Re: To the group and forward to my husband.... SHOUTING

[Guest guest]

(((Debra))) you want me to come talk to him? LOL he may not listen to

me either.

I hear ya girl. I wish he would hear ya too!

debra van ness wrote:

> Sorry. But damn it.... I guess I will write this to the group and then send it

to the d/h since he does not seem to hear a damn thing I say. I STAYED ON THE

COUCH ALL DAY because I am sick...... I DID NOT STAY ON THE COUCH ALL DAY SO I

CAN GET UP AND FEEL GREAT..... NO, I do not feel better sometimes even if I am

in bed or laying on the couch for 18 hours of the day. I DO NOT GET RESTED NO

MATTER HOW MUCH I am laying down or seeming to sleep. I STILL feel like I NEVER

SLEPT last night or today.

>

> When you have the flu and go to bed..... do you go to bed because you are

sick and then wake up feeling great and have all the energy you need??????

NOPE, you wake up feeling just a shitty as you did when you laid down. NO I

CANNOT do all the stuff I should around here on my off days because I AM WIPED

OUT... it is called CHRONIC FATIGUE.... it is a great little addition that comes

with fibromyalgia. YES I still feel like shit even if I take my medication some

days because my body has been OVERDONE for four days with the things others take

for granted in life. THings like work and coming home... should be a piece of

cake after a nights sleep????? NOT with fibromyalgia and chronic fatigue.

>

> AND no I do not enjoy living like this.

>

> Debra

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

*drying your tears*

((((HUGS)))

debra van ness wrote:

> Sorry group. I am just so frustrated right now. I appreciate you being

there. I sent this letter to , my husband, because I am sick and tired of

not being understood. I am now crying with frustration of the lack of

understanding.

> I love you all,

> Debra V.

>

>

[Guest guest]

>

> Sorry group. I am just so frustrated right now. I appreciate you

being there. I sent this letter to , my husband, because I am

sick and tired of not being understood. I am now crying with

frustration of the lack of understanding.

> I love you all,

> Debra V.

*********************

Aw Debra, I hope you feel the strength that is reaching out now to

hold you for a good cry over the injustice of not being understood.

No apology needed...this is a time to vent with safety of not being

judged for where you are right now. Let it out...and know that I feel

that pain right now. How many times have I felt that? I can't tell

you the number of times. Just let out the pain and bring yourself

back to the love and support of the group here. Know that there is

understanding here. I hope that your husband can come to understand

on some level what it is like to have this pain, and this fatigue that

can only express itself in tears. I asked my husband one time if he

ever felt so tired that he wanted to cry and he had to admit that he

had not. Well, I have felt that and know what you are talking about

Debra.

I know I'm rambling, but I want you to know that I understand, and

will be here to listen.

Vicki

northern MN

[Guest guest]

Debra,

We all have days when our family especially husbands don't get it. My poor

husband will say all those rotten things about me not wanting to do things etc.

A little while later he is appoligising because he has been feeling frustrated.

Sometimes it is because I don't do things I use to (I can't) and other times it

is because he cannot stop my pain and sometimes it's because we don't do alot of

cuddling because it hurts. He has to live with his pain and I have to accept it.

JudyMer

---- debra van ness wrote:

> Sorry. But damn it.... I guess I will write this to the group and then send it

to the d/h since he does not seem to hear a damn thing I say. I STAYED ON THE

COUCH ALL DAY because I am sick...... I DID NOT STAY ON THE COUCH ALL DAY SO I

CAN GET UP AND FEEL GREAT..... NO, I do not feel better sometimes even if I am

in bed or laying on the couch for 18 hours of the day. I DO NOT GET RESTED NO

MATTER HOW MUCH I am laying down or seeming to sleep. I STILL feel like I NEVER

SLEPT last night or today.

>

> When you have the flu and go to bed..... do you go to bed because you are

sick and then wake up feeling great and have all the energy you need??????

NOPE, you wake up feeling just a shitty as you did when you laid down. NO I

CANNOT do all the stuff I should around here on my off days because I AM WIPED

OUT... it is called CHRONIC FATIGUE.... it is a great little addition that comes

with fibromyalgia. YES I still feel like shit even if I take my medication some

days because my body has been OVERDONE for four days with the things others take

for granted in life. THings like work and coming home... should be a piece of

cake after a nights sleep????? NOT with fibromyalgia and chronic fatigue.

>

> AND no I do not enjoy living like this.

>

> Debra

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

Oh (((Debra)))) I am so sorry that you had to resort to that. It's a

real bucket of suck sometimes that our loved ones do not understand!

As for your sleeping difficulties, and I only mention it because I

have it, is have you ever been checked for sleep apnea? I have severe

obstructive sleep apnea and have to wear a bi-pap system at night so

I continue to breathe. The one thing I've noticed is that while I

don't have all that " tony the tiger " energy I did before fibro, well,

I can get a good night's sleep (and even dream) which makes the pain

more manageable (I don't think I'll ever say bearable because well,

it depends on my threshhold that day). It's something to think

about....

(((Hugs)))

Darlene

> Sorry. But damn it.... I guess I will write this to the

group and then send it to the d/h since he does not seem to hear a

damn thing I say. I STAYED ON THE COUCH ALL DAY because I am

sick...... I DID NOT STAY ON THE COUCH ALL DAY SO I CAN GET UP AND

FEEL GREAT..... NO, I do not feel better sometimes even if I am in

bed or laying on the couch for 18 hours of the day. I DO NOT GET

RESTED NO MATTER HOW MUCH I am laying down or seeming to sleep. I

STILL feel like I NEVER SLEPT last night or today.

>

> When you have the flu and go to bed..... do you go to bed because

you are sick and then wake up feeling great and have all the energy

you need?????? NOPE, you wake up feeling just a shitty as you did

when you laid down. NO I CANNOT do all the stuff I should around here

on my off days because I AM WIPED OUT... it is called CHRONIC

FATIGUE.... it is a great little addition that comes with

fibromyalgia. YES I still feel like shit even if I take my medication

some days because my body has been OVERDONE for four days with the

things others take for granted in life. THings like work and coming

home... should be a piece of cake after a nights sleep????? NOT with

fibromyalgia and chronic fatigue.

>

> AND no I do not enjoy living like this.

>

> Debra

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

I am so sorry your hubby has forgotten about your illness again. Selective

memory. You know about how my hubby feels, so I won't even get started on that,

but I can sympathize. I hate having those days where I cannot even get outside

to enjoy a sunny day. Hang in there girl. Email him all the fibro info you can,

until he gets it, lol. bombard him. lmao.

Love ya,

loveit1@... wrote:

Debra,

We all have days when our family especially husbands don't get it. My poor

husband will say all those rotten things about me not wanting to do things etc.

A little while later he is appoligising because he has been feeling frustrated.

Sometimes it is because I don't do things I use to (I can't) and other times it

is because he cannot stop my pain and sometimes it's because we don't do alot of

cuddling because it hurts. He has to live with his pain and I have to accept it.

JudyMer

---- debra van ness wrote:

> Sorry. But damn it.... I guess I will write this to the group and then send it

to the d/h since he does not seem to hear a damn thing I say. I STAYED ON THE

COUCH ALL DAY because I am sick...... I DID NOT STAY ON THE COUCH ALL DAY SO I

CAN GET UP AND FEEL GREAT..... NO, I do not feel better sometimes even if I am

in bed or laying on the couch for 18 hours of the day. I DO NOT GET RESTED NO

MATTER HOW MUCH I am laying down or seeming to sleep. I STILL feel like I NEVER

SLEPT last night or today.

>

> When you have the flu and go to bed..... do you go to bed because you are sick

and then wake up feeling great and have all the energy you need?????? NOPE, you

wake up feeling just a shitty as you did when you laid down. NO I CANNOT do all

the stuff I should around here on my off days because I AM WIPED OUT... it is

called CHRONIC FATIGUE.... it is a great little addition that comes with

fibromyalgia. YES I still feel like shit even if I take my medication some days

because my body has been OVERDONE for four days with the things others take for

granted in life. THings like work and coming home... should be a piece of cake

after a nights sleep????? NOT with fibromyalgia and chronic fatigue.

>

> AND no I do not enjoy living like this.

>

> Debra

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

Oh Debra, sweetie, I am so sorry, I've had it rough as many have over

the past week or more. I am so sorry I wasn't sitting here at the

computer for you to manage a shout out on the IM. The past week took

a ton out of me too. From Friday to Sunday I've been all over town,

have put in a new set of bunk beds for my sons and cleaned my house

from end to end, save my room, which may never get clean.

I know just how you feel. Here I am, today, Monday, the first day of

the week and I dread just getting out of bed, but I have no choice. I

feel like I just got over the aches and pains, the muscles that

protest, the joints that creak and groan, the back that never stops

screaming, only to start all over again. No amount of sleep cures it,

no amount of medication, and sympathy only extends from this group

and others we are part of. Even my mother has a limited supply and

her mother, my grandmother, has lived with Polymialgia for sixty

years! She wasn't diagnosed until she was 60! My grandmother is still

alive at 90, amazing woman that she is, and she's also allergic to

aspirin which makes treatment options a fun expression in patience. I

thank the powers that be I didn't get that particular allergy or I'd

be up the proverbial creek without a paddle or a canoe. Boy, do I

sound like someone with the FMS monster or what? Sorry, I know you're

in pain sweetie. I want to make you laugh, I want to find a way to

help you forget your pain. I hope to do that somehow, some way, and

soon.

A. Neff

Buzz me!! I'm there!!

>

> Sorry. But damn it.... I guess I will write this to the group and

then send it to the d/h since he does not seem to hear a damn thing I

say. I STAYED ON THE COUCH ALL DAY because I am sick...... I DID NOT

STAY ON THE COUCH ALL DAY SO I CAN GET UP AND FEEL GREAT..... NO, I

do not feel better sometimes even if I am in bed or laying on the

couch for 18 hours of the day. I DO NOT GET RESTED NO MATTER HOW

MUCH I am laying down or seeming to sleep. I STILL feel like I NEVER

SLEPT last night or today.

>

> When you have the flu and go to bed..... do you go to bed because

you are sick and then wake up feeling great and have all the energy

you need?????? NOPE, you wake up feeling just a shitty as you did

when you laid down. NO I CANNOT do all the stuff I should around

here on my off days because I AM WIPED OUT... it is called CHRONIC

FATIGUE.... it is a great little addition that comes with

fibromyalgia. YES I still feel like shit even if I take my

medication some days because my body has been OVERDONE for four days

with the things others take for granted in life. THings like work

and coming home... should be a piece of cake after a nights

sleep????? NOT with fibromyalgia and chronic fatigue.

>

> AND no I do not enjoy living like this.

>

> Debra

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

DEAR DEBRA,

SHOUT ALL YOU WANT AND VENT!! I HAD A HUSBAND LIKE THAT.

YOU DON'T NEED THAT FRUSTRATION ON TOP OF YOUR FIBRO.

I'M SORRY TO HEAR SO MANY OF US AREN'T FEELING WELL TODAY.

BLESSINGS TO ALL,

DEE

vicki wrote:

>

> Sorry group. I am just so frustrated right now. I appreciate you

being there. I sent this letter to , my husband, because I am

sick and tired of not being understood. I am now crying with

frustration of the lack of understanding.

> I love you all,

> Debra V.

*********************

Aw Debra, I hope you feel the strength that is reaching out now to

hold you for a good cry over the injustice of not being understood.

No apology needed...this is a time to vent with safety of not being

judged for where you are right now. Let it out...and know that I feel

that pain right now. How many times have I felt that? I can't tell

you the number of times. Just let out the pain and bring yourself

back to the love and support of the group here. Know that there is

understanding here. I hope that your husband can come to understand

on some level what it is like to have this pain, and this fatigue that

can only express itself in tears. I asked my husband one time if he

ever felt so tired that he wanted to cry and he had to admit that he

had not. Well, I have felt that and know what you are talking about

Debra.

I know I'm rambling, but I want you to know that I understand, and

will be here to listen.

Vicki

northern MN

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Debra - I'm sorry you had a rough night with your husband. I had an

argument with mine this morning that brought me to tears, too. It was

stupid, but I'm so foggy and feeling sinus pain/pressure, that it was so

frustrating having to argue with him about it. I hope the email helped with

regards to your husband. Take care, and I hope you're feeling somewhat

better today.

Jeanne in WI

> Sorry group. I am just so frustrated right now. I appreciate you being

> there. I sent this letter to , my husband, because I am sick and

> tired of not being understood. I am now crying with frustration of the

> lack of understanding.

> I love you all,

> Debra V.

[Guest guest]

Hi Debra,

I too am sorry you had the argument and are feeling

down.

I don't know why those who are supposed to love us

and support us can not just understand a little.

It took a patient coming into the ER with Fibro,where

my husband works as a crisis intake counsoler . The

patient told the ER staff when asked about the pain

explained it to them like this.. " you know how it

feels when you hit your funny bone , or your knee or

stump your toe ? well that is how i fill every day,

every where .. "

Diane

--- Jeanne and Dave

wrote:

> Hi Debra - I'm sorry you had a rough night with your

> husband. I had an

> argument with mine this morning that brought me to

> tears, too. It was

> stupid, but I'm so foggy and feeling sinus

> pain/pressure, that it was so

> frustrating having to argue with him about it. I

> hope the email helped with

> regards to your husband. Take care, and I hope

> you're feeling somewhat

> better today.

> Jeanne in WI

>

>

> > Sorry group. I am just so frustrated right now.

> I appreciate you being

> > there. I sent this letter to , my husband,

> because I am sick and

> > tired of not being understood. I am now crying

> with frustration of the

> > lack of understanding.

> > I love you all,

> > Debra V.

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

Hi Debra,

I'm sorry it has taken me so long to write to you.

I wish our families could just take us at our word and believe that if we say

we have chronic fatigue and feel very ill then we do. It should be simple.

They don't have to understand; they just have to believe us just like they

believe us about other things.

It's amazing that you can work at all, but at such a grueling, back breaking

job is even more amazing. Being a nurse is hard work, even if you were healthy.

If I were to do that for four days, I wouldn't be able to move for the other

three or even longer. I wish you felt better and got more understanding both at

home and at work.

I hope the e-mail worked or at least helped.

Take care of yourself,

Marti

debra van ness wrote:

Sorry. But damn it.... I guess I will write this to the group and then

send it to the d/h since he does not seem to hear a damn thing I say. I STAYED

ON THE COUCH ALL DAY because I am sick...... I DID NOT STAY ON THE COUCH ALL DAY

SO I CAN GET UP AND FEEL GREAT..... NO, I do not feel better sometimes even if I

am in bed or laying on the couch for 18 hours of the day. I DO NOT GET RESTED NO

MATTER HOW MUCH I am laying down or seeming to sleep. I STILL feel like I NEVER

SLEPT last night or today.

When you have the flu and go to bed..... do you go to bed because you are sick

and then wake up feeling great and have all the energy you need?????? NOPE, you

wake up feeling just a shitty as you did when you laid down. NO I CANNOT do all

the stuff I should around here on my off days because I AM WIPED OUT... it is

called CHRONIC FATIGUE.... it is a great little addition that comes with

fibromyalgia. YES I still feel like shit even if I take my medication some days

because my body has been OVERDONE for four days with the things others take for

granted in life. THings like work and coming home... should be a piece of cake

after a nights sleep????? NOT with fibromyalgia and chronic fatigue.

AND no I do not enjoy living like this.

Debra

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

You never need to be sorry for venting. " Listening " is what we're here for.

I'm so sorry that yuo are so upset and crying. I hope you feel better soon.

Blessed be, Marti

debra van ness wrote:

Sorry group. I am just so frustrated right now. I appreciate you being

there. I sent this letter to , my husband, because I am sick and tired of

not being understood. I am now crying with frustration of the lack of

understanding.

I love you all,

Debra V.

debra van ness wrote:

Sorry. But damn it.... I guess I will write this to the group and then send it

to the d/h since he does not seem to hear a damn thing I say. I STAYED ON THE

COUCH ALL DAY because I am sick...... I DID NOT STAY ON THE COUCH ALL DAY SO I

CAN GET UP AND FEEL GREAT..... NO, I do not feel better sometimes even if I am

in bed or laying on the couch for 18 hours of the day. I DO NOT GET RESTED NO

MATTER HOW MUCH I am laying down or seeming to sleep. I STILL feel like I NEVER

SLEPT last night or today.

When you have the flu and go to bed..... do you go to bed because you are sick

and then wake up feeling great and have all the energy you need?????? NOPE, you

wake up feeling just a shitty as you did when you laid down. NO I CANNOT do all

the stuff I should around here on my off days because I AM WIPED OUT... it is

called CHRONIC FATIGUE.... it is a great little addition that comes with

fibromyalgia. YES I still feel like shit even if I take my medication some days

because my body has been OVERDONE for four days with the things others take for

granted in life. THings like work and coming home... should be a piece of cake

after a nights sleep????? NOT with fibromyalgia and chronic fatigue.

AND no I do not enjoy living like this.

Debra

---------------------------------

Never miss a thing. Make Yahoo your homepage.