RE: The outpouring of support here..... my gosh..My 2 cents

[Guest guest]

I have a 14yr. old daughter w/CP. She confined to a whelchair and bed. She can't

talk

walk or even crawl BUT she is the happiest child in the world. She is innocent

to the world and will never know sin, She special in many ways!!! I've been

changing diapers for 14yrs. now but I don't mind. She is my Sunshine she makes

me happy even when skys are gray, please dom't take my sunshine away...well you

should know the song.

I sing to her evreyday and she just laughs away.

GOD Bless ! ! ! . . . ...................... . . . s

2 cents

To: Fibromyalgia_Support_Group@...:

bonnie090196@...: Sat, 19 Jan 2008 02:04:42 -0800Subject: Re:

The outpouring of support here..... my gosh..

DebraHang in there, I have 2 autistic kids and whilst they are never 'normal "

can I say they do change and the things you wrestle with today will not be what

you wrestle with later on. At 7 my little boy lived under a blanket in a pram

refusing to get out, he did not walk or talk or interact with anyone at anytime.

At 12 I told him I had a lump in my breast and he asked could he touch it ? I

replied " no their my privates " his reply " damn, so close but yet so far " .As I

said not exactly the " normal response " butttttttt??????? Gotta laugh

sometimes. The outpouring of support

here..... my gosh..I really so much appreciate the outpouring of support and

information here since I have had questions about my 5 year old. I feel a little

bad about taking up the site with this because it is a fibro support site. I

will try to keep most of the future email about this on a private basis. Not

because I don't want to share it, but because I do not want to stray too far

away from the purpose of this support site. I will tell you that my heart has

been overwhelmed by the knowledge and outpouring of support here on this topic..

That is what is so special about this group... we have people from EVERY walk of

life imaginable. When it all boils down, we are all just human beings who

connect and can share what the miseries of fibromyalgia can bring to our lives.

Thanks so much. And may I say, I hope that all of you are doing as well as can

be today because you all suffer from a horrible illness just as I do. Alot of

you worse than me. Agape,Debra V.---------------------------------Be a better

friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.[Non-text

portions of this message have been removed]1. While it is wonderful to share our

experiences with everyone on the list as to what treatments do and don't work

for us, pls always check with your dr. Some treatments are dangerous when given

along with other meds as well as to certain health conditions or just dangerous

in general.2. If you are in a difficult situation (doesn't matter what it is)

pls don't be afraid to ask for help. It is the first step to trying to make that

situation better.3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe@.... Also, it is not

uncommon for more than one member to be feeling bad at the same time when it

comes to flares and b/c of that potentially take something another member says

the wrong way. And that includes the things that one member may find funny (even

if it's laughing at fibro itself) even though we who deal with illness whether

one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls

let's be gentle with each other, and if you are having a bad day pls let us know

so that we can do our best to offer our support.Have a nice day everyone.Yahoo!

Groups LinksMake the switch to the world's best email. Get the new Yahoo!7 Mail

now. www.yahoo7.com.au/worldsbestemail[Non-text portions of this message have

been removed]

_________________________________________________________________

Connect and share in new ways with Windows Live.

http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008

[Guest guest]

, you are such a good daddy. I know she is a precious little child.

hugs,

Debra V.

john honeycutt wrote:

I have a 14yr. old daughter w/CP. She confined to a whelchair and bed. She can't

talk

walk or even crawl BUT she is the happiest child in the world. She is innocent

to the world and will never know sin, She special in many ways!!! I've been

changing diapers for 14yrs. now but I don't mind. She is my Sunshine she makes

me happy even when skys are gray, please dom't take my sunshine away...well you

should know the song.

I sing to her evreyday and she just laughs away.

GOD Bless ! ! ! . . . ...................... . . . s

2 cents

To: Fibromyalgia_Support_Group@...:

bonnie090196@...: Sat, 19 Jan 2008 02:04:42 -0800Subject: Re:

The outpouring of support here..... my gosh..

DebraHang in there, I have 2 autistic kids and whilst they are never 'normal "

can I say they do change and the things you wrestle with today will not be what

you wrestle with later on. At 7 my little boy lived under a blanket in a pram

refusing to get out, he did not walk or talk or interact with anyone at anytime.

At 12 I told him I had a lump in my breast and he asked could he touch it ? I

replied " no their my privates " his reply " damn, so close but yet so far " .As I

said not exactly the " normal response " butttttttt??????? Gotta laugh

sometimes. The outpouring of support

here..... my gosh..I really so much appreciate the outpouring of support and

information here since I have had questions about my 5 year old. I feel a little

bad about taking up the site with this because it is a fibro support site.

I will try to keep most of the future email about this on a private basis. Not

because I don't want to share it, but because I do not want to stray too far

away from the purpose of this support site. I will tell you that my heart has

been overwhelmed by the knowledge and outpouring of support here on this topic..

That is what is so special about this group... we have people from EVERY walk of

life imaginable. When it all boils down, we are all just human beings who

connect and can share what the miseries of fibromyalgia can bring to our lives.

Thanks so much. And may I say, I hope that all of you are doing as well as can

be today because you all suffer from a horrible illness just as I do. Alot of

you worse than me. Agape,Debra V.---------------------------------Be a better

friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.[Non-text

portions of this message have been removed]1. While it is wonderful to share our

experiences with everyone on the list as to

what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.2. If you are in a difficult

situation (doesn't matter what it is) pls don't be afraid to ask for help. It is

the first step to trying to make that situation better.3. To unsubscribe the

e-mail is: Fibromyalgia_Support_Group-unsubscribe@.... Also, it is

not uncommon for more than one member to be feeling bad at the same time when it

comes to flares and b/c of that potentially take something another member says

the wrong way. And that includes the things that one member may find funny (even

if it's laughing at fibro itself) even though we who deal with illness whether

one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls

let's be gentle with each other, and if you are having a bad day pls let us know

so that we can do our best to offer

our support.Have a nice day everyone.