Re: Friends - To Doolin ans Debra van ness

February 7, 2008

I hear you both on your e-mails, I to am a hydrocodone user. The med is so

over highly abused that people think, Oh she is a drugger, she is on pain pills.

Well I am not one, I fought taking pain meds for a long time, now if I did not

take them I also could not move, function, and would really be in a mess could

would probably had bed sores cause I could not even get up. As it is now, I

have had such bad spells more frequent now, that I have had to call for help if

my husband is gone {he is an offshore scalloper} to help me move to go to the

BR! I to believe I have had fibro, for about 20yrs, just didn't get diagnoised

until 3yrs ago when I found my fantastic Rheumo. I have a good group of Dr's

now, but have recently moved to ME. from Ma. and am afraid I will have to start

all over again, as it has become a real tough time getting down to appts 3hr

travel. But again let me say for those who use pain meds, let people say

whatever they want, the bottom line is who

cares, as long as we can take something, anything that keeps us somewhat if not

hopefully functioning to even accomplish 1 thing a day. I have had so many

friends not believe I am as sick as I have been because they see me, and I look

alright, but they don't know the head trip I am going through, pushing through

my pain, taking ever inch of me to look presentable, and get done what I need to

in the outside world, my mind is totally consumed with controling my pain and

exhaustion, to finish the day if I am out in the world. As for now, I have been

basically homebound since Nov. not sleeping, pain 24/7 and the pain meds only

help do not eliminate it completley. I have wished and hoped that there will be

1 day just 1 would be good for me right now to say I feel good. See we get the

abuse from people who are to close minded to know there are diseases out there

that don't show on the outside but are doing a number on you inside. I hope

you are able to brush off the

comments when u are accused of just being lazy etc. As what I use to do in an

hour housecleaning takes me sometimes 2 days

now.....................................................................Sharon

ebra van ness wrote: , it seems the world

is full of myths and misunderstanding about this illness. First of all, pain

meds were made for PAIN. Hydrocodone and other meds get labeled with a bad rap

because so many people abuse them that don't have pain. I take hydrocodone. I am

not affected by it in any way except for pain relief. It does not get me high or

lessen my abilities. It actually allows me to function. I still have to work and

I work full time. No one has ever seen me " messed up " or " drugged out " ...

because I take it for pain. I don't take it to get high.

I know how many around us think we are making this all up or imagining it. Or

they think " It can't be THAT bad " .... Well,,, it IS that BAD. It is a horrible

lonely curse of an illness. I am lucky to at least have a doctor that knows it

is real.

You have found the right place. I felt like an alien before I found this site. I

found all these people going through the very same thing. It truly helps to be

understood.

Welcome,

Debra V. (east Tx)

Doolin wrote:

I am new to this group. I have been reading your messages and can relate to

something in almost all your messages. I have fibro for approx. 9-10 years. I

was diagnosed 4 years ago.

I have 3 kids and a husband, who all beleave that I over exagerate my pain and

that I shouldn't be on so much pain medication. My husband just thinks I am

being lazy to get out of doing some of the housework. It is all so very

frustrating.

I also, have lost all my friends and at times feel very isolated. Thank goodness

for this group. It feels like it has opened my world alittle.

I don't drive because of meds I am on. I am not on that many pain meds but am

afraid that if I got pulled over and the police thinks I take vicodin that I

might get a dui. I take one every 6 hrs. I know that I am overly paranoid but

that is me. My kids freaked when they found out I take vicodin. I am in constant

pain. I try to do stretches and take hot baths when the pain gets so bad that I

can't stand another minute. I used to get mad at my family but this has been

going on for so long that it doesn't even bother me anymore.

I probably not making any sense. I am not used to posting messages on the

computor.

I am hoping to get to know you all and hope you all have a pain free day.

Thank you,

D. in CA

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February 7, 2008

Yeah, I get that to. Like I'm taking them for recreational drugs. I only take

Hydrocodone as needed. some days not at all. Got exta saved up just in case

they try and take me off it again.

Wish I'd have never moved from Oregon cause I had 2 really good and

understanding Dr's. No problem getting what I needed. Her in Vegas they tried

me on others that really sent me off the deep end. so I demanded my Hydro back

but he cut back on the amount.

I just keep plugging along and get to reading others posts and I feel better.

god bless.

Little

LINDA

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February 7, 2008

Hi Sharon,

I hear you all and agree completely. I just started a few months ago taking

5mg of hydrocodone up to 3X day and it alleviates the pain and even the brain

fog somewhat. It helps enough for me to not be in my recliner all day and

accomplish something little. It's like you said maybe 1 hours worth of

housekeeping measured in the old days takes at least 2 days or more now.

Everything stays cluttered, but I try to keep it clean. When I get behind on my

dusting, it affects my allergies so much that I try to at least stay on top of

that, but don't always. I've been trying to follow the Flying with Fibro work

schedules and am doing somewhat better. It says to spend 15 min at a time doing

something.

I too am not a druggie. I'm taking what it takes to get me through a day and

sometimes I'm still in terrible pain. I push through the pain as you said to

try to enter the outside world. I drove myself, alone, to my eye doctor's

sarcoidosis appt today and it was scary because I was so tired after the appt

and I had the 30 min drive home. The appt lasted 2 1/2 hours and that was being

worked on the whole time. It's hard for me to believe I'm able to get back up

and get on the computer, but I really wanted to.

I'm sorry you have had to put up with those who call us lazy, as I have been,

and druggies, as I have been. I wish we could all be understood and cared for.

Maybe someday.

Blessed be,

Marti

sharon studley wrote:

I hear you both on your e-mails, I to am a hydrocodone user. The med

is so over highly abused that people think, Oh she is a drugger, she is on pain

pills. Well I am not one, I fought taking pain meds for a long time, now if I

did not take them I also could not move, function, and would really be in a mess

could would probably had bed sores cause I could not even get up. As it is now,

I have had such bad spells more frequent now, that I have had to call for help

if my husband is gone {he is an offshore scalloper} to help me move to go to the