(No subject)

February 11, 2008

Hi there,

I'm new to the group and wanted to introduce myself quickly! I do most of my

computing at work, so I may not post much, but I am definitely interested in the

subject matter here from a very personal perspective. I have had chronic pain

for 20 years and was officially diagnosed with FM as well as chronic fatigue,

chronic myofascial pain, degenerative disk disease, etc about 10 years ago.

I have had three major surgeries to try to alleviate pain. A breast reduction

surgery, a double fusion in my lumbar spine, and a forefoot reconstruction. The

breast reduction did get me smaller boobs but did nothing to alleviate my upper

back and neck pain. The fusion and the foot surgeries did what they are supposed

to do but did not decrease my pain significantly in any way. Each surgery tends

to come with its own " baggage " and scar tissue, nerve damage, stiffness, etc.

I still work full-time because I have no choice. I also have no insurance. I

am " uninsurable " and cannot find anyone to write me a policy, no matter how much

I might be willing to pay.

I am a technical editor by trade, and I am also a professional harpist and harp

teacher. So, yes, staying busy, within the bounds of what I'm able to do, does

seem to help. But I also get completely exhausted with very little exertion and

sometimes lose the rest of a whole day because I got too tired and hurt too

much.

I also try not to think about it too much or I find that I really get mired down

in it and get very sad. But, I know that I'm not alone and will look forward to

getting to know all of you a bit!

Paine

To contribute to my book, please contact me at fibrobook@...

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