's job anymore.

>

> The truth is that we start to believe that its because of our illness,

but its not. It's the nature of the environment and unfortunately its

very common today. We just become extra sensitive to it because we have

something for them to sink their teeth into. When we are absent we

aren't there to defend ourselves. However, if it wasn't our health it

wouldn't make them stop. They would find something anyway.

>

> So try not to let it get to you like it did me. I was devastated by

it. It damn near killed me; and it damn near killed at least 5 other

people at my place of employment that I know of. People that did NOT

have any chronic diseases. It DID kill one guy that I know of; at 38.

ly, I wasn't even diagnosed with Lupus when I went to work there;

and my blood pressure was normal without medication.

>

> The disease is hard enough to live with. The backbiting isn't because

of your disease; its there anyway. You just worry about you and not what

people are saying.

>

> Angie Harley Mama Double-D

> Carson City, NV; Single, five children (3 at home), 2 dogs, 4 cats,

snow skiing, camping, Harley Rider, Lone Wolf, Blue Thong Society/High

Sierra Thong Snappers member, LFA Advocate, independent, opinionated,

outspoken, and open minded.

>

> " It's always something. " ~~~Gilda Radner

>

>

>

> " While we have the gift of life, it seems to me the only tragedy is to

allow part of us to die - whether it is our spirit,our creativity, or

our glorious uniqueness. " ~~~Gilda Radner

>

> http://360.yahoo.com/lovinglifeinnv

> http://www.myspace.com/amkg

> http://doripost.agrato.info/

>

> http://www.facebook.com/profile.php?id=592316375

> http://health.groups.yahoo.com/group/LupusSurvivorsU/

> http://www.revolutionhealth.com/blogs/angiemg

>

>

>

>

> Tired of pretending, anger, and tears

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> I just have to vent today. I am just feeling do down. I am so tired of

pretending I am fine when I am not. Yesterday was like trying to run a

marathon just going to work. They could not see under the makeup and the

" cheerful attitude " that I felt like $hit. What is worse is they don't

give a damn. I know it too.

>

> Things come back to me when I feel this bad. I remember the comments

my supervisor has made to me about a sister in law of hers with FM. She

depicted her to me as lazy. She said " she slept all day " .... what she

does not understand is that this damn crap comes with sleep disorders on

top of it all. And she had made a comment that " she did not work like

you do " . And said " she is a prescription drug addict " . Well, I am not

able to freaken work. Damn it! Not a person on earth gives a crap but

the people here.

>

> I also remember what the nurse that I work with said one day. When she

told me about her friend who has fibro. She said she does not talk to

that friend anymore because " she just wants people to feel sorry for

her " .. and made comments about her pain meds and how she can hardly stay

awake. (It is probably from the damn fibro fog and not her pain meds).

>

>

>

> I am fed up with people just not believing this shit. It hurts me

greatly. If I have larnyngitis or a cold, I get " oh, I can tell you feel

so bad " . Then they acknowledge that I am sick. But not with the fibro. I

know that any comment I make about it probably makes them roll their

eyes.

>

>

>

> I am angry, pissed, and so fed up. I just don't know how much longer I

can take the " don't give a shit " attitude of these people. I don't

expect any special treatment, but I don't want to be considered an idiot

either. And if I call in and say " I am sick... It is the fibro " .... they

will just talk about me then the next time I come in NO ONE will even

ask how I am.

>

>

>

> I am just so angry. Thanks for listening. Guess what? They get me

today without makeup. I don't care. Let them see how I look and feel

every day of my life without me trying to hide it.

>

>

>

> love ya all,

>

> Debra V.

>

>

>

> ------------ --------- --------- ---

>

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try

it now.

>

>

>

>

[Guest guest]

Thanks for the replies...I do have a great pain mgmt dr. But as some

of you probable already know we take so many different meds just to

control this stuff people call you a pill popper. I find the weather

greatly affects how I do or do not feel. I also live in the north

east and it has done nothing but snow and rain for days on end

lately. Right now my best friend is my heating pad. My dr says to use

ice but I can't stand the cold it actually hurts. My PC did raise my

levoxyl up to the next higher dose which seems to be helping but I

had to beg him to bump it up. My symptoms were to bad wait to get in

to see the endocrinologist. I think this is the first time I haven't

been freezing, felt somewhat alert in the A.M. and didn't have so

many problems with night sweats....i hope this will help with some of

my symptoms. I am also 50 yrs and female so I guess it kind of like a

mixed bag of symptoms with me right now.

Have a great day!!!

T.R.

> >

> > Debra,

> > I'm so sorry. This is what I have been saying about what I went

> through. People don't care. For the most part they look for

anything to

> talk bad about you. I don't know what the hell happened to

compassion,

> but it is sure hard to find anymore. I was so sick the last few

months I

> was at work I didn't wear makeup anymore and my hair was in a

ponytail

> most of the time because that way I didn't have to fuss with it.

> >

> > They all knew I had Lupus for 2 years and all they did was berate

me

> behind my back. I'd drag in there looking so bad and being so sick

and I

> still worked circles around them. So they badmouthed me because of

that.

> Then they tell me to take it easy and not work so hard and then

they'd

> badmouth me because I wasn't doing everyone's job anymore.

> >

> > The truth is that we start to believe that its because of our

illness,

> but its not. It's the nature of the environment and unfortunately

its

> very common today. We just become extra sensitive to it because we

have

> something for them to sink their teeth into. When we are absent we

> aren't there to defend ourselves. However, if it wasn't our health

it

> wouldn't make them stop. They would find something anyway.

> >

> > So try not to let it get to you like it did me. I was devastated

by

> it. It damn near killed me; and it damn near killed at least 5 other

> people at my place of employment that I know of. People that did NOT

> have any chronic diseases. It DID kill one guy that I know of; at

38.

> ly, I wasn't even diagnosed with Lupus when I went to work

there;

> and my blood pressure was normal without medication.

> >

> > The disease is hard enough to live with. The backbiting isn't

because

> of your disease; its there anyway. You just worry about you and not

what

> people are saying.

> >

> > Angie Harley Mama Double-D

> > Carson City, NV; Single, five children (3 at home), 2 dogs, 4

cats,

> snow skiing, camping, Harley Rider, Lone Wolf, Blue Thong

Society/High

> Sierra Thong Snappers member, LFA Advocate, independent,

opinionated,

> outspoken, and open minded.

> >

> > " It's always something. " ~~~Gilda Radner

> >

> >

> >

> > " While we have the gift of life, it seems to me the only tragedy

is to

> allow part of us to die - whether it is our spirit,our creativity,

or

> our glorious uniqueness. " ~~~Gilda Radner

> >

> > http://360.yahoo.com/lovinglifeinnv

> > http://www.myspace.com/amkg

> > http://doripost.agrato.info/

> >

> > http://www.facebook.com/profile.php?id=592316375

> > http://health.groups.yahoo.com/group/LupusSurvivorsU/

> > http://www.revolutionhealth.com/blogs/angiemg

> >

> >

> >

> >

> > Tired of pretending, anger, and tears

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > I just have to vent today. I am just feeling do down. I am so

tired of

> pretending I am fine when I am not. Yesterday was like trying to

run a

> marathon just going to work. They could not see under the makeup

and the

> " cheerful attitude " that I felt like $hit. What is worse is they

don't

> give a damn. I know it too.

> >

> > Things come back to me when I feel this bad. I remember the

comments

> my supervisor has made to me about a sister in law of hers with FM.

She

> depicted her to me as lazy. She said " she slept all day " .... what

she

> does not understand is that this damn crap comes with sleep

disorders on

> top of it all. And she had made a comment that " she did not work

like

> you do " . And said " she is a prescription drug addict " . Well, I am

not

> able to freaken work. Damn it! Not a person on earth gives a crap

but

> the people here.

> >

> > I also remember what the nurse that I work with said one day.

When she

> told me about her friend who has fibro. She said she does not talk

to

> that friend anymore because " she just wants people to feel sorry for

> her " .. and made comments about her pain meds and how she can hardly

stay

> awake. (It is probably from the damn fibro fog and not her pain

meds).

> >

> >

> >

> > I am fed up with people just not believing this shit. It hurts me

> greatly. If I have larnyngitis or a cold, I get " oh, I can tell you

feel

> so bad " . Then they acknowledge that I am sick. But not with the

fibro. I

> know that any comment I make about it probably makes them roll their

> eyes.

> >

> >

> >

> > I am angry, pissed, and so fed up. I just don't know how much

longer I

> can take the " don't give a shit " attitude of these people. I don't

> expect any special treatment, but I don't want to be considered an

idiot

> either. And if I call in and say " I am sick... It is the fibro " ....

they

> will just talk about me then the next time I come in NO ONE will

even

> ask how I am.

> >

> >

> >

> > I am just so angry. Thanks for listening. Guess what? They get me

> today without makeup. I don't care. Let them see how I look and feel

> every day of my life without me trying to hide it.

> >

> >

> >

> > love ya all,

> >

> > Debra V.

> >

> >

> >

> > ------------ --------- --------- ---

> >

> > Be a better friend, newshound, and know-it-all with Yahoo!

Mobile. Try

> it now.

> >

> >

> >

> >