Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Excellent ! Jeanne in WI > > > I am responding to the article published in the January 14, 2008 on page 1 > of the New York Times about Fibromyalgia. > > I suffer from this disease and I was extremely dishearten by this article > in the way that it tries to state that Fibromyalgia is not a real disease > and that the drug companies are just looking to get rich from the sales of > drugs for a non-existent disease. We are not just " chronic complainers " as > was stated in the article. Many of us have white knuckled this disease for > years trying to understand where the pain was coming from and trying to > fix things in our lives to get better all the while getting worse and being ostracized from our family, friends and yes, sometimes even the medical community. > > > > I fought the increasing pain in my body for over 10 years. I worked and > worked hard. The pain became increasingly worse. I took Ibuprofen like it > was candy. I got to the point that I could no longer wear a normal pair of > shoes. At home I can only wear soft memory foam slippers and when I am out > I can only stand to wear Crocs on my feet. Anything else hurts as though someone was pounding my feet with a sledge hammer and that's on a good day!! I lose my balance, fall for unknown reasons, forget how to do simple tasks that I have done all of my life and all of this happened BEFORE taking Lyrica or other medications. > > > > I am in 100% agreement that drug companies are out to get rich, I don't > like them any more than the next person but I can assure you that when > there was a medication available to help me possibly go back to work and > support my four children I was ecstatic and then found out that my > insurance wouldn't cover it initially. They are now covering it for me and > I have only begun taking the medication. I pray that I get some pain > relief from a monstrous disease. Perhaps you and your writers should have > done a little more investigating before announcing that Fibromyalgia is > not a real disease. > > > > I suggest that you and your writers print an article about real > fibromyalgia patients and their daily struggles. Learn about us before you > also hide us in the closet and forget we exist because you don't > understand what we go > through. We are real people just like all of you. Quote Link to comment Share on other sites More sharing options...
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