A post here... how many people with FM don't know it

February 3, 2008

I have done so much thinking of late about fibromyalgia and the disbelief. Not

even just disbelief but people who probably don't speak up and are sick with

this. We all know that FM did not just show up the last 10 or 20 years. Even

now when the word is out there, I think some people see such stigma attached to

this they probably would not want to tell anyone if they were diagnosed..... or

would not seek diagnosis at all.

An example, you all know I work with a nursing home full of old folks. I look

at them sometimes and wonder what they may be suffering from in addition to old

age. Many of them may have complained in their younger years about aches and

pains and tiredness. But of course, I will bet very few people listned to

them....especially their doctors.

I believe now that what use to be called " hypochondria " and " rheumatism " was

most of the time the monster himself.

One more thought. People who think they could have this and have read or

heard of literature such as that of the NY Times, probably would not even want

the diagnosis of fibro for the fear of all the stigma. It is high time that we

all found more ways to speak up about this curse.

love,

Debra V.

---------------------------------

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February 3, 2008

>

> I have done so much thinking of late about fibromyalgia and the

disbelief. Not even just disbelief but people who probably don't

speak up and are sick with this. We all know that FM did not just

show up the last 10 or 20 years. Even now when the word is out

there, I think some people see such stigma attached to this they

probably would not want to tell anyone if they were diagnosed..... or

would not seek diagnosis at all.

>

> An example, you all know I work with a nursing home full of old

folks. I look at them sometimes and wonder what they may be

suffering from in addition to old age. Many of them may have

complained in their younger years about aches and pains and

tiredness. But of course, I will bet very few people listned to

them....especially their doctors.

> I believe now that what use to be called " hypochondria "

and " rheumatism " was most of the time the monster himself.

>

> One more thought. People who think they could have this and

have read or heard of literature such as that of the NY Times,

probably would not even want the diagnosis of fibro for the fear of

all the stigma. It is high time that we all found more ways to speak

up about this curse.

>

> love,

> Debra V.

>

> Debra, I think that since I go on both of the two national

sides --- one that is the American Pain Foundation (?) could be a

different name but I do get emails from them and then there is the

other fibro group that I also get emails from and have posted my

story on the website! What about doing something that would get word

out such as starting small and doing similar programs such as the

walks for breast cancer, etc. I know I have the purple Fibro plastic

bracelet and thought I had tossed more in the bag I gave to my great

nieces. There are other items on that web site that might help.

But I think it is time WE TAKE THE BULL BY THE HORNS AND WORK AS much

as we can to spread the word.

Sorry, I am afraid to stay online very long as I am in the process of

downloading an update and that's suppose to be another 30 hours!!!

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

February 4, 2008

Well you will be pleased to know that hypochondria is a real diagnosis now too.

In a 5,000 person research they discovered that those with hypochondria had more

receptors in their brain firing off signals in the hypothalamus in the brain

than any normal person does.

In other words hypo's really do feel MORE pain than average people.

Re: A post here... how many people with FM don't know it