Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Hi , Nice of you to remember me. I know how you are because I read all your messages. Always very well-informed - from all your medical experiences (unfortunately). Our PSC-Support group in the UK is doing well and growing - although slowly. We hope to surpass the 400 mark soon. Although as with you only about 20 or so members are really active. Most of those will be meeting at Oxford on the 21st Jan. for a brain-storming session on fund-raising - we've been energised by your example. Personally I'm still OK. There was a false dx of a malignant tumor of the liver a few weeks ago and the liver was damaged by portal vein thrombosis but the left lobe grew bigger to compensate. The liver still functions well and I continue to remain mostly asymptomatic. I don't expect that to last for too long. I'd love to see you again - at Pittsburgh? All the best for 2006. Ivor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 , That's a VERY powerful account of how you've managed to live with PSC and accompanying problems and been able to accentuate the positive. I think it would help other PSCers if they could read it. So I'd like to ask you for permission to use it in our July issue of "PSC News." Ivor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 So I'd like to ask you for permission to use it in our July issue of "PSC News." Ivor, Permission granted. Anything that you feel might help someone else deal with this disease (or any other) is perfectly fine with me! I'm glad you think it might serve a positive purpose. (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 Thank you, , for your reply to Clint. It spoke directly to my heart. It was just what I needed to hear (read). It brought tears to my eyes. It is a true gift you have given all of us on this website and amazes me that you continue to give through your words of encouragement when you are struggling mightily right now. I pray that your troubles resolve soon. Again, thank you. Beth Fay Quote Link to comment Share on other sites More sharing options...
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