Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Yeah. It has been around for years and years and people have treated us like shit. So now that an approved drug has come along, they will just say it is a money making scam and we are all still a bunch of nuts. There is no justice. There is no way to ever explain this crap to anyone and have them believe it unless they have it. I am just ticked.................................... Oh well, better ease up before I get into a flare that won't let me function. I love you all becuase we are in this together folks. Debra V. --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 If it works for me I don't care. When my son was dxed with ADHA one doctor told me he had turetts syndrome and put a clonidyn patch on him. He truned into a zombie. I found a new doctor and he pulled the patch off of him and gave me a script for Ritilan. I was sad about the thought of putting him on the med. He looked at me and said " a lot of children are medicated and do not need it. You will know in one day if he needs this medication " I filled the script and for the first time in his 7 years walking he sat at the table for a complete dinner, he had a conversation with me with out running in circles. He stopped repeating things after he said them the first time. He could watch a complete movie like it was the first time he ever saw it. His grades excelled in school. WE only gave him meds while he was in school as time passed and by 15 he did not want to take the meds anymore. That is another story.....Debi debra van ness wrote: Yeah. It has been around for years and years and people have treated us like shit. So now that an approved drug has come along, they will just say it is a money making scam and we are all still a bunch of nuts. There is no justice. There is no way to ever explain this crap to anyone and have them believe it unless they have it. I am just ticked.................................... Oh well, better ease up before I get into a flare that won't let me function. I love you all becuase we are in this together folks. Debra V. --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 -I sent an email to the author of the article in the NY Times, I am sure like many, many sufferers that they were very upset. And I did tell the author I would gladly trade places at any time with her. Now the authors are going to try to cruify FM and chronic pain sufferers. I think that we are punished enough with the doctors that look at you like you fell off the hay wagon, what business is it if I want to pay 200 or whatever for the meds that I need, even if it makes me feel better in my head the cost has been worth every penny. I know that their are alot of people out there in alot more pain than myself but it is real enough for me and I sure don't need some NY B***h telling me that I have all this pain in my head.......That my friends is BS!! myalgia_Support_Group , debra van ness wrote: > > Yeah. It has been around for years and years and people have treated us like shit. So now that an approved drug has come along, they will just say it is a money making scam and we are all still a bunch of nuts. There is no justice. There is no way to ever explain this crap to anyone and have them believe it unless they have it. > I am just ticked.................................... > Oh well, better ease up before I get into a flare that won't let me function. > I love you all becuase we are in this together folks. > Debra V. > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
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