Re: Fell on my face/Jeanne

[Guest guest]

Oh Tigger,

Maybe it is a RI thing. If I stay in bed , I have no bruises. Now walking around

is another thing. I'm not happy that you now have lupus. You probably had it

before but you know our tests take forever to tell the doc what they want to

know. My niece has lupus and a friend as well. It isn't fun and it is a hit or

miss with meds because it effects everyone differently. Kind of sounds like

fibro .

Today, my family dragged me to wally world. I walked down a couple of aisels and

saw a few friends and talked with them. Then I walked t5o the car. After that I

was exasted. I sat in the car while they went into stop and shop. After I ate

lunch I had to take a nap for 4hrs because I was exhasted. Oh what a wonderful

life I lead!!!

JudyMer

---- Tigger wrote:

> I promise I won't give up. I'm like one of those little punching bag clowns

> that were around when I was a kid. you hit them, they go down, and then they

> get up again. When I get really down, it's just basically me regrouping.

>

>

>

> The doctor now thinks I have lupus. I've been highly symptomatic for years

> and my ANA finally came back positive. The doc asked me what I was

> thinking. I told her I don't care what you call it as long as there is some

> help. She said that when I see the rheumy on the 11th I should start

> getting some help. We're just getting me through in the meantime.

>

>

>

> Tigger (Ruth) in Rhode Island

>

>

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of Jeanne and

> Dave

> Sent: Monday, January 28, 2008 8:37 AM

> To: Fibromyalgia_Support_Group

> Subject: Re: Re: Fell on my face

>

>

>

> Don't you dare give up, Tigger!! You should talk to your doc about possible

> sleep walking, and if there's anything that can be done. It's pretty

> serious that you don't remember it happening at all. Maybe you need a sleep

> study done? Of course, there's no guarantee you'd go on one of your night

> wanderings then. Anyhow, we love you and would miss you too much if you

> weren't around. So NO GIVING UP!!!!

> Jeanne in WI

>

> > Granted my balance isn't good and that's why I use a cane when I go out,

> > but this all seemed to happen while I was sleeping. I went to bed fine

> > and woke up looking like (and feeling like) I'd been beaten with a stick.

> > I live

> alone and have absolutely no recollection of getting out of bed, falling,

> getting up and then getting back into bed.

> >

> I cry every time I look in the mirror and as we all know it looks worse

> before it starts to get better. My back is all twisted up too. I just want

> to curl up in bed and give up.

> >

> Tigger (Ruth) in Rhode Island

>

>

>

>

>

>

[Guest guest]

I have found it is far easier when I am in Wallyworld or Kroger, etc.

to utilize one of their scooters. They don't move fast, true, but

neither do we! That seems to help on my exhaustion level.

For stores that don't have the scooters, if DH is with me, he goes in

and gets what we need while I stay in the vehicle. I try to bring a

magazine or book or my crochet with me so I have something to do

while he shops....lol.....we're going to find a way to make it work!

Darlene

> > I promise I won't give up. I'm like one of those little punching

bag clowns

> > that were around when I was a kid. you hit them, they go down,

and then they

> > get up again. When I get really down, it's just basically me

regrouping.

> >

> >

> >

> > The doctor now thinks I have lupus. I've been highly symptomatic

for years

> > and my ANA finally came back positive. The doc asked me what I

was

> > thinking. I told her I don't care what you call it as long as

there is some

> > help. She said that when I see the rheumy on the 11th I should

start

> > getting some help. We're just getting me through in the meantime.

> >

> >

> >

> > Tigger (Ruth) in Rhode Island

> >

> >

> >

> >

> >

> > _____

> >

> > From: Fibromyalgia_Support_Group

> > [mailto:Fibromyalgia_Support_Group ] On Behalf Of

Jeanne and

> > Dave

> > Sent: Monday, January 28, 2008 8:37 AM

> > To: Fibromyalgia_Support_Group

> > Subject: Re: Re: Fell on my face

> >

> >

> >

> > Don't you dare give up, Tigger!! You should talk to your doc

about possible

> > sleep walking, and if there's anything that can be done. It's

pretty

> > serious that you don't remember it happening at all. Maybe you

need a sleep

> > study done? Of course, there's no guarantee you'd go on one of

your night

> > wanderings then. Anyhow, we love you and would miss you too much

if you

> > weren't around. So NO GIVING UP!!!!

> > Jeanne in WI

> >

> > > Granted my balance isn't good and that's why I use a cane when

I go out,

> > > but this all seemed to happen while I was sleeping. I went to

bed fine

> > > and woke up looking like (and feeling like) I'd been beaten

with a stick.

> > > I live

> > alone and have absolutely no recollection of getting out of bed,

falling,

> > getting up and then getting back into bed.

> > >

> > I cry every time I look in the mirror and as we all know it looks

worse

> > before it starts to get better. My back is all twisted up too. I

just want

> > to curl up in bed and give up.

> > >

> > Tigger (Ruth) in Rhode Island

> >

> >

> >

> >

> >

> >

[Guest guest]

LOL @ Wallyworld...that's what I call it too!!!!

Anita

-- Re: Re: Fell on my face

> >

> >

> >

> > Don't you dare give up, Tigger!! You should talk to your doc

about possible

> > sleep walking, and if there's anything that can be done. It's

pretty

> > serious that you don't remember it happening at all. Maybe you

need a sleep

> > study done? Of course, there's no guarantee you'd go on one of

your night

> > wanderings then. Anyhow, we love you and would miss you too much

if you

> > weren't around. So NO GIVING UP!!!!

> > Jeanne in WI

> >

> > > Granted my balance isn't good and that's why I use a cane when

I go out,

> > > but this all seemed to happen while I was sleeping. I went to

bed fine

> > > and woke up looking like (and feeling like) I'd been beaten

with a stick.

> > > I live

> > alone and have absolutely no recollection of getting out of bed,

falling,

> > getting up and then getting back into bed.

> > >

> > I cry every time I look in the mirror and as we all know it looks

worse

> > before it starts to get better. My back is all twisted up too. I

just want

> > to curl up in bed and give up.

> > >

> > Tigger (Ruth) in Rhode Island

> >

> >

> >

> >

> >

> >