Re: Please read -- To claudette hudson

[Guest guest]

I certainly understand the anger. I don't know the answer. It seems we are all

stuck with an invisible damn disease that plays a joke on us. The joke is on

us.... the disease hides from others. I am so fearful of the day I can no

longer work. (that does not feel far away this morning). They give no belief

to this damn demon without a face.

Honey, I am so sorry. Yep, you are right. Sometimes we need to be a bitch.

It seems nice people don't get anywhere. And with all the doubt out there at

the same times our bodies feel like we are dying....... That would justify being

a bitch. And it will turn most of us into one.

love and hugs sweetie,

Debra V.

claudette hudson wrote:

Hi Debra-- I couldn't agree with you more-I have so much anger too but

feel that I dont have the strength to fight anymore, it takes everything I have

to get through my day and to get through it as best I can. I just recently got

another denial on my SSD SSI. I now have to appeal this decision yet again after

filing twice before having gone through all the stages of the filing to hearing

process. Now makes three times, Ive been on this road for 7years with SSD, the

horror stories are true for some of us, others seem to have better luck, maybe

better doctors ?? I used to do what I could to try and get things done, but I've

next to given up on doctors, lawyers, SSA. I think they are all being paid off

and have no interest in giving any money to people who are truly suffering, I

saw some things on the news about the people that have terrible health

conditions, other than fm who are not getting disability from ssa. So you know

if a guy on tv has a majorly screwed up

back, I

cant remember what he had, but it was something bad, and he couldnt get the ssa.

So there is no hope for anyone with fm, outside of those who get it. What are we

going to do???? I mean really what are the answers for people like us, what is

it going to take to get people to listen, what people??? WHAT DO WE HAVE TO DO

TO GET VALIDATION?????????What are we going to do to get people to believe us I

AM PISSED too> Im doing everything in my power to stay ontrack-- eat right try

to get sleep, try to avoid red meat sugar caffeine, high starch high carbs, im

trying to excersize and still FEEL LIKE SHIT. Well this is my bitch for the

night, sorry i cant be my usual pleasant self-maybe thats my problem- nice

people dont seem to get very far- so maybe i should start acting like a bitch to

everyone and talk about fibro everyday and write letters and make public

speeches and talk and talk and talk. All the while my soul is dead-why because

sometimes its more than the fm it is the way

people are about it that makes it much worse.

debra van ness wrote: I sent that letter in response to

the comment of this being a made up illness. I am so pissed I will be flaring

all day. I will talk, write and write until I get the message out to everyone

possible that fibromyalgia is REAL. What a society of the dark ages in such a

world filled with technology.

Debra V.

---------------------------------

Never miss a thing. Make Yahoo your homepage.