Re: Progression....bad subject Not So bad

[Guest guest]

I don't think anyone has taboo'd anyone on what they have or have not done

have they? Did I miss a post saying that? Because listen I went from a 60+

work week in the healthfield, clean freak housekeeper, all independent to the

extent that my husband would get upset because I would never ask him for help,

he felt unneeded. And now I am out of work, been house bound since Nov. my

accomplishment of the day has diminished to if I can get up and go to the

bathroom without help, how little of a step is that?, and I know that maybe I

should push myself again, but in more ways then 1 I can't get there. Oh also

thanks to me that I did decide it was time to look into a support group to be

involved with because if I could get out, there is nothing in my remote area. To

talk progressive, my opinion is it just is a BAD CHOICE WORD. I think in the

case of fibromyalgia and this can be backed up by your Dr's. and some differ on

theories, but it doesn't progress, it just varies

in so many ways in each of us, it worsens or betters with each flare-up, I use

to get less frequent, milder ones with only my back, neck and sometimes arm

involved, now I am stuck again in a full body one. But I am not going to

believe that at some point it won't let up, and I will go back to my just

regular fibro pain I had that was more tolerable, nor am I going to believe that

once my body starts realizing I am no longer putting it through it's grueling

routine of work work work, and I won't abuse it anymore by pushing it to the

point of exhaustion when it is telling me it has had enough of whatever I may be

doing. Driving to me has become a problem I can no longer evenbe ia a caar more

than an hour . So I think again just keep that word progression out of the

vocabulary for awhile and see what happens. Best to you

Sharon

wrote: I think it's hard for those of

us that have lost so many things and

keep losing. That people saying this disease is not progressive somehow

diminishes what we are going through. I am happy for people that are

able to keep working and have some kind of a life outside of this

disease. But please understand I don't like to feel like I have not

done everything I can to try and fight this. I don't want to think of

the piddly progress I make as piddly. This subject is upsetting to many

people that can't afford to be upset so can we all just agree that this

monster is different for everyone, and try to boost everyone up for

what they are doing?

[Guest guest]

I think it's hard for

those of us that have lost so many things and

> keep losing. That people saying this disease is not progressive

somehow

> diminishes what we are going through. I am happy for people that

are

> able to keep working and have some kind of a life outside of this

> disease. But please understand I don't like to feel like I have not

> done everything I can to try and fight this. I don't want to think

of

> the piddly progress I make as piddly. This subject is upsetting to

many

> people that can't afford to be upset so can we all just agree that

this

> monster is different for everyone, and try to boost everyone up for

> what they are doing?

>

>

>

>

>

>

>

[Guest guest]

oops sorry clicked before I typed. I'm sorry I was feeling put down

by the whole subject and I was hoping it would end. But a few people

feel it necessary to grind everyone into the dirt that doesn't agree

with them and the Dr.s. Need I remind you that Dr.s also used to tell

people like us that our pain was all in our heads!!!!!!

I think it's hard for

those of us that have lost so many things and

> keep losing. That people saying this disease is not progressive

somehow

> diminishes what we are going through. I am happy for people that

are

> able to keep working and have some kind of a life outside of this

> disease. But please understand I don't like to feel like I have not

> done everything I can to try and fight this. I don't want to think

of

> the piddly progress I make as piddly. This subject is upsetting to

many

> people that can't afford to be upset so can we all just agree that

this

> monster is different for everyone, and try to boost everyone up for

> what they are doing?

>

>

>

>

>

>

>