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Thank you

>From: Christoley@...

>Reply-To: NF2_Crew

>To: nf2_crew

>Subject: (no subject)

>Date: Sat, 13 Apr 2002 11:02:59 EDT

>

>Dear robin

> My son just flew from La to Md and didn't notice any additional

>pressure on his head. He had just had a tumor taken out and abi put in had

>no

>complaints on flying. Hope this helps.

>

>

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Where did your son have radiosurgery done, and by whom? marie

(no subject)About radiosurgery in my opinion If my son was offered the choice again I would have said no. It didn't shrink either one of the an's or stop their growth one of them was just taken out was 5.5cm after the radiosurery. all it did was burn the area around tumor , caused scarring in this area which could causes more complications taken out an, and made my son,s facial nerve become as the doctor said very cheesie so that they weren't able to save the whole facial nerve. Just a parents opinion think hard about it if you think its worth it for you

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I am going to remember this one! Its amazing the various outcomes. wowza.

Christoley@... wrote:

About

radiosurgery in my opinion If my son was offered the choice again I would

have said no. It didn't shrink either one of the an's or stop their growth

one of them was just taken out was 5.5cm after the radiosurery. all it

did was burn the area around tumor , caused scarring in this area

which could causes more complications taken out an, and made my son,s facial

nerve become as the doctor said very cheesie so that they weren't able

to save the whole facial nerve. Just a parents opinion think hard about

it if you think its worth it for you

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  • 2 months later...
Guest guest

Hey Sandy,

Marcus and Lori made great points. Don't worry about how you type, just post.

We have too many members out there now that would rather be a "lurker" than post as they are afraid that someone would critize the spelling, grammar, etc.

Heck, the first time I posted, a virus went out with it. Yikes!!! I was new to the internet and my USED computer had a virus on the signature that of course I was unaware of. I will say, many stones were thrown at me which made me more upset but I hung in there.

many blessings,

----- Original Message -----

From: Lori Phibbs

heyyyyyyy Sandy:) Dont sweat the small stuff:) You keep posting a n y w a y you want. Just post often:)~~Lowi (and caps do help many here, also big font not italic)

----- Original Message -----

From: schwed52@...

sorry people about the all caps,i thought i was being nice for ppl with vision problems to read my post. i have no idea if i was yelling but if i was i am sorry. i am not very well versed on the computer and had no idea that it meant that. will try to remember in the future. sandy

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HI SANDY,

PLEASE CONTINUE TO USE CAPS IT IS A BIG HELP TO ME AND OTHERS WITH VISION PROBLEMS

PERSONALY I THINK ITS A BUNCH OF BULL TO THINK ONE IS YELLING BECAUSE THEY USE CAPS

ALWO USING CAPS MYSELF IS EASIER BECAUSE BESIDES VISION PROBLEMS I HAVE NUMBNESS IN MY FINGERS FO IT IS EASIER TO SET IT ON CAPS

THOSE WHO HAVE BEEN ON THE CREW A LONG TIME KNOW I HAVE VISION PROBLEMS AND USE CAPS

THANKS

CATHERINE

(no subject)

sorry people about the all caps,i thought i was being nice for ppl with vision problems to read my post. i have no idea if i was yelling but if i was i am sorry. i am not very well versed on the computer and had no idea that it meant that. will try to remember in the future. sandy

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  • 1 year later...

, I'm so glad you had a good appointment! YEA! But you shouldn't feel bad

about whining - we all do that at one point or another! That's what the list is

all about - support, and helping each other. Right?

Love Lana

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  • 4 years later...

Hi Debra,

I know I will have a great time with the boys as long as they don't fight over

everything like they do at home. I'm hoping that without mommy and daddy around

they may be different. I know they are different here when there is just one of

them. May be a pipe dream - we'll see. If they fight like they do at home, it

may be the last time I have them both at the same time. Then again Brady may

change his mind about staying part way through because of my little kitty that

he is afraid of. I have and open mind about how it will work out because with a

6 and a 3 year old it just a crap shoot anyway. Melt downs can occur at any

time.

Of course then there are my mood swings too. We'll just have to each bend a

little.

Now if I can just get ready for them to come. I know being on line isn't

getting ready, but I just have to take so many breaks.

Ditto to you about being a sweet, positive person.

Be good to yourself,

Love ya, Marti

debra van ness wrote:

Yeah Marti. I think fibro itself causes the mood swings too. I think

anyone living with this is bound to have mood swings.

Hope all goes well with the visit with the boys. I bet you will enjoy it though

it may be tiring.

Take care. You are such a sweet wonderful positive person.

Have the best day you can today.

love ya,

Debra

Marti Boguski wrote:

Hi Debra,

I don't know what effect hormones or menopause have on Fibromyalgia. This is

mainly because I was dx when I was around 40 and had my last period when I was

40. I don't know if this is coincidence or not.

I don't take any hormone replacement, but sometimes wonder if I should. I guess

there is a test to determine if you need estrogen or not, but I don't know what

it is.

I'm 59 now and so menopause is long gone. I still have mood swings - like a

pendulum. Mostly it depends on how I feel and what I can or can't do and how

frustrated I am over all of that. I can be way up and plan all sorts of things

and do lots of things one day and then the pain hits hard and the fibro flu

comes on and the fibro fog settles in and I can't do any of the things I've

planned and I get down, way down.

It's not fun, but it's the way my life goes right now. Now if I can just stay

together enough to finish getting ready for the boys to come this weekend, I

will be happy. I make a plan of what I'm going to do any given day and it seems

doable, but when the day is over and only a smidgen of it is done, I get

frustrated!

I hope you feel better soon,

Blessed be, Marti

debra van ness wrote:

Gosh my mood swings of late have been horrific. I have been so mad lately as you

all can tell from the last week or so. I get periods of anger. I get so

depressed. I get this damn fibro flaring and hormones flying out of range, and

it takes me over. I am 43. I think my mom had menopause at 44. I have been so

irritable, my periods are heavy when they get here and then they stop in about 2

short days. I get flashes of heat sometimes where sweat pours off my face for no

reason. Well, all you females get the picture. (sickening picture too... LOL)...

sorry.

Coupled with the fibro, it is beginning to be a real challenge. I believe that

the hormone changes are making the fibro worse at times. I do not want to take

any hormone replacement therapy though....... unless I absolutely have to. I

guess I will start taking the black cohosh again. (natural remedy). It seemed to

help a little when I took it about a year ago.

I still love you all. Dont know what I would do without you.

Debra V.

---------------------------------

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