Re: DebraV

[Guest guest]

Thanks friend! You are also a very loving and wonderful person. I think of you

alot lately with all the health issues you have in addition to the fibro. I

cannot imagine bone cancer and fibro together. What a wonderful spirit you

have.

love ya,

Debra

Marti Boguski wrote:

Hi Debra,

You are such a sweetie. I know you really take things to heart and feel them

deeply. I do too and it can either make you feel very good or very bad,

depending on what is going on.

You are such a supportive, caring person. You have done nothing wrong in

anything you said. I reread what you wrote and all you did was speak from your

experiences and that is all any of us can do.

You, or any of us, can't create fears in anyone. It's the fear that is there

already that makes people feel the way they do. I'm sorry too that Melody

started feeling hopeless and wrote her to tell her so. We all have hope. The one

thing we can count on is change; because everything changes. It can change for

the good or the bad, but nothing in the universe remains constant. So there is

always hope.

Because of fear Melody needed to try to hang onto the premise that Fibromyalgia

doesn't progress. But because it has progressed in so many of us, the fear

started to overtake her. It isn't any of our faults. We are all just trying to

live through what we are dealing with and do the best that we can. Nobody can

predict what is going to happen in the next few minutes, much less in years, so

there is always hope.

You go through so much in your life. You don't need to add guilt to your

emotional and physical pain. You only spoke your mind. We all know how caring

and wonderful you are.\

Blessings,

Marti

debra van ness wrote:

Melody, I am so sorry. I just feel so horrible for adding to your misery and

fears. Please keep in mind that not ALL of us are the same. Have you progressed?

If not then you probably won't. Please don't be so sure. I have heard that the

majority of us do find it progresses, but that does not mean that it does every

single time. Sweetie, Please. I just want to pick you up and hug you. And as for

the teeth thing, there is really nothing out there that says fibro will do this

to our teeth. Alot of folks here have had fibro for years and still have great

teeth. If it is fibro that is doing this to some of us, It won't do it to all of

us.

I only really speak from personal experience. I don't have any idea what other

people's bodies will do or how they will feel 5 or 10 years from now. Hell, I

dont' know about my own. Maybe I have hit the peek of what this will do and

maybe it won't get worse. As of now I am still able to get out of bed, go to

work, and take care of myself. It may not be easy, but I can still do it. Maybe

I will still be able to do that in 20 years.

Honey, please don't be so sure that all your teeth will fall out and you will be

bound to the bed for life. It likely is not so. Really. I don't mind it when

people say that their FM has not progressed... it is a wonderful thing to hear.

I just have to tell my own experience with it so I can deal with the fact that

mine has. BUT MAYBE MINE WILL NOT GET ANY WORSE. And MAYBE yours won't either.

I just feel so helpless in the comfort I would like to give you. I just don't

know how to fix the horrible fears I feel I have had a hand in provoking.

I am so sorry.

love from the heart,

Debra V.

---------------------------------

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[Guest guest]

Hi Debra,

I just now found this post. I've been feeling so sorry for myself that I must

have missed it in my skimming. I've been a mess. I need to get my positive

attitude back before the chemo starts on Wednesday 2/20.

I really appreciate your saying what you did. Thank you so much.

I wrote a post earlier today that no one was paying any attention to my posts

and avoiding me probably because of my taking a stand on things I thought were

unfair. I need to stop doing that because it mostly just bothers people and

then they don't like me. I can think I'm doing the right thing and find out

that even though people agree with me, what I say is supposed to remain unsaid.

I'm sorry I didn't mention that you are always right there with your support

And I thank you for it. You are such a warm and loving person. Thank you for

keeping me in your thoughts.

Love ya too,

Marti

debra van ness wrote:

Thanks friend! You are also a very loving and wonderful person. I

think of you alot lately with all the health issues you have in addition to the

fibro. I cannot imagine bone cancer and fibro together. What a wonderful spirit

you have.

love ya,

Debra

Marti Boguski wrote:

Hi Debra,

You are such a sweetie. I know you really take things to heart and feel them

deeply. I do too and it can either make you feel very good or very bad,

depending on what is going on.

You are such a supportive, caring person. You have done nothing wrong in

anything you said. I reread what you wrote and all you did was speak from your

experiences and that is all any of us can do.

You, or any of us, can't create fears in anyone. It's the fear that is there

already that makes people feel the way they do. I'm sorry too that Melody

started feeling hopeless and wrote her to tell her so. We all have hope. The one

thing we can count on is change; because everything changes. It can change for

the good or the bad, but nothing in the universe remains constant. So there is

always hope.

Because of fear Melody needed to try to hang onto the premise that Fibromyalgia

doesn't progress. But because it has progressed in so many of us, the fear

started to overtake her. It isn't any of our faults. We are all just trying to

live through what we are dealing with and do the best that we can. Nobody can

predict what is going to happen in the next few minutes, much less in years, so

there is always hope.

You go through so much in your life. You don't need to add guilt to your

emotional and physical pain. You only spoke your mind. We all know how caring

and wonderful you are.\

Blessings,

Marti

debra van ness wrote:

Melody, I am so sorry. I just feel so horrible for adding to your misery and

fears. Please keep in mind that not ALL of us are the same. Have you progressed?

If not then you probably won't. Please don't be so sure. I have heard that the

majority of us do find it progresses, but that does not mean that it does every

single time. Sweetie, Please. I just want to pick you up and hug you. And as for

the teeth thing, there is really nothing out there that says fibro will do this

to our teeth. Alot of folks here have had fibro for years and still have great

teeth. If it is fibro that is doing this to some of us, It won't do it to all of

us.

I only really speak from personal experience. I don't have any idea what other

people's bodies will do or how they will feel 5 or 10 years from now. Hell, I

dont' know about my own. Maybe I have hit the peek of what this will do and

maybe it won't get worse. As of now I am still able to get out of bed, go to

work, and take care of myself. It may not be easy, but I can still do it. Maybe

I will still be able to do that in 20 years.

Honey, please don't be so sure that all your teeth will fall out and you will be

bound to the bed for life. It likely is not so. Really. I don't mind it when

people say that their FM has not progressed... it is a wonderful thing to hear.

I just have to tell my own experience with it so I can deal with the fact that

mine has. BUT MAYBE MINE WILL NOT GET ANY WORSE. And MAYBE yours won't either.

I just feel so helpless in the comfort I would like to give you. I just don't

know how to fix the horrible fears I feel I have had a hand in provoking.

I am so sorry.

love from the heart,

Debra V.

---------------------------------

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