Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Hi Debra, I loved this email! This is so much like the way I try to live my life each day, I try to see the good and and the glass half full if I can. It doesn't always work and it isn't always easy at all. But some days it helps me get out of bed and face the day. Some days it takes me an hour to get out of bed but by trying to see the good it definitely helps. You are so strong! I admire you, Melody debra van ness wrote: > Ok, I am somewhat back to myself. LOL. Really. I am feeling better emotionally. (I did wake up feeling like someone beat me with a board while I slept).... It is better now. I took my medicine and the sun is shining today and I don't really mind going to work now. > > I have to try to understand why others DONT understand. I think that will get us alot further than being pissed at the lack of compassion. If I did not live with this damn curse of a disease everyday, I would not understand it completely. (I would believe it, but if I had not walked in these shoes.... I would not have a clue as to how bad it is). So, that said, I must learn to forgive and accept others in my life who don't have fibro and dont believe or understand. I must realize that they are friends, BUT not friends I can share my life altering disease with. I am trying to get rid of the anger. It is tearing me apart. > > Now, if I lost everything I had right now, it would be a tragedy. I must be thankful for the fact I still can work, I have two beautiful kids, I have a nice place to live, I have a d/h who I would like to strangle sometimes... but I love him anyway. He helps me with everything I am not able to take care of. I also have a good doctor right now who knows fibro is real and will treat me. I have pain medication to help the pain and exhaustion. I have a glass that is half full today. (not half empty). > > I also know that though fibro is progressive with alot of us, it is not with all of us. I know mine progressed, but it MIGHT not get worse. If it does, I will deal with it then. > > If we think about today and this minute...... we can handle it. If we think about tomorrow and 5 years from now... the unknown is sure to fill us with fear. > > Today, I will live and try to enjoy each moment the best I can. > > Signing off... gotta let others have some space on the board here. LOL. Will go and take care of the little old folks that love me at work. > > love and hugs, > Debra V. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Thanks honey. I guess I did not live up to my own motto today. LOL. I have just been so damn frustrated. I need to learn to practice more of what I preach. You are also an inspiration to this group. I am so glad you are here and in a somewhat better frame of mind. I was so scared that something I said threw you into darkness when you felt you had lost hope. You are precious. Dont ever lose hope. You see, not everyone does progress. If it does, like I said we can take it a day at a time. And I also don't believe that every single one of us will wind up bedbound. (maybe some of us though). hugs, Debra V. Melody wrote: Hi Debra, I loved this email! This is so much like the way I try to live my life each day, I try to see the good and and the glass half full if I can. It doesn't always work and it isn't always easy at all. But some days it helps me get out of bed and face the day. Some days it takes me an hour to get out of bed but by trying to see the good it definitely helps. You are so strong! I admire you, Melody debra van ness wrote: > Ok, I am somewhat back to myself. LOL. Really. I am feeling better emotionally. (I did wake up feeling like someone beat me with a board while I slept).... It is better now. I took my medicine and the sun is shining today and I don't really mind going to work now. > > I have to try to understand why others DONT understand. I think that will get us alot further than being pissed at the lack of compassion. If I did not live with this damn curse of a disease everyday, I would not understand it completely. (I would believe it, but if I had not walked in these shoes.... I would not have a clue as to how bad it is). So, that said, I must learn to forgive and accept others in my life who don't have fibro and dont believe or understand. I must realize that they are friends, BUT not friends I can share my life altering disease with. I am trying to get rid of the anger. It is tearing me apart. > > Now, if I lost everything I had right now, it would be a tragedy. I must be thankful for the fact I still can work, I have two beautiful kids, I have a nice place to live, I have a d/h who I would like to strangle sometimes... but I love him anyway. He helps me with everything I am not able to take care of. I also have a good doctor right now who knows fibro is real and will treat me. I have pain medication to help the pain and exhaustion. I have a glass that is half full today. (not half empty). > > I also know that though fibro is progressive with alot of us, it is not with all of us. I know mine progressed, but it MIGHT not get worse. If it does, I will deal with it then. > > If we think about today and this minute...... we can handle it. If we think about tomorrow and 5 years from now... the unknown is sure to fill us with fear. > > Today, I will live and try to enjoy each moment the best I can. > > Signing off... gotta let others have some space on the board here. LOL. Will go and take care of the little old folks that love me at work. > > love and hugs, > Debra V. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 No hon, I have my own issues and fears I work on every single day. They kind of linger in there but most days I win the battle against them when I face one day at a time. I've started facing my fears a lot and becoming emotionally stronger, but I'm not immune to the occasional breakdown. It happens, I just shared it this time. Usually I cry to Jim or blog about it, but this time I came here and I usually do what I am led to do so I guess it wasn't a bad thing. Of course I'm totally embarrassed now and feel really silly, but the experience brought me closer to so many and there are new friendships and bonds that I didn't see before. I prayed for hope and I got my hope back. I hope today is better, how are you doing today? Melody debra van ness wrote: > Thanks honey. I guess I did not live up to my own motto today. LOL. I have just been so damn frustrated. I need to learn to practice more of what I preach. You are also an inspiration to this group. I am so glad you are here and in a somewhat better frame of mind. I was so scared that something I said threw you into darkness when you felt you had lost hope. You are precious. Dont ever lose hope. You see, not everyone does progress. If it does, like I said we can take it a day at a time. And I also don't believe that every single one of us will wind up bedbound. (maybe some of us though). > hugs, > Debra V. > Quote Link to comment Share on other sites More sharing options...
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