Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Hello All My name is son, RN.,MSN. ~~~~~ - welcome to the family! Another RN...fabulous!!! Our list mom is a nurse, Hennemann is a nurse, and I think there are several others. We have a physical therapist on board too with EDS. Mike Uggen, in Seattle is our resident massage therapist/energy healer. My name is Bonnie Heintskill and I'm a speech language pathologist, currently waiting to hear about my SSD denial and appeal. I haven't worked since end of May 2002.... Bonnie EDS Variant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 As an added note, I thought you all might find it interesting that was working in the hospital just out the Pentigon during 9/11. She anxiously awaited to help the folks to be brought in from the plane that crashed. There was no one to help. I'm surprised to see she was able to type today. You all know what it is like when the surgen does his exam on you just before a surgery...... She had that yesterday, and the pain from the exam is pretty intense still. and I have a long distance, friendship. We talk on and/or off line everyday. EDS has a way of bringing us all together doesn't it? But it's not the EDS that keeps us friends. There are truely caring good people here. Goodnight All. C. Hello All My name is son, RN.,MSN. I am new to the group, is my friend and introduced me to this group. I am hurting so badly physically and emotionally. I have had I believe 8 surgeries over the past two years, the 9th one will be Jan. 15th 2004, my birthday. I've had two surgeries on my left knee for a torn left medial meniscus, the right for a dislocated kneecap, my lumbar spine for radiclar neuropathy, L4-5,L5-S1 for spinal stenosis, bilateral facet arthritis, lumbar scoliosis. The last year has been recurrent surgeries on my shoulders, 3 on the right, one on my left, the next one on my left shoulder again. All kinds of stuff. Torn labrums, torn rotator cuffs, adhesive capsulitis, release of adhesions. Next surgery is for a ruptured bicep tendon caused from pulling the covers up in bed. I still need a spinal fusion, probable bilateral knee surgery in the future. I was in my previous life an ICU/CRITICAL Care Nurse. I am currently being evaluated at NIH for EDS, my Uncle has it. It's just constant, the slightest movement causes something to tear. I miss my previous life and my work. I have been unable to work since March, 2002. I also have arthritis, osteoporosis, 4 hemmorrhagic ruptured ovarian cysts in the past. I get so lonely and hurt so bad each day. I miss my job of helping people terribly! I get so lonely at times, but encouraged me to join this group because she has found so much strengh, help and hope from it. Even though I do not yet have a diagnosis of EDS,they strongly suspect it, and wanted me to join. So thankyou all if ya have anything to offer me. son Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Hello , Welcome to our group. It is great that you have decided to join us. This group has helped me in many ways, I am sure it will do the same for you. I know you are in a lot of pain but one day you will find a way to manage it. It is so very easy to get lonely and depressed when you are constantly in pain. Just never give up hope that someday it will all get a little better. You old life is still apart of you. you just have to find a new way to help people. sometime, just going and visiting with people helps them, and then you would not be as lonely. you just have to do things differently, and maybe try some different ways of helping people. ways that are not going to be taxing on you. hugs, jen > My name is son, RN.,MSN. > I am new to the group, is my friend and introduced me to > this group. I am hurting so badly physically and emotionally. I have > had I believe 8 surgeries over the past two years, the 9th one will > be Jan. 15th 2004, my birthday. I've had two surgeries on my left > knee for a torn left medial meniscus, the right for a dislocated > kneecap, my lumbar spine for radiclar neuropathy, L4-5,L5-S1 for > spinal stenosis, bilateral facet arthritis, lumbar scoliosis. The > last year has been recurrent surgeries on my shoulders, 3 on the > right, one on my left, the next one on my left shoulder again. All > kinds of stuff. Torn labrums, torn rotator cuffs, adhesive > capsulitis, release of adhesions. Next surgery is for a ruptured > bicep tendon caused from pulling the covers up in bed. I still need > a spinal fusion, probable bilateral knee surgery in the future. I > was in my previous life an ICU/CRITICAL Care Nurse. > I am currently being evaluated at NIH for EDS, my Uncle has it. It's > just constant, the slightest movement causes something to tear. I > miss my previous life and my work. I have been unable to work since > March, 2002. I also have arthritis, osteoporosis, 4 hemmorrhagic > ruptured ovarian cysts in the past. I get so lonely and hurt so bad > each day. I miss my job of helping people terribly! I get so lonely > at times, but encouraged me to join this group because she has > found so much strengh, help and hope from it. Even though I do not > yet have a diagnosis of EDS,they strongly suspect it, and > wanted me to join. So thankyou all if ya have anything to offer me. > son Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Hi , My name is Ginley and I understand how much you miss working in a career you loved. I, too am a registered nurse, loved my work and was very good at it. There is a lot you can do to help the EDs cause as a nurse when you feel able and are up to it. We all have different challenges and have to work at our own pace, but believe me when you become comfortable, there is a place for you here as a nurse and in the international EDS community. I will keep you in my prayers. Have a wonderful holiday! Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Hi and welcome to the group. I hope that you will find support here as well as a safe place to vent. ~~~~~ _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of n8tvsoul Sent: Tuesday, January 29, 2008 10:55 PM To: Fibromyalgia_Support_Group Subject: Hello All I am new to the group....but not new to fibromyalgia. I was diagnosed....officially...4 yrs ago. It has taken a lot of years, and too many tests to figure that out. Thank you for letting me join your family. , WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Hi - I just joined this group last week and live in WA, too. I was diagnosed last year. It tied together so many 'issues' that I'd been dealing with for a lot of years. I'm in Bothell..where are you? Feel free to email me offline if you'd like to chat. a > > I am new to the group....but not new to fibromyalgia. I was > diagnosed....officially...4 yrs ago. It has taken a lot of years, and > too many tests to figure that out. > > Thank you for letting me join your family. > > , WA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 Welcome . So nice to have you here. It is a great support group. I think it will be helpful to you. hugs, Debra V. n8tvsoul wrote: I am new to the group....but not new to fibromyalgia. I was diagnosed....officially...4 yrs ago. It has taken a lot of years, and too many tests to figure that out. Thank you for letting me join your family. , WA --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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