Re: It IS real/Melody

[Guest guest]

Melody - I enjoyed your post, and I agree with you 100%. I keep telling you

that you are not a bad list member. Sorry you're in so much pain right now.

Winter is the pits. You know, what you said so well in your post could be

turned into a letter to the editor to anyone of those nasty publications who

write that FM isn't real. If you feel up to it, I say go for it. The more

the better as Debra would say. I wish I could contribute, but just don't

feel I can at this time. My therapy is answering what posts I can on here.

I care about people and want to try to help if I can. So, thanks again for

a great, well-written post. Take care.

Jeanne in WI

> Just a ramble/vent.

>

> All the discussion on that article about whether it's real - we all know

> that it's real, we feel this pain and it is VERY (bleeping) real. As I

> type this, I have that 'been beaten' feeling all over, and my outer sides

> of the very top of my legs/below my hips area is on-fire feeling. The way

> I feel today happens during the winter, and then I usually get

one spring time flare. Oh yes, this is most definitely real. What my body

has been feeling for almost 13 years is very real!

>

> Doctors will say that it is because you are depressed. My doctor friend

> told me that, I said " But I'm NOT depressed! " He was baffled

> then! Because I have been depressed before, but now I'm not. But when a

> flare hits, THEN I get depressed. Not " depression brings on flare " , but

> " flare hurts so I feel less happy. " Who is happy go lucky when you feel

> like you've been beaten by a baseball bat!? Find me that person. I may

> wear a smile when around others, but those are just old habits. I don't

> see a doctor for my fibro at this time. You want to know why? Because of

> all the years I spent going from doctor to doctor to doctor to bleeping

> doctor, asking what is wrong with me, only to be told I'm stressed, or

> depressed, or OCD or generalized anxiety disorder or

working too hard, burning the candles at both ends, to being given that

look. A decade of that is enough to make anyone lose trust and belief in

doctors.

>

> And now there is lyrica but I'm so scared to try that. You want to know

> why? Several years ago one of the MANY doctors I visited prescribed me

> VIOXX!!!! My 'gut' said wait this one out, don't take it, it's kind of

new and you don't know enough about it. Well I waited, then there was the

recall and people dying etc.

So now it's the same thing with Lyrica, I'm just too overly cautious to

take it! I don't want these drug companies who spend a ton of money on

advertising to get MY money only if it is going to hurt me long term or not

make me feel better. And the side effects terrify me, honestly. I hate

spending money on something that is going to make me feel worse. I do hope

this Lyrica is a good thing, and not another drug for companies to get rich

off. I always find it funny when I am taking something and then it becomes

available for generic, so they make a new

'formula' so they can charge you more money. Example - Flonase. It used

to cost me $30! It went generic (praise the heavens!) and that only cost me

$10. Well the company went and made Veramyst. I want to laugh in their

faces and say you think I'm going to buy THAT when I get generic flonase and

it works just fine? Why can't they consider the patient and their health

concerns instead of holding out their hands for all our money!? Do they

think we actually have any money left after how much we spend on

prescriptions, supplements, remedies? If they wouldn't spend so much on

advertising, you'd think Americans could afford our prescriptions. It's

just another thing that I could go on and on about. I do generic when I

can. Most of my meds are generic. But

Aciphex isn't generic yet. So I spend $30 a month on that, and I refuse

to try and live without it.

>

> Sometimes I feel like doctors don't know a damn thing about this and have

> no clue how to treat it, what causes it, and anything else about it.

> Those that do are a million miles from my home. So I tend to feel

> extremely frustrated when I so much as ponder the thought of talking to my

> doc, he'll laugh at me! Or he'll give me 'that look' and you all know

> what look I'm talking about. I'm so fed up with that look! I lost faith

> in doctors, but found one I like okay, and I only go to him for my GERD

> meds and sinus/allergy meds. I know the time has come to discuss this

> with him, but I keep putting it off because if he gives me 'that look'

> then I'll walk out right then and there! And right now I like him and I

> don't want to not like him.

>

[Guest guest]

Hubby and I joked about moving to Hawaii. Anyone here live in Hawaii?

Not sure if I have anything left to write, plus from what I read of that

publication, I don't think it was aimed at us fibro sufferers, but aimed

towards drug companies taking advantage of people. But who knows. My

fog makes me comprehend things off sometimes.

Today I need to spend more time off the computer, so maybe when this

flare is over.

djgraves9497@... wrote:

> Melody - I enjoyed your post, and I agree with you 100%. I keep telling you

> that you are not a bad list member. Sorry you're in so much pain right now.

> Winter is the pits. You know, what you said so well in your post could be

> turned into a letter to the editor to anyone of those nasty publications who

> write that FM isn't real. If you feel up to it, I say go for it. The more

> the better as Debra would say. I wish I could contribute, but just don't

> feel I can at this time. My therapy is answering what posts I can on here.

> I care about people and want to try to help if I can. So, thanks again for

> a great, well-written post. Take care.

> Jeanne in WI

>

>