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I go no matter how bad I feel. I refuse to let this thing run me!

Melody wrote: I still have

such a hard time making plans. My neighbor just emailed me

asking if I wanted to go with her to the mall on Friday afternoon and my

heart kind of started to race a bit. I have no idea how I'm going to

FEEL that day! Do you all do that too? We live 45 miles from the

nearest mall too.

I'm the type to suck it up and not cancel, then go and be in pain,

because I have a hard time letting others down. My neighbor is

sympathetic to my fibro so I know I'll probably say yes to going and if

I hurt then she will be patient with me if I'm being slow or whatever.

But still, sometimes when I have a bad fibro day I just want to stay

home in comfy clothes. What if I feel bad on Friday? I hate how

unpredictable this thing is.

I usually prefer to make plans a day before, because usually I can get a

feel of what I might feel like the next day. I always make it worse by

not being able to sleep the night before, too. Then I ache from lack of

sleep.

Frustrating!!!!

Melody

--

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Thanks . I replied to her and said I'd go. So far I've never

regretted going, but I still get a little anxiety in the days before

hand. I'm really trying to face my issues and not let it run me as well.

I've been baby stepping this past year to overcome a little bit of

social phobia too. There are so many social things I now do that a year

ago I'd never even think about.

wrote:

> I go no matter how bad I feel. I refuse to let this thing run me!

>

>

>

>

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>

> I still have such a hard time making plans. My neighbor just

emailed me

> asking if I wanted to go with her to the mall on Friday afternoon

and my

> heart kind of started to race a bit. I have no idea how I'm going

to

> FEEL that day! Do you all do that too? We live 45 miles from the

> nearest mall too.

>

That's very a very strange coincidence as I was just wondering if I

could ask a member of this group to help me set small goals for

myself each day and encourage me to keep them! And I think the first

one I need to set is to start clearing my bedroom! Would be great to

walk around the whole tiny room instead of just going from the door

straight to the bed. But I can see the connection between you and

your delimna about making a commitment for Friday --- we all have

this fear that " oh, no, that might be a bad day! " My only response

to my own comment was when my doctor just came right out and asked me

what would make me happy last summer and I said " going home " -- that

meant a 6 or 700 mile drive! I did it, spent an extra day at one

hotel because of an adverse reaction to meds. And had another while

husband and I out there over Christmas --- but he understands how

that can happen.

But there is also the fact that you could say yes and if your friend

understands your condition, she would not be hurt if you called and

said you were having a bad day! But then, there is the positive

thought of something you enjoy doing that could give you the strength

to go!

I know, it's 1/2 dozen of one and 1/2 dozen of the other!

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LOL you would never survive going somewhere with me then Melody!! I

make plans MONTHS in advance. For example, not only do we almost have

out plans finalized for the trip to the ren faire in April, I almost

have all the plans finalzed for a three day trip to Dallas at the first

of June so I can take 10 teenagers to the A-Kon animation convention

there. Guess I've just never been one to do stuff at the last minute

lol

lisa n.

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If I make the plans, I will stress myself out about it so much, that I WILL

feel too ill to participate in the activity.

At least it used to be that way. This is why I've given up on going to

church, because the worrying about can I go or not stresses me too much.

Now a planned outing with family or whatever, I will try to keep a positive

attitude so I don't have to cancel, but it doesn't always work.

Jeanne in WI

>I still have such a hard time making plans. My neighbor just emailed me

>asking if I wanted to go with her to the mall on Friday afternoon and my

>heart kind of started to race a bit. I have no idea how I'm going to FEEL

>that day! Do you all do that too? We live 45 miles from the

nearest mall too. I'm the type to suck it up and not cancel, then go and

be in pain, because I have a hard time letting others down. My neighbor is

sympathetic to my fibro so I know I'll probably say yes to going and if I

hurt then she will be patient with me if I'm being slow or whatever. But

still, sometimes when I have a bad fibro day I just want to stay home in

comfy clothes. What if I feel bad on Friday? I hate how unpredictable this

thing is.

I usually prefer to make plans a day before, because usually I can get a

feel of what I might feel like the next day. I always make it worse by not

being able to sleep the night before, too. Then I ache from lack of sleep.

> Frustrating!!!!

>

> Melody

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